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Anyone else feel HORRIBLE on Herceptin?
I am so frustrated. I get my 20th weekly Herceptin tomorrow and am miserable. I ache and hurt everywhere, am nauseous, have diarrhea. I can honestly say that I feel worse than I did on Taxol. We have tried everything. We've tried mixing it with saline, tried the 3 week dose (that was the worst), tried the weekly dose (so far the best, but that's not saying much). I certainly would never stop taking it- probably not even if it was making my leg rot off, because it could very well be what saves my life. I remind myself how lucky I am to be getting it and try to be positive, but I really am just miserable and can't imagine another 32 weeks of it. To make things worse, when I hurt my mind wanders and I am really fighting some kind of depression/paranoia issues. Hard to be happy and optimistic when I am hurting. Does anyone else have this much trouble with Herceptin? I feel like some oddball case......
Kelly
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dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED
"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."
-Eleanor Roosevelt
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