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Old 06-25-2009, 01:04 PM   #1
Jackie07
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Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,802
DIGNITY Study

A lady from the DIGNITY study had contacted me. Below is our e-mail exchange. If you are interested in participating in the study, please contact her directly (see end of e-mails for her contact info.)

Hi Jackie,

Nice to hear from you! Thank you for getting back to me so quickly. Will you be having another MUGA in the near future?

About the HER2 Support group, yes that would be wonderful if you can help 'spread the word' and create awareness about this new trial. Any efforts you can provide are greatly appreciated. In the meantime, I will try to reach out to the webmaster as you've suggested.

Please let me know how I can be of any help to you.

All the best,
Jeannette
----- Original Message -----
From: Mrs. Jackie Swenson
To: Jeannette Tighe
Sent: Thursday, June 25, 2009 11:53 AM
Subject: Re: Following up with you - DIGNITY Study for BC with recurrence to the chest wall


Hi Jeannette,

Thank you for your follow-up.

My MUGA score went down from the upper 50's to 51 after just 6 rounds (3weeks x 6) of TCH and 4 weekly Herceptin. It further went down to 48 after 2 months break.
I have not had a MUGA for over a year. But judging the way my ankles are swelling up, I am pretty sure the heart muscle function has not improved. I am not short of
breath or anything like that, but I did cut back much of my physical activities simply because I don't feel like doing anything.

I appreciate your effort in finding cures for this horrandous disease. I belong to the Her-2 support group - a very active Her-2 breast cancer support group. Would you
like me to forward your information there? The webmaster's name is Joe. I think you can either contact him or register yourself and post the research project.
The address is www.her2support.org

Thanks again for writing.

Jackie07


From: Jeannette Tighe <jtighe@medadvisory.net>
To: mtime@sbcglobal.net
Sent: Wednesday, June 24, 2009 10:42:47 PM
Subject: Following up with you - DIGNITY Study for BC with recurrence to the chest wall

Hello Jackie,

I hope this email finds you well. I wanted to reach out to you to let you know that the study coordinator from the FL Cancer Institute has been trying to get in touch with you about this trial. I remember you saying that your scores were improving over the last year and so I am wondering if you would like me to tell the study coordinator that you are not interested at this time.

If you are still interested, please let me know a convenient date/time that she may give you a call to answer any questions you may have.

Look forward to hearing from you.

All the best,
Jeannette


Jeannette Tighe, Principal
MedAdvisoryllc www.medadvisory.net
O|F: 508.297.2439 | M: 508.498.8465




__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundless(granules?) nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 09-03-2009 at 06:47 PM..
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Old 08-05-2009, 01:35 PM   #2
Jackie07
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Join Date: Jan 2008
Location: "Love never fails."
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Re: DIGNITY Study

Recurrent Chest Wall Cancer after Mastectomy -
New Breast Cancer Clinical Trial



If you are experiencing breast cancer with recurrence to the chest wall (RCW) or know someone who is, you may be interested in this clinical trial, the DIGNITY Study. Researchers are conducting the trial to determine the effectiveness of a novel investigational drug used in combination with heat therapy for the treatment of recurrent chest wall cancer (RCW).

To participate in this trial, patients will:
- Have a documented recurrence of breast cancer on the chest wall (or its overlying skin)
- And have had: a mastectomy, radiation, and chemotherapy

CLICK HERE TO FIND OUT IF YOU ARE ELIBIBLE TO PARTICIPATE: http://www.surveymonkey.com/s.aspx?sm=ZwRugqNJUfmD4lBtU0bsYQ_3d_3d

SIGN UP HERE TO RECEIVE EMAIL UPDATES ABOUT THIS TRIAL:
http://survey.constantcontact.com/survey/a07e2jzbhkofxyrqwh8/start
Email updates will include:
A description of the investigational therapy and study requirements,
Eligibility criteria,
US trial site locations,
An opportunity to:
    • request brochures,
    • talk to someone directly about your situation,
    • share information with friends, family, your support network and your physician,
    • ask questions about this trial.
Questions about this message? Please contact:
Jeannette Tighe at MedAdvisory
Phone: 508-297-2439
Email: jtighe@medadvisory.net


Kind regards,

Jeannette Tighe
Principal, MedAdvisory LLC
www.medadvisory.net
jtighe@medadvisory.net
508-297-2439


Forward email
This email was sent to mtime@sbcglobal.net by jtighe@medadvisory.net.
Update Profile/Email Address | Instant removal with SafeUnsubscribe | Privacy Policy.
Email Marketing by
MedAdvisory LLC | 7 Glenn Road | North Easton | MA | 02356
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundless(granules?) nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
Jackie07 is offline   Reply With Quote
Old 09-03-2009, 06:43 PM   #3
Jackie07
Senior Member
 
Jackie07's Avatar
 
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,802
Re: DIGNITY Study

If you are experiencing breast cancer with recurrence to the chest wall (RCW) or know someone who is, you may be interested in this clinical trial, the DIGNITY Study. Researchers are conducting the trial to determine the effectiveness of a novel investigational drug used in combination with heat therapy for the treatment of recurrent chest wall cancer (RCW).

To participate in this trial, patients will:
- Have a documented recurrence of breast cancer on the chest wall (or its overlying skin)
- And have had: a mastectomy, radiation, and chemotherapy

CLICK HERE TO FIND OUT IF YOU ARE ELIGIBLE TO PARTICIPATE: http://www.surveymonkey.com/s.aspx?sm=ZwRugqNJUfmD4lBtU0bsYQ_3d_3d

SIGN UP HERE TO RECEIVE EMAIL UPDATES ABOUT THIS TRIAL:
http://survey.constantcontact.com/survey/a07e2jzbhkofxyrqwh8/start
Email updates will include:
A description of the investigational therapy and study requirements,
Eligibility criteria,
US trial site locations,
An opportunity to:
    • request brochures,
    • talk to someone directly about your situation,
    • share information with friends, family, your support network and your physician,
    • ask questions about this trial.
Questions about this message? Please contact:
Jeannette Tighe at MedAdvisory
Phone: 508-297-2439
Email: jtighe@medadvisory.net


Kind regards,

Jeannette Tighe
Principal, MedAdvisory LLC
www.medadvisory.net
jtighe@medadvisory.net
508-297-2439
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundless(granules?) nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
Jackie07 is offline   Reply With Quote
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