| Herceptin / Tykerb Share your experiences or ask questions about Herceptin or Tykerb |
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01-22-2009, 08:18 AM
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#1
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Senior Member
Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
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Hercepton x 1week vs 3week and muga score
Hi Everyone,
I really want to bring up my Muga from 48 to at least 50 so I can get excepted in a vaccine study. I have until April.
Does anyone know of any research that shows taking Herceptin every week vs every three weeks makes a difference in heart function?
Also know of any meds that may help( I am on Enalapril 5mg)
Keeping the Faith,
Thanks Alice
__________________
Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!
1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."
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02-08-2009, 08:36 AM
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#2
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Senior Member
Join Date: May 2008
Posts: 28
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Hi Alice,
I'm sorry I didn't see this sooner. I don't have a specific link to 1 week vs every 3 weeks, but that is the reason my onc put me on weekly. His statement was, "Herceptin is less toxic to the heart in weekly doses." I have 2 more doses and my score has fallen 10 points, but he isn't too concerned about it. Mainly because I am so close to being finished!
__________________
Found lump 3/07 at age 44
Surgery: 7/07 rt-MRM, lt-Simple Mast. w/ immediate implants using Alloderm
Tumor: 3 cm., grad III, poorly diff., Stage IIA, IDC, ER/PR-, HER2+++(FISH 3.2) 0/14 nodes
Chemo 8/07-3/08 AC x 6 DD, Taxotere x 12
Herceptin 3/08 weekly for 1 year-done 2/17/09!!!!
Brca 2 +, complete hyst 6/15/2009
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02-08-2009, 08:50 AM
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#3
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Senior Member
Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
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Thanks Terri, I will ask my onc when I go this month. I am going to be on Herceptin for years I think. I join the gym this weekend and am using my CPAP regularly in hopes of making a positive change.
Good luck on your 2 more doses. Your score should pop back up when your done. Keep us informed.
Blessings
__________________
Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!
1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."
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02-08-2009, 12:50 PM
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#4
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Senior Member
Join Date: Sep 2005
Posts: 556
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Alice,
Have tried using coq10 suppliment? It might increase the heart function.
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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