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Old 11-20-2015, 09:11 AM   #1
snolan
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Join Date: May 2011
Location: El Paso ,Tx
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Retesting Brca 1,2

My Dr is retesting my Brac test since the one I had 5 yrs ago is outdated. I was adopted at birth so I do not have any information on my history other than a maternal grandmother who had uterin cancer. The new test is a 17 panel test compared to the 5 panel that I had.

Also, since I was stage I, I reach my 5 yrs on tamoxifen in the spring so she said I do not have to keep taking it for the 10 yrs that they are recommending. If I was stage II or above she would recommend it.
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dx: DCIS 6/8/10, HER 2+ 7/26/10; Stage I Age 41
Double mast w reconstruction
6 TCH w 1yr herceptin
Tamox.
25 radiation tx
Removal of expander on L due to infection. Tried to save it had 3 bouts of antibiotics and went to see plastic surgeon 2-3x wk to get drained. Saving it was my idea not his. But lost it anyway.
Reconstruction set for December 21st,2011
Finished chemo 12/2010
Finished Herceptin 8/26/11
Reconstruction 12/21/11
Expanders exchanged for silicon 3/19/12
Nipple reconstruction 5/18/12
Nipple tatooing- 7/9/12- All done yay!
11/22/12-Went back to get scar tissue stretched to even the outside of breast, didn't work due to it being radiated skin.
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Old 11-22-2015, 04:34 PM   #2
Soccermom
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Location: Bradenton,FL
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Re: Retesting Brca 1,2

Snolan,
I was BRCA tested in 2002 (-), diagnosed with stage 2B BC in 2004,and retested in 2005 With so many other genes to test for I'm exploring testing again now that there are more options.
Anyone with significant family history and or personal history should reconsider seeing a Certified Genetics Counselor and finding the panels that are appropriate for them.

Good luck to both if us!
Warmly, Marcia
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Old 11-24-2015, 01:36 PM   #3
Nurse4u2day
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Re: Retesting Brca 1,2

I had the Brca test done in 2013 all negative. This year though they did another Brca test that also included 47 additional genetic markers all Negative. They weren't sure if my insurance would cover it but they did
__________________
11/13 Dx IDC left breast
11/19/2013 Inflammatory Breast Cancer stage 3c grade 2 Er- Pr- her2+++
Node involvement suspected based on CT
12/13 port placed
12/13 neoadjuvant DD AC xs 4 rounds started
02/14 taxol/herceptin started every week xs 12 rounds
Herceptin for 1 year
Ki67=23%
BRCA1&2 negative
5/06/14 last round taxol/herceptin. Chemo done!!!
5/07/14 clear CT scan
6/11/14 Bilateral Mastectomy Done
6/15/14 8mm tumor post chemo. Removed by bmx
6/15/14 lymph nodes 0/9
6/15/14 officially Cancer Free
7/11/14 emergency surgery to left breast . Wound refused to heal and broke open. New TE placed
7/28/14 emergency medical procedure now to right breast( post op 6 weeks mastectomy ) wound opens.
8/25/14 - 10/07/14 Radiation
11/24/14 CT of Brain clear
01/23/15 One year Herceptin Complete
02/04/15 Diep done
5/01/15 1 year Ct scan- mass in thymus
6/23/15 repeat CT mass in thymus still present
6/30/15 biopsy thymus 7/03/15 mass Benign! Diagnoses Thymic hyperplasia rebound ( chemo at fault, no long term health effects)
7/08/15 phase 2 diep
11/23/15 phase 2b ( reconstructive surgery with lipo)
03/05/18 Vinnie Myer 3 D nipple tattoos complete.
11/19/2018 5 years since Dx of IBC stage 3c remain NED.
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Old 11-24-2015, 01:40 PM   #4
Nurse4u2day
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Location: California
Posts: 424
Re: Retesting Brca 1,2

I was tested in 2013 for the Brca was negative. Then in 2015 I found out about this huge my risk panel that they can test for like 47 genes including the Brca again. It was called my risk. I think there are different versions of it. I wasn't sure my insurance would cover it but they did and all test came back normal.
Also at age 47 made sure to get my colonoscopy and they found one polyp but it was benign.
__________________
11/13 Dx IDC left breast
11/19/2013 Inflammatory Breast Cancer stage 3c grade 2 Er- Pr- her2+++
Node involvement suspected based on CT
12/13 port placed
12/13 neoadjuvant DD AC xs 4 rounds started
02/14 taxol/herceptin started every week xs 12 rounds
Herceptin for 1 year
Ki67=23%
BRCA1&2 negative
5/06/14 last round taxol/herceptin. Chemo done!!!
5/07/14 clear CT scan
6/11/14 Bilateral Mastectomy Done
6/15/14 8mm tumor post chemo. Removed by bmx
6/15/14 lymph nodes 0/9
6/15/14 officially Cancer Free
7/11/14 emergency surgery to left breast . Wound refused to heal and broke open. New TE placed
7/28/14 emergency medical procedure now to right breast( post op 6 weeks mastectomy ) wound opens.
8/25/14 - 10/07/14 Radiation
11/24/14 CT of Brain clear
01/23/15 One year Herceptin Complete
02/04/15 Diep done
5/01/15 1 year Ct scan- mass in thymus
6/23/15 repeat CT mass in thymus still present
6/30/15 biopsy thymus 7/03/15 mass Benign! Diagnoses Thymic hyperplasia rebound ( chemo at fault, no long term health effects)
7/08/15 phase 2 diep
11/23/15 phase 2b ( reconstructive surgery with lipo)
03/05/18 Vinnie Myer 3 D nipple tattoos complete.
11/19/2018 5 years since Dx of IBC stage 3c remain NED.
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Old 11-27-2015, 07:23 AM   #5
caya
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Re: Retesting Brca 1,2

I was also stage 1, and after completing the 5 years total of Tamoxifen and Femara, my oncologist advised me that I did not have to do 10 years.

I had BRCA testing because of my age at diagnosis, (just turned 48) and my Ashkenazi Jewish background. I as negative. No real close family history, my oncologist told me it would have been very unlikely that I had the either of the BRCA 1 or 2 genes. I am 9 years out now, and do not intend to get retested for the BRCA.

all the bes
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
13 Years NED!!
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