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Old 01-12-2011, 05:02 AM   #1
hezzy
Senior Member
 
Join Date: Aug 2009
Location: Paxton, Ill
Posts: 32
Xeloda and Tykerb along with/Dex

My schedule is upside down and I'm no longer sure what to do to find something to work. Any advice would be great.
Im taking steriods four times a day and suppose to take them six hours apart. On top of taking Xeloda twice a day 10 12 hours apart, than Tykerb whenever. I talked to the ONC and she said I could put the time closer together so I get sleep, but when I do that I'm only getting a few hours of sleep a night.
Im taking amoxicillen just because on top of all of this I have an ear infection, and today Im feeling like my throat is ready to explode it just feels swollen.

They told me they wouldn't know if the DEX is helping push fluid away from the brain tumor so the other two drugs will help me or not for another month if that. I have to admit I'm worried I never even heard of it. I'm just lost and can't even think of what to do .... or if I'm diong anything worth it.
__________________
-July 07 - DX w/ICD stage 3a, est+, her2+
- started a/c four doses
-Aug 07 -DX w/ bone mets to shoulder and rib 10 days rads
- 6 mths taxol
-6 mths abrexene
- Nov 07 started herceptin still on
- was on tamoxifin wasn't working, gettin something new soon


Aug 09
- brain mets
- 3 tumors
- highest being 4cm large
- others under 2cm
- WBR rads in morning, than afternoon hitting each one direct
- rads to vertebrate

- Sept 09
- getting ready to start Xeloda
- continue herceptin
- just finished w/ rads on brain mets, and vertebrate

(think im doing this right now)
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