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Anyone with brain met/necrosis surgically removed
I have had whole brain rads in 2007 and following 2 gama to a new spot last year. (9/29/09) Scan showed increased fluid, which also explained the headaches. My Barrows neuro presented the case to the "board" and all the radio specialist 3 different dr concurred that the "spot" was latent radiation necrosis causing the fluid.
So they put me on decadron, two days later I am a full blown Diabetic(was borderline before, just watched the junk food), with all the side effects, loss of muscle and fat trying to "eat right". Couldn't even get off the toilet. Tapered down by 4 mg tid to 4mg bid increased metformin, I feel a little better. So hear I guess is the real question, my lesion is very low right side , supposedly "not in very deep or important". MD offered before to surgically remove it. I was wondering who has had one removed, and how extensive was procedure. Right know I am trying to balance quality of life, versus keeping on the steroids and killing off my kidneys and other areas in the process!!!!!
Thanks Darita
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dx 1/06 IDC 2cm 38 at dx
2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis
3/06-9/06Taxol/Carbo/zometa/Herceptin
3/07 6 brain mets WBR down to c-2
4/07 osteonecrosis jaw
1/08 mri new 9mm lesion right lower side
2/08 gamma knife 1 lesion 11/08 regamma
10/09 latent rad necrosis to brain met,
1/20/10 crani: lesion necrosis w active cells continue her add tykerb
1/11 NED just Ingrown toenail! YEAH GOD
8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans
oct -march 11 new neuro deficits lower legs
3/12 2 spinal metsTykerb, Herceptin
04/12 4050cGY rads T 2-4 & T7-9
5/12 Brain,cervical lumbar clear/thoracic slight decrease
10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly.
9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec.
last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative.
10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney!
12/13 Mri brain no new lesions, cervical and lumbar arthritis.
Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain
1/29/14 HIHO HIHO its off to Neuro surgery I go
Life is Good when you wake up in the morning and take a breath and know that God has given me another day.
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