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Old 01-14-2008, 12:24 PM   #1
SoCalGal
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From my daughter...

My daughter recently got a tattoo of the word "fight" on her wrist. I wanted to share the words she wrote, when she sent me the picture of her tattoo appointment. (Words that I wish I never had to read).
Thank you for letting me share this with you. xoxo Flori

Stage four of four and you can't go any further. Stage four of four and my mom is dying and my world is a brick wall that hurts my eyes to look at. Her world is an inevitable cliff and it makes her dizzy to look down. I would do anything to stop time just as she would do anything to break through that brick wall. Step back to stage three of four, stage two of four, stage one of four. Step back to when cancer was an obstacle, not a lifestyle. Step back from your wall, from your cliff, from your life. Step back and look up, speak up, stand up. Live it up, and never let them make you give it up. Keep fighting. --GBH<o></o>

photo: Gali Firstenberg

FIGHT tattoo.jpg

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1996 cancer WTF?! 1.3 cm lumpectomy Er/Pr neg. Her2+ (20nodes NEGATIVE) did CMF + rads. NED.
2002 recurrence. Bilateral mastectomy w/TFL autologous recon. Then ACx2. Skin lymphatic rash. Taxotere w/Herceptin x4. Herceptin/Xeloda. Finally stops spreading.
2003 - Back to surgery, remove skin mets, and will have surgery one week later when pathology can confirm margins.
‘03 latisimus dorsi flap to remove skin mets. CLEAN MARGINS. Continue single agent Herceptin thru 4/04. NED.
‘04 '05 & 06 tiny recurrences - scar line. surgery to cut out. NED each time.
1/2006 Rads again, to scar line. NED.

