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Scanxiety.....
OK, so I did this to myself...but I'd like some good vibes for this week...
The good news is I'm "graduating" from the DM1 trial, having completed a year of treatment. This has me at or nearly NED as far as I know.
Because now they roll me into the follow up trial, I have to have new scans (PET/CT and Echo) and since it had been a while, I decided I wanted an MRI of my head as well.
Actually I've been obsessing over the MRI for a couple of months (after San Antonio) - and had been completely symptom free.
My doctor is in the "low threshold for symptoms" camp for ordering MRI, so I started reporting the normal herceptin head symptoms I always have. Then I threw in a couple of headaches (I think they were tension headaches) as well until the NP told me today "well you just bought yourself an MRI". Which is now scheduled for Friday.
And now I'm totally freaking out over it! Is this like when you call in sick when you're not, and then you get sick? (That happened to my mom once).
So I'd appreciate any good vibes, prayers, wishes for nothing in my head. As well as a strong heart and clean Pet/CT.
Thanks everyone.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
Last edited by chrisy; 03-02-2009 at 06:24 PM..
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