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07-21-2008, 06:05 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Joe or ANYONE...
In October Lifetime TV will be broadcasting "Living Proof" about Dr. Slamon. I would LOVE to see it, but I have VERY basic cable (14 channels to be exact) and I don't want to upgrade to watch just one movie (I have Tony weened to PBS and nothing else...we cut back a couple of years ago in exchange for the summer pool membership...the difference just about covers it). Is there any way I can "buy" the movie once it premiers and if so, how? Thank you.
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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07-21-2008, 06:44 PM
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#2
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Rhonda
I am sure I can tape it for you...I'll ask my husband how to do it....either VHS or CD....I want to see it too....I may need some reminders....chemo queen that I am, but I would be happy to tape it and send it to you!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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07-21-2008, 07:23 PM
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#3
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Sheila,
I do not want to sound abusive, but do you think that you could make an extra copy for me too? There is no way I would be able to see it on my tv here in Mexico, and I surely do not want to miss it. Please do not feel obliged to it. If you know of any other way to get it would you please advise me? Thanks soooo much.
Paty
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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07-21-2008, 07:46 PM
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#4
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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There are probably more people on this forum like to get a CD copy. I wonder if we could talk to the TV network and negotiate for some free copies (or at a nominal cost)for this forum and/or members.
As a matter of fact, I would bet if we ask the TV network individually, they'll probably send us a CD.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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07-21-2008, 08:45 PM
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#5
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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I also would love to see this movie, but I don't know if it will be shown in Canada.
Our cable networks are somewhat different, I don't think we have Lifetime, but we may have something similar. I will email my cable provider (Rogers) and ask them.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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07-21-2008, 09:33 PM
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#6
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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Please send reminders of when it gets closer, I will surely forget by then and I dont want to miss it..sherryg683
__________________
Sherry
Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year
Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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07-22-2008, 04:51 AM
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#7
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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I will check with my husband tonight, he worked late last night...if I can make one copy, I can burn as many as needed, I can even get family members to burn copies....I'll be in the movie business....so if we can't get them from the producers, I'll make anyone a copy and mail it to them. Just let me know.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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07-22-2008, 06:16 AM
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#8
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Senior Member
Join Date: Feb 2005
Location: Wisconsin
Posts: 159
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Why doesn't someone post it on this board and then people can watch it here? Joe--is that possible?
__________________
BLOG:
http://valleygirlvnp.blogspot.com/
Dx 11/04, Age 42, ER-/PR-, HER2+++
3 months weekly Herceptin, Taxol. Carboplatin
Significant tumor shrinkage
Mastectomy 3/05; Stage 3b, 9 cm tumor, 5/8+ nodes
3 more months weekly Herceptin, Taxol. Carboplatin
7/05 30 radiation treatments, IMRT planning approach
Started 1 year of Herceptin 9/05
9/06 Began quarterly triple doses Herceptin. Brain & breast MRIs semi annually.
* * * * * * * * * * * * * * * * * * * * * * * * * * *
6/08 Right breast, intraductal carcinoma, high nuclear grade associated with comedo necrosis; extensive diffusely involved the entire biopy specimen. ER+, PR-, Her2 unknown at this point, 07/08 mastectomy.
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07-22-2008, 09:55 AM
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#9
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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I received this email several weeks ago and thought that I may share it with you all. I deleted the name but hope that she will step forward for her well deserved accolades:
"Hope this note finds you happy & well. I have been away from the site for far too long - life has been very busy with a multitude of blessings after finding my way back to NED, finishing chemo again (up to #91 this time) and marking my 6 year Cancerversary on May 17th.
I've also recently opened a Pilates studio here in Atlanta and am so thrilled to feel confident about pursuing goals beyond my next q12week PET Scan!
I know I share in my absolute heart break w/you and the rest of the Her2 family over Lolly's passing.
I logged off immediately after reading the news because my heart couldn't stand the shock & sadness.
However, I'd been planning to share some happy news with you, but was waiting for the right opportunity. It seems that time is now...
I doubt I've mentioned before that along with teaching Pilates, I'm also an actor.
I recently had the opportunity to play a very small role ("Runner #3"  ) in the Lifetime film, "Living Proof" starring Harry Connick, Jr. as Dr. Denny Slamon.
My scene was very simple, a re-enactment of the Revlon Walk in Los Angeles in 1998 & as "Runner #3"
I was to run up to "Dr. Slamon" (HCjr) & said "Thank You..."
To describe the day as I have above completely over simplifies the experience! Word spread on set that I was, not only a BC Survivor, but a 6 year,Stage IV, 91 rounds of chemo, liver-resection Her2+ Survivor (!!!) . I became a celebrity-for-the-day in my own right!
I mention this not to boast but to share with you that everyone from the crew-wardrobe/hair/makeup artists,etc to the actors including Mr.Harry Connick Jr, the director Dan Ireland, producers, Lifetime execs and the amazingly kind & compassionate screenwriter, Vivenne Radkoff, were inspired with re-newed passion for the project when a living, breathing, thriving survivor & beneficiary of Dr. Slamon's incredible commitment to his research & discovery walked onto their set as true living proof of the story they had all been working so hard to tell.
I thanked them profusely for bringing Dr. Slamon's story to television & sharing w/the world what such commitmment & a little/lot of money can do to profoundly change the lives of women walking in the
shadow of a serious disease.
The Director, Dan Ireland, took me aside & told me to throw out my scripted lines & improvise; say whatever it was I wanted to say to "Dr. Slamon"
When the cameras started rolling & it was my moment to approach "Dr. Slamon", I simply said,
"Thank you, Dr. Slamon...for fighting for us."
