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Old 06-11-2009, 09:14 AM   #1
LAURIE
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my relay speech

hi, everyone. I was the speaker at this years relay for life in massillon. If you are curious: here it is. Of course her2 support got a shout out.

This is my 5th relay, my third as a survivor. When thinking and talking with my husband about what I wanted to talk about tonight, he said “talk about the gifts that cancer has given you”. I thought; gifts? Are you kidding me? This was no gift I would ever want under any tree or give to anyone else as a birthday gift. I thought about what he said and realized cancer and more specifically Relay for Life has given me gifts. As a matter of fact it has given me a couple of big gifts. Some I have always had but needed reminded of and one gift that I could only dream of until cancer. Specifically cancer has given me the gifts of COURAGE, HOPE and the gift of LIFE.
I was blessed with a wonderful family. My parents always told me I could do anything. My motto was “never give up.” Confidence was not something I was ever lacking in. When I found a lump in my breast 3 years ago at age 35, I questioned for one of the first times in my life, “was this the thing that was going to make me want to give up?” At times I wanted to give up. I needed something to get me through this. One of things that guided me through was the word COURAGE. Throughout my year and a half of chemo, targeted therapy and radiation, I needed COURAGE. COURAGE is needed by survivors of cancer and all of us here tonight.
I realized as a survivor you need:
COURAGE to face a diagnosis that may be tough and require months or years of treatment.
COURAGE to face your future, with a high risk of reoccurrence.
COURAGE to ask for help when you need it.
COURAGE to look like a cancer patient. Let’s admit it; having cancer is not the extreme makeover we were looking for.
COURAGE to go get those mammograms, blood tests, and scans. What if it is back?
COURAGE to reach out, share your story and help others in the fight.
And yes, it takes a little COURAGE to speak in front of you tonight at Relay for Life.
As a patient, care giver, loved one, friend, and advocate of relay for life you need:
COURAGE to reach out to others. Reach out in any way. Ignoring or shying away hurts worse than saying the wrong thing.
COURAGE to go to the doctor when you know something is wrong.
COURAGE to ask for a donation; we need it help support and win this fight against cancer.
You need COURAGE to do self exams; breast, skin, prostate. It’s okay to be afraid, you now have the gift of COURAGE.
With family and friends like mine I had no choice, I had to find the COURAGE I needed, and continue to need now. If I began to lose it they reminded me of what I have to live for. My husband told me I had a choice. “I could moan and groan, or deal with it and move on”. Well I still moaned and groaned, but I did it with a smile on my face. I was lucky. I had lots of things and people to cheer me up. When my nephew got a tattoo of my initials on his arm I was a little taken back. Not a fan of tattoos, I told him I was okay with it as long as he did not have my birth year and death year tattooed as well. He also got big brownie points for declaring me as his hero on his my space page. My niece Monica dedicated a page about me in her senior scrapbook. Another younger niece Sara wrote to Santa asking for a magic pill that would cure the cancer and make me all better. It was also nice that mom knew how I felt with those hot flashes. She remembered them so well through menopause; she knew just what to do to help me get through them during chemo pause. My four (all older) brothers and sisters were great. My sister Christine is one of the most caring people I know. My friend Connie was pregnant at the time; we shared lots of symptoms: weight gain, swelling, anxiety, and nausea. My friends were great; they always worked at trying to “get my sexy back” by sending me girly gifts. I had every GOD and religious denomination praying for me. I think I was on every prayer list and I felt it. My co workers were incredible, they donated their vacation time to me so I could get in the time I needed for disability to kick in. They sent me a box of goodies each month to cheer me up. They did not just think of me, they packed up things for my husband and the pets too. They knew the whole family needed cheering up too. I missed not being at work, but I made getting cancer free my full time job. I found commonality and COURAGE from my new friends online too. I found an incredible group of women (and some men) on the Her2 support group website. You will see a luminary in support and memory of them here tonight.
Well here I am now, still finding the COURAGE I need every day. What a journey I have been through. Relay and Cancer also gave me another gift: the gift of HOPE. First and foremost I have;
HOPE for a future that is cancer free.
Until that time we have;
HOPE for every man, women and child with cancer; that they get the treatment the need, regardless of their race, socio-economic status, and type of cancer.
HOPE that everyone has the courage to seek out get the preventative care they need.
HOPE for new treatments; getting us closer to a world without cancer.
Relay for Life as an event, brings HOPE to those fighting the disease in your community.
Not only has Relay given me HOPE, Relay for Life has literally, given me LIFE. Now this the gift that my husband was thinking of, when he told me that cancer gave me gifts. This gift he got to share in and help create, literally.
What I have not told you yet is that I have been married for 10 years and for 6 years of that time we had been trying to conceive. I took the fertility drugs with no success and then when I found that lump all my focus changed. I had no eggs to harvest before treatment and there was a pretty good chance that the chemo I needed was going to zap out all the rest of my chances of getting pregnant. I could not think about that, I had a year and a half of treatment ahead of me. I had to fight for my own life, how could I even think about creating a new life? After my first dose of chemo I started ovulating, but knew that trying then was out of the question. After numerous treatments I stopped ovulating and we had no idea if I would ever ovulate again. Well a few months after treatment was over, I was ovulating again. Pregnancy was still not on my mind. My risk of reoccurrence was very high in the first two years. My fear of it coming back was high, really high. With that fear still raging, I came here once again last year. My husband walked the survivor lap with me and (sorry if this too much information, TMI) but it’s too great not to tell. We walked the lap, did some activities and went home that night and conceived our son. I knew I was ovulating and I knew there was that chance, but was it right? I had been struggling with the idea of even contemplating bringing a child in this world. Was it fair to create new life if I possibly was not going to be here to share in it? Relay for Life last year gave me the HOPE and COURAGE I needed to dream once again of creating a LIFE. I had a great pregnancy; actually I had never felt better. Normal blood tests, normal ultra sounds. I felt like if anyone could handle bad news or a challenge, we could. Four months ago my healthy little man came into this world full of life and HOPE.
Well it happened that RELAY night last year, some of my family and friends, of course my son is here tonight to share with me this incredible experience of HOPE. I feel their energy and all of yours too. I hope you feel it? Thank you all that gave me the HOPE and COURAGE to face my future and live my dream of LIFE. Please have the COURAGE to live your life with or without cancer. Give HOPE to others and let RELAY give you the HOPE you need. It truly has been an incredible experience for me;
And David, I am not making any promises of a repeat performance of last year, maybe next year?
Full of COURAGE, HOPE and LIFE
Laureen Kessel Hunter
__________________

Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009

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Old 06-11-2009, 09:37 AM   #2
alicem
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Laurie - I'm so touched by what you had to say. What a special moment for you and your loved ones.
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9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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Old 06-12-2009, 09:30 AM   #3
Believe51
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Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Laurie, always nice to hear from you but especially this post. Not only did I appreciate it and think it was beautiful but I needed to hear that. I am so proud of you as a Warrior, a Survivor and also as my Friend. Enjoy your family and the time that you have fought so vigilantly for. Please kiss my growing nephew and tell him Auntie Marie loves him more than ever!!>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 06-12-2009, 07:24 PM   #4
Ruth
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Laurie,
Beautifully said....it gave me chills. Cancer gave you to us as a gift to share in your wonderful inspiring story. Bless you and your wonderful husband and adorable little boy!
Hugs ~ Ruth
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[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~

Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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Old 06-12-2009, 07:39 PM   #5
Sheila
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Laurie
You have made us all proud...what an eloquent speech...I sat her with tears running down my face as I read it.....you are courage!!!! So glad this disease has brought so many of us together!
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"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 06-14-2009, 07:12 PM   #6
LAURIE
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thanks so much ladies, it was a great night.
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Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009

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Old 06-15-2009, 06:37 AM   #7
Colleen007
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Sometimes it is hard to convey to others that cancer really does give us gifts...you captured it perfectly. I can even go so far as saying that I feel lucky that cancer touched me as it has given me the gifts of time with my husband and kids and opportunities to really make the most out of life (opportunities that were always there...just that I wasn't taking advantage of them).

Colleen
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Diagnosed 10-03-2005 (34 wks pregnant, 38 yrs old)
Lumpectomy Nov-2005. 10/18 Lymph Nodes impacted
Mets to liver, spine & femurs (thus being stage IV right from the get-go)
ER-, PR-, HER2+
Taxol/Herceptin/Zometa started Dec-2005. 11 cycles of Taxol.
Sept-2006: PET/CT scan of mets to liver, spine and femurs - Stable. Activity in R breast & mediastinum (not seen in prior scans).
Navelbine (3 wks on/1 wk off) as of Oct--2006 & continued Herceptin (every 3 wks) & Zometa (every 6 wks)
Jan-2007: PET/CT Scan - Stable. Continued Nav. through March-2007, then Herc./Zom. only after that.
June-2007: PET/CT Scan - activity in mediastinum. Back on Navelbine as of July-2007.
Scanned Quarterly since Oct-2007 - a few small scares, but otherwise stable due to continuing weekly Navelbine, Herceptin and Quarterly Zometa.
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Old 06-16-2009, 06:54 AM   #8
schoolteacher
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Laurie,

Your words were beautifu. Your family is also beautiful.

Amelia
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Old 06-22-2009, 08:47 AM   #9
duga35
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Laurie,
I was there and heard your speech. It was wonderful!
I had a lump in my throat while you spoke.
__________________
Diagnosis and Treatment: DX 12/07/07
Male Diagnosed with DCIS at age 39
Mastectomy on right breast
Tumor Stage pt1b NO MO
DCIS Tumor size 1.5 x 1.x .6cm
Infiltration tumor size .25X.17 cm
Bloom-Richardson Grade 3(score 8)
Nuclear Grade 3 with comedo necrosis
Estrogen+/Progestrone+/HER-2/Neu +++
FISH ratio 4.31
Lymph node removal scheduled 1/07/08
17 nodes tested and all negative 1/08/08
Started Tamoxifin 1/29/08
Oncotype DX score 52 (off the charts, according to my onc!!!)
Starting TCH 3/14/08
BRCA I Positive BRCA II Negative
Finished TC 6/27/08 continue Herceptin
8/1/08 Herceptin stopped due to low Muga score
Mastectomy on left breast 11/10/08
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Old 06-22-2009, 04:49 PM   #10
flynny
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What a beautiful speech. Thank you for sharing it with all of us. You are one remarkable woman!
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-Sarah-

Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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Old 06-24-2009, 02:32 PM   #11
WomanofSteel
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Laurie, what a wonderfully eloquent speech. You are the bomb!
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dx aug 03
invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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Old 06-24-2009, 04:42 PM   #12
Cal-Gal
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Laurie,

Thanks for sharing, you are truly and inspiration!!!!!
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DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED

12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line

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Old 07-28-2009, 07:48 AM   #13
Soccermom
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Beautiful said, Laurie...well done!
Marcia
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Old 07-29-2009, 09:22 AM   #14
lkc Gumby
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Re: my relay speech

absolutely beautiful !
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Linda

Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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