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Old 12-12-2007, 01:50 PM   #1
RhondaH
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Question Prefer to go to the dentist rather than the oncologist...

I don't know about you, but I would NOW rather go to the dentist rather than the oncologist. I have my 3 month checkup next Thurs and am DREADING it...not symptomatic, just dreading it. Also, curious I will have my 3 year cancerversary on 2/1/08 and was wondering when my time between visits will become longer...I'm still on every 3 months.

Rhonda
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Rhonda

Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)

2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)


" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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Old 12-12-2007, 02:39 PM   #2
tricia keegan
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Rhonda I had my two year anniversery last July and am now on six month check ups, it's nice not having to go so often but at the same time I feel nervous too as it can be reassuring to check out small worries and concerns more often than that.
Good luck with your appt, I'm sure you'll sail through it, I have a morbid fear of dentists but know what you mean!
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 12-12-2007, 03:52 PM   #3
Susan
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Hi Rhonda: I'm now on 6 months. I just saw my oncologist today, I dont' have to go back until June! I'm so excited. I go next week for a bone density test, just for baseline,and I"ll start arimidex tomorrow. It will be 3 years for me this spring. As far as seeing the dentist, I'm a dental hygienist, so I see my dentist everyday! lol
Sue
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IDC, Stage 1, Grade 3
Oncotype Dx Score 40
Her2+++ E+P+
Lumpectomy 5/05
Re-excision 6/05
4AC
33 rounds of radiation
1 year Herceptin (had to quit after 8 months, due to low muga scores)
Faslodex until 11-07
Hysterectomy with ovaries 11-07
Arimidex 12-07 switched to Aromasin 10-09
Quit Aromasin 11-09 due to joint pain
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Old 12-12-2007, 04:58 PM   #4
tousled1
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Rhonda,

I think all oncologist's differ in how often they want to see their patients. I know I was seeing mine every 3 months before I developed mets. I still see my surgeon every 3 months. Hopefully after this visit you will only have to go every 6 months. It would be nice to have the embilical cord cut but I think deep down we all get a bit anxious about that. Best of luck to you.
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 12-12-2007, 08:07 PM   #5
Barbara2
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I have always prefered dentists over doctors because doctors deal with more life and death (scary) issues. In fact I am quite calm at the dentist. My dentist has even commented to me before about my calmness. He said "after what you have been through with breast cancer, this must seem much easier."

In regards to #s of office visits, I still go every 3 months but that is at my request. Quite some time ago my onc asked if I wanted to start coming every 6 months and I asked to stay with every 3 months. It seems I always have questions, but I must admit the bloodwork and tumor marker results keep me on high anxiety until they come back, and even then I fret about this and that of the results. I ask for a copy of the results each time I'm there.

I've noticed where a few ladies have said they go every 4 months. That might be a good compromise.
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Barbara

DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.

Accepting the gift of life, I give thanks for it and live it in fullness.
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Old 12-12-2007, 09:08 PM   #6
kareneg
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Rhonda,

I would much rather go to the dentist too lol. I am praying your visit is uneventful and all the rest you have to have are to. You are in my thoughts and prayers. I just know everything will work out just fine.
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Karen

IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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Old 12-12-2007, 09:24 PM   #7
Mary Jo
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Hi Rhonda,

I hate both!!!!!!!!!!!!!!!! That being said, I have to visit both about the same time frame. Once I reached my 2 year status my onc. said every 6 months was fine. So..........twice a year to see him and twice a year to get the old choppers cleaned. Oh fun!!!!!!!!!!!!!!!! But, who's complaining.

Mary Jo
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Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 12-12-2007, 09:49 PM   #8
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Hi Rhonda,

Just wanted to share that we have the same cancerversary. My one year is 2/1/08. That date is forever stamped in my head. Heres to many, many Feb. 1 with NED.