3/07 Heartbreaking news - mets! lungs.sternum. Try Tykerb/Xeloda. Tykerb/Carbo/Gemzar. Switch Oncs.
12/07 Herceptin.Tykerb. Markers go stable.
2/8/08 gamma knife 13mm stupid brain met.
3/08 Herceptin/tykerb/avastin/zometa.
3/09 brain NED. Lungs STABLE.
4/09 attack sternum (10 daysPHOTONS.5 days ELECTRONS)
9/09 MARKERS normal!
3/10 PET/CT=manubrium intensely metabolically active but stable. NEDhead.
Wash out 5/10 for tdm1 but 6/10 CT STABLE, PET improving. Markers normal. Brain NED. Resume just Herceptin plus ZOMETA
Dec 2010 Brain NED, lungs/sternum stable. markers normal.
MAR 2011 stop Herceptin/allergy! Go back on Tykerb and switch to Xgeva.
May-Aug 2011 Tykerb Herceptin Xgeva.
Sept 2011 Tykerb, Herceptin, Zometa, Avastin.
April 2012 sketchy drug trial in NYC. 6 weeks later I’m NED!
OCT 2012 PET/CT shows a bunch of freakin’ progression. Back to LA and Herceptin.avastin.zometa.
12/20/12 add in PERJETA!
March 2013 – 5 YEARS POST continue HAPZ
APRIL 2013 - 6 yrs stage 4. "FAILED" PETscan on 4/2/13
May 2013: rePetted - improvement in lungs, left adrenal stable, right 6th rib inactive, (must be PERJETA avastin) sternum and L1 fruckin'worsen. Drop zometa. ADD Xgeva. Doc says get rads consultant for L1 and possible biopsy of L1. I say, no thanks, doc. Lets see what xgeva brings to the table first. It's summer.
June-August 2013HAPX Herceptin Avastin Perjeta xgeva.
Sept - now - on chemo hold for calming tummy we hope. Markers stable for 2 months.
Nov 2013 - Herceptin-Perjeta-Avastin-Xgeva (collageneous colitis, which explains tummy probs, added Entocort)
December '13 BRAIN MRI ned in da head.
Jan 2014: CONTINUING on HAPX…
FEB 2014 PetCT clinical “impression”: 1. newbie nodule - SUV 1.5 right apical nodule, mildly hypermetabolic “suggestive” of worsening neoplastic lesion. 2. moderate worsening of the sternum – SUV 5.6 from 3.8
3. increasing sclerosis & decreasing activity of L1 met “suggests” mild healing. (SUV 9.4 v 12.1 in May ‘13)
4. scattered lung nodules, up to 5mm in size = stable, no increased activity
5. other small scattered sclerotic lesions, one in right iliac and one in thoracic vertebral body similar in appearance to L1 without PET activity and not clearly pathologic
APRIL 2014 - 6 YRS POST GAMMA ZAP, 7 YRS MBC & 18 YEARS FROM ORIGINAL DX!
October 2014: hold avastin, continue HPX
Feb 2015 Cancer you lost. NEDHEAD 7 years post gamma zap miracle, 8 years ST4, +19 yrs original diagnosis.
Continue HPX. Adding back Avastin
Nov 2015 pet/ct is mixed result. L1 SUV is worse. Continue Herceptin/avastin/xgeva. Might revisit Perjeta for L1. Meantime going for rads consult for L1
December 2015 - brain stable. Continue Herceptin, Perjeta, Avastin and xgeva.
Jan 2016: 5 days, 20 grays, Rads to L1 and continue on HAPX. I’m trying to "save" TDM1 for next line. Hope the rads work to quiet L1. Sciatic pain extraordinaire :((
Markers drop post rads.
2/24/16 HAP plus X - markers are down
SCIATIC PAIN DEAL BREAKER.
3/23/16 Laminectomy w/coflex implant L4/5. NO MORE SCIATIC PAIN!!! Healing.
APRIL 2016 - 9 YRS MBC
July 2016 - continue HAP plus Xgeva.
DEC 2016 - PETCT: mets to sternum, lungs, L1 still about the same in size and PET activity. Markers not bad. Not making changes if I don't need to. Herceptin/Perjeta/Avastin/Xgeva
APRIL 2017 10 YEARS MBC
December 2017 - Progression - gonna switch it up
FEB 2018 - Kadcyla 3 cycles ---->progression :(
MAY30th - bronchoscopy, w/foundation1 - her2 enriched
Aug 27, 2018 - start clinical trial ZW25
JAN 2019 - ZW25 seems to be keeping me stable
APRIL 2019 - ONE DOZEN YEARS LIVING METASTATIC
MAY 2019 - progression back on herceptin add xeloda
JUNE 2019 - "6 mos average survival" LMD & CNS new single brain met - one zap during 5 days true beam SBRT to cord met
10/30/19 - stable brain and cord. progression lungs and bones. washing out. applying for ds8201a w nivolumab. hope they take me.
12/27/19 - begin ds8401a w nivolumab. after 2nd cycle nodes melt away. after 3rd cycle chest scan shows Improvement, brain MRI shows improvement, resolved areas & nothing new. switch to plain ENHERTU. after 4th cycle, PETscan shows mostly resolved or improved results. Markers near normal. I'm stunned but grateful.
10/26/20 - June 2021 Tucatinib/xeloda/herceptin - stable ish.

Last edited by SoCalGal; 01-16-2008 at 09:57 AM.. Reason: photo credit
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Old 01-14-2008, 12:44 PM   #2
suzan w
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Dear Flori, Thank you for sharing...you have raised an awesome daughter. She speaks for all of us. FIGHT...
__________________
Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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Old 01-14-2008, 01:05 PM   #3
chrisy
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Oh My God!

Flori, I am speechless (but not tear-less). That is beautiful, terrible, wonderful.

Hugs to you and your daughter.

Fight.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 01-14-2008, 01:08 PM   #4
lilyecuadorian
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Please tell your dear daughter that I got tears falling when I read this letters, blessing I'm pray GOD to give us enough life and strenght to live until we find the cure for her2 thanks for share
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Lily
Diag April/06 5 months after give birth my son Max
stage IV mets on liver (5 tumors) 38 year old,
her2+++ and ER+PR+ from32 nodes 4 positives
mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen
NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery
5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression
03-05-08 start tykerb & xeloda
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Old 01-14-2008, 02:09 PM   #5
Mary Anne in TX
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It's love like this that makes fighting worth it. It's the reason for fighting and winning. She's a wonder and is so lucky to have you for her mom! Everytime you come close to the edge of that cliff, look out and up and see the sun, the moon, the stars. All placed there just for you! ma
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 01-14-2008, 02:27 PM   #6
Andrea Barnett Budin
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Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
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Exclamation Too Many Words From Me, But So Much Love...

