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Old 08-21-2009, 07:25 PM   #1
caya
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Happy Birthday Rinaina!!

Sending you big birthday hugs and best wishes!!

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 08-21-2009, 07:40 PM   #2
Mary Anne in TX
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Re: Happy Birthday Rinaina!!

Hope you have a terrific birthday!!!! ma
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Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 08-21-2009, 07:42 PM   #3
Jackie07
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Re: Happy Birthday Rinaina!!

Happy Birthday!
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NICU 4.4 LB
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Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
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IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
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1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
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Old 08-21-2009, 07:48 PM   #4
vickie h
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Re: Happy Birthday Rinaina!!

Happy Birthday! Hope your day was full of joy with a little cake thrown into the mix and a few presents, and some great memories, and......
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Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.


Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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Old 08-21-2009, 09:57 PM   #5
rinaina
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Re: Happy Birthday Rinaina!!

Thank you my her2 sisters for all your bday wishes! You made my day! This was definitely a memorable bday as we are now able to share the very exciting news...my daughter is expecting my very first grandchild! We weren't able to share this wonderful news until she reached the 12 week mark and today on my bday she reached the end of her 3 tri-mester, so we are now shouting it from the rooftops for all to hear the fabulous news. Thanks again for thinking of me on my bday.
Hugs and Kisses
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 08-21-2009, 10:01 PM   #6
ElaineM
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Wink Re: Happy Birthday Rinaina!!

Happy, Happy Birthday !!!!!!!! Alot more of them !!!!!
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12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
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14 Year Survivor
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"You never know how strong you are until being strong is the only choice you have." author unknown
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Old 08-21-2009, 10:34 PM   #7
rinaina
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Re: Happy Birthday Rinaina!!

Thanks Elaine for your bday wishes and I definitely look forward to many many more.
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 08-22-2009, 08:48 AM   #8
Mary Jo
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Re: Happy Birthday Rinaina!!

Happy Birthday Rina.......and you have so much to be thankful for..... Good health....loved ones AND a new grandbaby! We are having a new grandbaby too. Our youngest son and his wife. Me and my other daughter in law are having her baby shower tomorrow. So exciting, isn't it. I just found out too that they are naming the little girl (IF it really is a girl) Lauren Mary (after grandma) - awwwwwwww - Life is good, isn't it!!!!

Love to you and my prayers for many, many years of good health and happiness.

Mary Jo

P.S. As you see from my avatar I am adding to my line-up of adorable, sweet grandchildren.
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Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 08-22-2009, 08:57 AM   #9
suzan w
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Re: Happy Birthday Rinaina!!

GREAT BIG HAPPY BIRTHDAY HUG FOR YOU!!!
xo Suzan
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age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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Old 08-22-2009, 11:55 AM   #10
rinaina
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Re: Happy Birthday Rinaina!!

Thanks Mary Jo for the birthday wishes. You must be experiencing the same excitement and joy that I am at the prospect of grandchild on the way. Have a wonderful baby shower and enjoy this wonderful time in our lives. I hear grandchildren are the greatest and I look so very forward to it. My daughter just finished her 1st trimester so we have a way to go yet. All the best to you and your family.
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 08-22-2009, 11:56 AM   #11
rinaina
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Re: Happy Birthday Rinaina!!

Thanks Suzan for your birthday wish. Hope this finds you doing well.
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 08-22-2009, 12:36 PM   #12
Midwest Alice
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Re: Happy Birthday Rinaina!!

happy happy birthday to you!!! singing
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Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!

1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."

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Old 08-22-2009, 09:09 PM   #13
Paty
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Re: Happy Birthday Rinaina!!

Rina,

Hope you have had a Great B-Day. Remember each day is a day to celebrate. My best wishes for many Birthdays more to enjoy!!!

Paty
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Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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Old 08-23-2009, 01:28 AM   #14
Chelee
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Re: Happy Birthday Rinaina!!

Hi Rina, I'm late...but want to wish you a belated Happy Birthday. I hope you had a terrific day.

And congratulations on your new grandchild thats on its way. I know how exciting that is. You mentioned how you were shouting the news from the rooftops...now I know what the noise was. You sure have a pair on lungs on you...it almost blew my eardrums out! LOL

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 08-23-2009, 06:32 AM   #15
rinaina
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Re: Happy Birthday Rinaina!!

Thank you all for your kind birthday wishes. All of you have made me feel so special and loved. Chelee, sorry about your eardrums but I just couldn't contain myself! Paty, you sure got that right...I definitely cherish every single day and live them to the fullest. Midwest Alice, love your singing birthday wish too. Thanks for making my day.
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 08-23-2009, 07:58 AM   #16
Bill
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Re: Happy Birthday Rinaina!!

Happy Birthday, Rina!!!!!!!!!! Hope you had a good one!
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Old 08-23-2009, 11:53 AM   #17
rinaina
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Re: Happy Birthday Rinaina!!

Bill, one of the best b-days ever. My daughter announced that she is expecting her first child and my first grandchild. This was the best present anyone could ever give me. Thanks for you b-day wishes.
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 08-23-2009, 01:18 PM   #18
Bill
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Re: Happy Birthday Rinaina!!

Wow, Rina, that does sound like an awesome birthday! If you want me to help name that baby, you just let me know. Congratulations to all of you.
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Old 08-23-2009, 01:28 PM   #19
notamrnpsn
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Talking Re: Happy Birthday Rinaina!!

Happy birthday Rina. If you think Grandchildren are great, just wait for the Great grands. I have two of them on the way. Anyway hope you had a great day, Jeanette
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Old 08-23-2009, 06:29 PM   #20
rinaina
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Re: Happy Birthday Rinaina!!

Bill, without realizing it, you might have helped me with a name already. My daughter plans on naming her baby after my late mother and her name was Nanette. She will definitely use her hebrew name if it is a girl. If it is a girl, then she may also name her using the initial "N". Nicola is a beautiful name and one I hadn't thought of right away. The other names starting with an "N" were pretty obvious.
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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