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02-08-2015, 08:25 AM
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#1
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Member
Join Date: Jul 2012
Posts: 10
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Considering second mastectomy?
I have been considering having a mastectomy on my left breast for a while, just paranoid I guess. But for the last 2 days I have had redness on my nipple along with pain and a very clear lump with it, it just appeared out of nowhere. I will see the doctor tomorrow. Freaking out!. Now more than ever I think I should have it removed. Any thoughts?
__________________
Maria
IDC, 2/11, HER2+, ER PR NEG, RIGHT BR MASTEC,GRADE 3, ACTH, 2 OUT OF 11 NODES +
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02-08-2015, 09:35 AM
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#2
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Senior Member
Join Date: Oct 2014
Posts: 293
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Re: Considering second mastectomy?
Hi Fran,
I understand why you would be freaked out but talk to your doctor and see what they say tomorrow. Having said that, when I was diagnosed I only had the cancer in one breast and it was so small that it couldn't be felt, even when they knew where it was and I had a double mastectomy. I have no regrets about my decision but I also know it didn't come with a guarantee. If you think that's what you want to do, discuss the pros and cons with your doctor tomorrow to come up with the best plan for your specific situation. Good luck and let us know how things go. Hugs
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02-08-2015, 11:21 AM
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#3
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Member
Join Date: Jul 2012
Posts: 10
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Re: Considering second mastectomy?
Hy Lucy. Thanks for the tip. I will ask the Oncologist about pros and cons after they find out what I have in my left breast. Thanks sincerely.
Maria
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Maria
IDC, 2/11, HER2+, ER PR NEG, RIGHT BR MASTEC,GRADE 3, ACTH, 2 OUT OF 11 NODES +
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02-08-2015, 04:22 PM
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#4
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Senior Member
Join Date: Mar 2014
Location: Glendale, AZ
Posts: 210
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Re: Considering second mastectomy?
I had a double mastectomy and had bc only on one side, no regrets at all! Good luck with the biopsy....I hope you get good results 
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Kathy
38 years old!
January 17th 2014-mammo, ultrasound, biopsy
January 20th 2014- diagnosed, ER/PR+, Her2+++, Stage 2A
January 21st 2014-MRI, right breast only plus lymph nodes
January 23rd 2014- Pet scan-2 cm tumor, 3 lymph nodes
February 4th 2014-port insertion
February 12th 2014-first chemo treatment(TCHP x6 cycles)
May 28th 2014-LAST chemo treatment!!
July 10th 2014-double mastectomy
July 29th 2014-start radiation(30)
Sept. 11th 2014last radiation treatment!!!
November 12 2014-started Tamoxifen
January 20 2015-reconstruction begins, lat flap
February 4 2015-last Herceptin treatment!!
April 24, 2015- pet scan-NED!!
June 3 2015- exchange surgery, port removed!!
September 8 2015-hysterectomy/oophorectomy
September 15 2015-Revision of lat flap reconstruction
December 23 2015-nipple reconstruction
May 9th 2016-Mets to pituitary gland, liver and C7 vertebrae
May 10th-port put back in:(
May 17th- biopsy of mass on back
May 19th-started Herceptin/Perjeta
May 20th-5 treatments Cyberknife to pituitary gland tumor
June 9th-Started THP (will have 6 cycles)
August 17th-MRI of brain, significant reduction in tumor
😃, repeat MRI in 3 months. Received first Zometa
infusion.
June 24th 2019- Thoracic spine Mets, leptomeningeal Mets , 10 radiation treatments
Aug 1st- Ommaya Reservoir implanted
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02-08-2015, 04:25 PM
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#5
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Senior Member
Join Date: Feb 2006
Posts: 437
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Re: Considering second mastectomy?
hi fran. i actually pushed hard for a propry left mastectomy. my breasts were always dense and my stage!111C right bc literally popped out of no where.
the docs finally agreed and my report came back loaded with atypia and hyperplasia.
never regretted my decision to get rid of both boobbies
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Linda
Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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02-08-2015, 04:30 PM
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#6
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Senior Member
Join Date: Dec 2013
Posts: 1,045
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Re: Considering second mastectomy?
See my signature ....
Talk to your doc ... then follow your gut!! Good luck and please keep us posted, keeping my fingers crossed for you!
Carol Ann
__________________
July 24, 2013: "Infected" Right Nipple and benign cyst removed, pathology report revealed Paget's, DCIS, and ILC 1.25 cm, ER+/Pro+/HER2 equivocal, Grade 2 under benign cyst, previous diagnostic mammo/ultrasound said I was perfectly healthy in both breasts.
Aug 18, 2013: MRI report says Left breast is perfectly healthy "consistent with previous studies".
Sept 2013: I insist on a bilateral mastectomy anyway. Too nervewracking to let left breast remain with higher risk after 3 cancers in right, nipple in right is already gone anyhow.
Sept 18, 2013: Bilateral mastectomy, 11 right nodes removed, ALL negative BUT -- ER+/PRO+/HER2+ tumor, 1.0 cm, Grade 2 found in a piece of "grossly unremarkable" breast tissue from prophylactic mastectomy of left breast, no nodes removed.
Oct 25, 2013: 13 left side nodes removed, ALL negative, Stage 1 across the board, NO RADS needed, YAAAAY! Port also installed.
Nov 25, 2013 Begin 6 rounds TCH.
March 10, 2014 Just finished 6th and LAST Chemo today, YAAAAAY!
March 24, 2014 Echocardiogram to make sure I'm still good for Herceptin every 3 weeks.
March 31, 2014 Echo results NORMAL, first Herceptin all by itself. Now if only my eyes would stop streaming from the Taxotere ... :)
April 21, 2014 Started Arimidex and therapy for "mild" lymphedema in left hand and arm
May 2014 Therapy completed, I have sleeves and gloves for both arms, a Flexi touch lymph pump to hook up to for an hour every day, and I've become an arm bandaging expert. :)
June 2014 Begin Fosamax to prevent osteoporosis; bone scan revealed osteopenia
Nov 17, 2014 FINAL Herceptin!
Dec 4, 2014 My right thigh muscle has been extra achy for days ... I discover a blister rash cluster on the side of my right thigh while taking a shower. Port appointment cancelled until Dec 17, my doc is working me in tomorrow afternoon to see me and the rash. My muscle at least feels less achy.
Dec 5, 2014 Yep, I have shingles. Boo! I start acyclovir and also have a prescription for a painkiller just in case for over the weekend.
Dec 17, 2014 Port is OUT!
January 2016 Shingles again and this time it started where my left breast (where the hidden HER2+++ tumor was!) used to be. My onc nurse got me a same day appointment to see my doc when I called and told her I had a rash on the site. The antiviral meds are working once again, though, so that is good news. :)
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