Wow, Flori! Your daughter is as eloquent as you are. Her pain is throbbing. I can feel it. And it shakes me to the core.

Stage 4 of 4 is not a good place to be. But, I pray you do not see death as the next step. You are up against a brick wall, but I see that it is starting to crumble. It will turn to dust long before you do! Your Spirit is focused. Your Intention and Expectation are fierce. You can destroy the wall, brick by brick, with your impassioned thoughts, with the chemo, with the power of the energy of your will... If one person has done it, YOU can do it.

The next step is not inevitable, as I see it. You can tarry here for a long time. In Life! Day by day becoming victorious over your wall. Others have done this. Nothing is impossible.

I can understand wanting to stop time. With our diagnosis comes a new way of being. No matter what stage. It is a sorely unwanted reality. We can and do resist. Rail at accepting it. But sooner or later we see that holds only pain. The pain is in the struggle. For sanity, we get past aching to change what cannot be undone. And come to see that victory is in taking control of all our reserves to FIGHT. Mortality is inevitable for us all. And I know that those facing cancer know this most keenly. So, often we cringe and feel overwhelmed and defeated. But then we rally. We reach deep into ourselves and connect with the divinity that resides within us. I have learned that in aligning myself with my Spirit I get in touch with the glory of each day given to me. The sacredness of Life. And that is a blessing.

I learned to live AS IF what I wanted already existed. That awareness in turn allowed me to live with joy and serenity, even as I faced my brick wall. *KNOWING* my desired outcome was on its way to me, even as I suffered physically, as my cancer cells died. So I was able to live spiritually uplifted even then.

You are in a process of healing, Flori, as I see it. Various factors are working to correct what is malfunctioning in your body. Destroying what is not worthy of being within you.

I agree with your daughter. STEP BACK FROM YOUR DIZZYING CLIFF. Can you see that the brick wall before you isn't as solid as you think...? You need an elevated perspective. In silence you can rise up, above yourself, and become The Observor. Then you are free to harness the power of your Spirit to overcome it all. Your daughter, and her indelible tattoo, are living reminders that you must FIGHT, Flori, with every fiber of your being. Her statement could not have been made more boldly!! Each time you set eyes on your lovely daughter -- remember not to even consider giving it up.

I pray you do not see yourself as dying. You are so vibrant! I can feel your Essence. Like a tree that appears withered and past hope, you can be saved. Do not dig that tree up and uproot it. It is still alive! Nurture it and see it come back to Life.

I can hear your daughter saying, Do not give up! I add my voice to hers. And many others I am sure will join the chorus. Get up, Flori and RUN FOR YOUR LIFE...

With my love,,,,,,,,,,,,,,,,,,,,,,,, Take my commas . Take some strength. Borrow some courage. I have ample to share. I have emphatically refused to give up. Stage 4 of 4. You have done this. It is the hardest thing to do. But you can do this again. You just need to regain your footing. Please, come over here, and sit by me!
Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 01-14-2008, 03:53 PM   #7
Becca
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Flori, your daughter's words are moving and an inspiration for us. Thank you for sharing them. When I look in my 23 year old daughter's face, feel her arms around me, feel her sadness to see me go through treatments and side effects, I can feel her strength ebb into me giving me life and hope. Your daughter's words, her tattoo must give you the same and make you proud of the lovely, creative lady you raised. What blessings are our children!
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Old 01-14-2008, 04:49 PM   #8
dhealey
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Flori, Your daughters words are so inspiring to us all. Thank you for sharing. You have raised an awesome daughter. I still have tears in my eyes. Reading what she wrote gives us all the strength and hope to keep on fighting. You are truely blessed.
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Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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Old 01-14-2008, 07:50 PM   #9
Bill
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Sweet Flori,, you are an awesome person and your wondrous spirit is shining through for all of us to see. Your amazing daughter is truly a fighter,, and so are you. Both of you continue to Fight the Good Fight! Your daughter's poem left me stunned and speechless. Her words are straight from the heart and soul. You must be so very proud of her. Hugging you both,, and praying for you both,, Love,, Bill
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Old 01-14-2008, 07:54 PM   #10
Sheila
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Flori
What a moving post....straight from her heart...I often wonder what my children think but never dare to tell me.
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 01-14-2008, 07:59 PM   #11
kareneg
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That was truely amazing, we have to keep fighting your daughter is a beautiful soul and the poem was the most touching I have ever read. Thank you so much for sharing this all my best.
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Love and Hope
Karen

IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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Old 01-14-2008, 08:12 PM   #12
Soccermom
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The acorn truly doesnt fall far from the tree,Flori. Her words are both powerful and angry. So sad to know our children must feel our pain so profoundly.

With gratitude for your sharing,
Marcia

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Old 01-14-2008, 09:26 PM   #13
Sherryg683
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You've got me misty eyed, what a daughter. I feel her pain and her love. ..sherryg
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Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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Old 01-14-2008, 09:41 PM   #14
Jean
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Flori,
You are blessed to have such a loving daughter who is able to share her thoughts and feelings, most of all her deep love for you. You have done
an outstanding job as a MOM.......be proud, be very proud.

Regards,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 01-14-2008, 10:56 PM   #15
Patricia
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Thank you Flori for sharing this. Your daughter's thoughts truly touched me. I have 2 step daughters (20 & 22) and 2 of my own children (18 yo daughter and 15 yo son) and I have seen and felt the pain that they feel throughout this fight that invades their sleep, disturbs their thoughts and disrupts their day to day. Both their dad (and mom for the step daughters) were dx within 12 mos from me and everyone has been fighting! They are so affected as young adults and it is so painful to watch them deal with it and still want them to be so hopeful as young people entering this world.

Thank you again for sharing with us.

Hugs (to both of you),
Patricia
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age 37 @ dx 7/21/05: IDC 1.5cm, grade III, Stage 1c, ER /PR+, HER2+,
7/29/05: Partial Mastectomy
dx 8/15/05: Papillary Thyroid Cancer
9/15/05: Total Thyroidectomy
A/C X 4 DD, 11 weekly Taxol + Herceptin, + 9 mos Herceptin Alone, 36x Rads, Lupron, Aromasin
7/29/07: 2 years NED :)
8/6/07 Oopherectomy (Lupron no more! :-)
Aromasin & Estring plus Synthroid and supplements
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Old 01-15-2008, 06:30 AM   #16
tousled1
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Flori,

You are so fortunate to have such a loving daughter. Your post brought tears to my eyes. You have done an amazing job raising your daughter. I often wonder what my daughters think - but they won't say.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 01-15-2008, 06:41 AM   #17
belle
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Kate,

I'm pretty sure your daughters think and feel exactly what Flori's daughter wrote and repeats them thousand times a day. Powerful words, one can see how strongly she wants her mom's recovery. It should be a good encouragement and a strong incentive for moms to keep fighting.
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Old 01-15-2008, 08:50 AM   #18
PinkGirl
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Hi Flori
Thank you for sharing this personal moment. It is so sad that your child has had to mature to the point of understanding stage 4/4. She "gets it" and she is a kid. I know that you are very proud of her compassion and sensitivity.

You have each other - she can drag you back from the cliff, and you can soften her brick wall. She ended her poem with the crux of the situation - never give up, never stop fighting.

You are blessed to have each other.
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
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Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



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Old 01-15-2008, 02:52 PM   #19
Joy
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count me in...

among the weepers. How powerful, beautiful and , yes, sad. You are a fighter, Flori, and she knows it and just think of what you have imparted to her for the rest of her life. Talk about a power, which is so importatn for our young gals (I have 2 daughters). I just wish it came to us some other way. And I really want to copy cat her tattoo-is that wrong?

Keep us posted on how you are doing and tell your daughter that we love her, just like we love her mother!
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dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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Old 01-16-2008, 07:21 PM   #20
Bill
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Still thinking of you,, Flori,, and your amazing daughter. Warm thoughts and prayers to you. Love,, Bill
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