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Old 11-26-2007, 06:23 AM   #1
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Will I be PORTable ???

A question for many of you who have a port...I met with the surgeon last week as I am scheduled to get a port placed this Thursday...my brother from California was home, brought 2 of the latest and greatest NEW ports that they use at Kaiser and USC where he works as a cardiac interventologist....In Chicago where I go for treatment, they use the BARD ports...but the one my brother brought me is not available here yet..it is a BARD POWER PORT...able to take high pressure injections from the new CT scanners and MRI's...these have only been out a month...and only in limited areas...my hospital does not have them yet, although they are scheduled to get them...they use the same huber needles for access, but a different needle for MRI's and Scans. The surgeon said he would place the new model in me since it is sealed in a sterile package as it came from the distributor...if everything goes OK, I will be the first here to get this new style port. My question is, I am scheduled to get the port placed first thing Thursday, then go for my triple treatment (longgggg day!). With Christmas things to do, & me going to San Antonio in 2 1/2 weeks, am I going to have a problem with alot of soreness? I truly hope not, as my veins may not last another treatment....4 years of IV's has done me in! Thanks for anyones experience with this...just want to be prepared!
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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