Hugs
Tonya
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 12-13-2007, 12:08 AM   #9
MCS
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I hate dentists. uch.
I told my onc once that I wished we could have a device to detect funny stuff inside us just like an insulin device every day. This would comfort me knowing that I could do something right away. Probably because to be told I had bc was such a shock. Maybe I could have done something to spare me of this.
anyway, I used to like seeing my onc more regularly, again, another blankie!

xoxo

MCS maria
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Old 12-13-2007, 12:34 AM   #10
Chelee
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Rhonda, That one's a toss up. If I had my way I would just assume avoid both. lol

I am not sure but I *think* my onc plans on having me come in every 6 until I reach the 3 yr mark. I'm doing every 3 months like you are. I think at this visit you might ask your onc if he/she is comfortable with you coming in every 6 months instead? But I do admire your onc for keeping an eye on you. Some onc's kick their patients lose too soon...yours is just playing it safe. But maybe you will get surprised and he/she will tell you at this appt that it is being changed to every 6 months. (You better make sure they realize its been 3 yrs.) By the way...I'm early...but happy cancerversary to you.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 12-13-2007, 03:56 AM   #11
michka
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Rhonda, it's crazy: that's exactly what I was thinking about this morning while I was in the MRI machine for my brain. I was thinking about a friend complaining about the dentist and how I would love to only have to go see the dentist!
I am starting the big check up: MRI of the brain, Pet/CT, Scan, mammography and MRI of other breast, and blood test. I did the last ones 6 months ago. I tried to convince myself that I was strong but once in the machine, I was so afraid. I thought of all the courageous ladies on this site and calmed down.
I thank Christine and all of you for sharing your experience: I insisted until the Onc. accepted to add the MRI of the brain and the Pet/ct. I was ready to fight and I think he felt it so gave in quite fast. (but he is also a nice guy who does not want his patients to worry).
Michka
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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Old 12-13-2007, 07:19 AM   #12
Vi Schorpp
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Rhonda

I, too, see the oncologist every 3 months and it was four years for me in April. I'm sure the visits also have to do with the Aromasin or whatever else you are prescribed to be sure it's not raising blood pressure, etc. It's interesting that some still see their surgeons. I have not seen my surgeon since the first year of my mascectomy, but would if I had any concerns.
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Old 12-13-2007, 01:19 PM   #13
MJo
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I see my oncologist in January, so I'm not anxious -- yet. But one month before my mammogram I began to get very anxious and actually had to take Xanax occasionally the week before the mammogram. Hopefully I won't be that anxious before the oncologist visit. As these wise women told me recently, after what we've experienced, a little worrying is normal.
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IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 12-13-2007, 01:49 PM   #14
Mary Anne in TX
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I see mine every 9 weeks.
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Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 12-13-2007, 03:21 PM   #15
Mgarr
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Hi Rhonda,

My cancerversary is Jan 08 & I asked at my last visit (Nov.) if I still have to come every 3 months and he said, "yes (don't know why he does not do blood work or scans) I will continue to see him every 3 months for 5 years."

Mary
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Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED

Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all -Emily Dickinson

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Old 12-13-2007, 06:33 PM   #16
anne2
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Don't be too hard on the Dentist.

I rarely get a patient who wants to come see me but everytime my mom goes to see the onc I have a knot in my stomach. Take it one day at a time. And Dentist are fine people just like I am!!!
Anne
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Old 12-13-2007, 07:41 PM   #17
TriciaK
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Anne, I wish you were my dentist! I have a nice gentle dentist but I still dread going. I want to ask your advice about having dental work after having been given bone meds , including intervenous. I will have to look up the kind I was given and will do a general post, in case others may be interested. Thanks in advance for any info you can give us. Tricia

Last edited by TriciaK; 12-13-2007 at 07:42 PM.. Reason: change word
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Old 12-13-2007, 08:37 PM   #18
janet/FL
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I definitely dreaded going to my onc. This week we decided to part our ways. I never really liked him--he came in after my treatment was through and pretty much did not care about me. At least that was my feeling. Then an oncology group took over his practice--one I already had had a bad experience with--so it was "hasta la vista". I don't like the new doctors and their philosopy which is pretty much, money money money. I would never have gotten Herceptin if I would have stayed with them in the first place. That doctor from that practice pretty much made fun of what I learned on the web. Now I have a real good excuse to never have cancer again since I can't find a doctor! As if one needs and excuse.
I like my dentist! I actually met her through a friend of hers that was on this site! The owner of the office had BC same type --ER/PR neg. Her2 +++ and that office went out of their way for me.
So, Joe, you see this site helps some of us in many, many ways!
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Endometrial Cancer 2002
Mammogram 11/2004
Lumpectomy 12/2004
Stage 1, 9mm DCIS, grade 2, Her2+++, ER/PR negative
Refused A/C as recommened by two oncs.
35 treatments of radiation that ended March 4, 2005
Changed oncologists and began
Taxotere/Herceptin August 2005. Finished Herceptin July 2006
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