It is exactly what I would have said to Dr. Slamon & hopefully will have the opportunity to do one day!
I felt like I was speaking for ALL of us.
For me, I could barely keep from crying all day! It was a surreal experience to "participate" in a day that celebrated the actual events that occurred in Dr. Slamon's life & work that would eventually lead to a drug called Herceptin being available to me when I would be diagnosed at 33years old with Stage IV disease, only 4 years later.
I am honored & blessed & infinitely grateful for the experience & opportunity.
With all that said, it is my plan to donate my "day rate" (salary for the day) to the Her2Support group,
in celebration of Dr. Slamon (ofcourse) , the work that you both do for all us, and now, in honor & memory of sweet Lolly.
When my agent heard that this was my intention, they offered to donate equal the amount of my day rate
to Her2Support on my behalf!
If I recall correctly, my I the rate for this project was SAG scale, ~$750 for the day.
(In fact, ALL the actors, including Mr. Harry Connick, Jr agreed to work under a "Favored Nations" clause & be paid SAG scale for their work!)
So, I just wanted to share this with you & I so look forward to offering you this small gift - small in comparison to the multitude of gifts of wisdom & courage & friendship & camaraderie & ultimate kindness you have shared with me through your efforts & all of my Her2Support family.
I would like to post something on the message board in the upcoming days, but thought I'd ask you for some direction. I hope I won't be perceived as show-boating, but rather, in a time when we've seen too much loss & are feeling scared & demoralized, a wave of light, love & celebration.
Thanks for allowing me to share this with you & will be in touch very soon,"
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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07-22-2008, 11:02 AM
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#10
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Senior Member
Join Date: Aug 2007
Location: Stayton, Oregon
Posts: 69
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Tears in my eyes again
Practically, every post brings tears to my eyes these days. What a great story. I hope she does step forward for her accolades. I have "the dish" so will anxiously await this movie. I am sure one of our sisters or brothers can make copies for those who won't be able to see it. I can hardly wait to see the man that has saved our lives. All my best, NanaKaren
__________________
Dx 7-21-05
1.7 cm invasive ductal carcinoma
Her2 +3 strongly positive
micromet in sentinel node
Sept.05 Lt.lumpectomy/bilat.reduction
Oct.05 4 rounds of AC/12 rounds of Taxol with Herceptin
Radiation 5 weeks
Herceptin only until Jan.07
Started Femara-stopped
Started Aromisin-stopped
Currently on Arimidex with a great deal of pain
Stopped Arimidex
Taking Tamoxifen
Karen
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07-22-2008, 01:26 PM
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#11
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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I have goosebumps from reading this story!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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07-22-2008, 02:44 PM
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#12
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Senior Member
Join Date: Dec 2007
Location: Avilla, Indiana
Posts: 261
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Thank you, Joe, for sharing the email. I too hope this woman steps forward.
We do not have cable or satellite TV either. I truly hope this movie is available for retail sales shortly after it is aired. I plan to invite myself to watch the movie at someone's house-even though my emotions will be all over the map.
I am wondering if we Her2 survivors could band together with a few signatures and request to buy copies of this movie.
Sincerely,
Dana
__________________
-Dana-
]
Diagnosed - Nov. 2, 2007 at 45
Lumpectomy - Nov. 13, 2007
Tumor 1.2 cm
Stage 1 Grade 3
ER/PR - Her2 +++ (3.8)
Taxotere/Carboplatin/Herceptin- 6 rounds
Neulasta
Radiation 33 treatments - will be done 6/6/08
Herceptin through 12/08
12/07 MUGA 61%, 4/08 MUGA 60%, 7/08 MUGA 64%
three wonderful daughters, a terrific husband,
Life is Good
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07-22-2008, 02:49 PM
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#13
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Wow
What an experience! Thanks for posting this Joe and I hope whoever she is does step forward.
I'd love to see it but even a copied cd won't work here in Ireland so I'll rely on you ladies/gents giving me a run down of it if you'd be so kind.
Is it all possible to see this on the internet would anyone know?? (sorry I'm not altogether computer savvy) 
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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07-22-2008, 02:54 PM
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#14
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Senior Member
Join Date: Feb 2005
Location: Wisconsin
Posts: 159
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I asked that before as well, if it could be put on this site for our members to view as a webcast. Lifetime would probably need to give its permission.
__________________
BLOG:
http://valleygirlvnp.blogspot.com/
Dx 11/04, Age 42, ER-/PR-, HER2+++
3 months weekly Herceptin, Taxol. Carboplatin
Significant tumor shrinkage
Mastectomy 3/05; Stage 3b, 9 cm tumor, 5/8+ nodes
3 more months weekly Herceptin, Taxol. Carboplatin
7/05 30 radiation treatments, IMRT planning approach
Started 1 year of Herceptin 9/05
9/06 Began quarterly triple doses Herceptin. Brain & breast MRIs semi annually.
* * * * * * * * * * * * * * * * * * * * * * * * * * *
6/08 Right breast, intraductal carcinoma, high nuclear grade associated with comedo necrosis; extensive diffusely involved the entire biopy specimen. ER+, PR-, Her2 unknown at this point, 07/08 mastectomy.
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07-26-2008, 02:51 PM
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#15
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Senior Member
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
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i don't have cable or satellite.cannot afford it. wish i could see it too.
can we write to the producers and ask to post here for cancer girls!
maria
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07-26-2008, 09:19 PM
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#16
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Joe, thank you for sharing the email with us. It was very touching. Does anyone have any idea when in OCT this will be airing?
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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