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Old 09-26-2007, 12:17 AM   #1
hutchibk
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American Cancer Society advocates for government-run national health-care

Not good, IMO...

http://www.nypost.com/seven/09102007...ly_medicin.htm
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 09-27-2007, 05:44 AM   #2
sarah
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well, I had "great" health insurance and when I got cancer in the USA it still cost me $10,000 in hard cash. Of course if you make enough to deduct it from your income (and then basically the government is subsidizing your health insurance) you don't care how much health insurance costs. But since the USA (in other words all American taxpayers and I'm one) pay twice as much per person as the "universal" health care governments, I'd have to say, universal healthcare is fairer for everyone and cheaper for governments because poor people don't have to turn to emergency wards for assistance. Also you can always pay extra to see a different or "better" specialist. I can see any doctor I want to, anywhere I want to, but I may have to pay a little extra - so that's my choice. As a doctor's daughter, and my father would agree, (he gave 3 mornings a week to care for patients free who couldn't pay) I am not comfortable to think that I can get better care than others who are just as deserving can't because of cost - and who ultimately pays???
In France healthcare is a right not a privilege and those of us with more money, pay more, it is our privilege for having more to pay and I am not a rich person monetarily but my heart and the opportunities I have been blessed to have, have made me feel very rich and I could not live with myself if others couldn't have the same opportunities as I have had. I am pleased to see that California, one of my home states, is considering it. Doctors would be relieved from paying out so much in malpractice insurance and no one would have to chose their health or food or whatever. Isn't one of our purposes in life to help those less fortunate than us? Giving to others is a gift. Not everyone who is poor is a lazy, thieving brat. Let's save ourselves and our government money and help those that are less fortunate - let's have some sort of universal care. We will always be in charge of our lives and our health - no one can take that away - that's just a paranoid public relations campaign devised by the "thieves" in the healthcare industry. I'm a capitalist with a capital C but that doesn't mean, I can't care about my fellow human beings. If I sound angry - I am. Health care is too important to everyone not just to those who can pay for it.
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Old 09-27-2007, 10:07 AM   #3
Vanessa
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I have to agree Sarah, we have to be concerned with those less fortunate. We are paying much more for health-care, because big business if profiting a huge amount. There are some things that should not be profitted from and one of them is a person's health. I also believe that big business plants rumours about how bad universal health care is. I have a friend from Canada who told me that the Canadians would revolt before they gave up their healthcare system.
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Old 09-27-2007, 01:52 PM   #4
hutchibk
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Personally, I don't believe that just because our system is perceived complex and seems comparatively expensive to perceived "free" care in other countries national systems, that a national govt system is the only solution for the US or a good option. I think there is some solution in the middle of the two systems that makes it affordable and accessible, and is consumer driven, not govt run or mandated. I don't want the govt deciding ANYTHING about my healthcare options.

I recommend googling Regina Herzlinger, see who she is and what she knows...

And a good informative opinion from Dr. Val...at Revolution Health...
http://www.revolutionhealth.com/blog...ommentary-5390

Also - this looks like an interesting read: The Fight of My Life by Barbara Clark (UK nurse, mother and foster mother)

The Fight of My Life
Barbara Clark
RRP: £7.99
Price: £3.99
You Save: £4.00 (50%)
Release Date: 4 October 2007

Synopsis
Barbara Clark is a former nurse, foster carer and mother of two children, one with special needs, and was diagnosed with an aggressive form of breast cancer in February 2005. During her treatment, she found that there was a drug existing, Herceptin, that would double survival chances for her particular form of cancer from 14 per cent. However, it wasn't available on the NHS and therefore, for Barbara, unaffordable. In the midst of aggressive chemotherapy, Barbara, incredibly, found the strength to fight not just the NHS but the government, and to win the right to be prescribed the drug on the NHS, not just for herself but for thousands of other women. The "Fight of My Life" will tell the story behind those headlines.

Look for more info on Amazon UK...
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 09-27-2007, 06:01 PM   #5
caya
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A Canadian perspective

I am so thankful that, as a Canadian, we have universal health care. When you are seriously ill, the last thing I think you would want to do would be filling out forms, fighting for scans, tests that have not been approved etc. When my daughter was born in 1986, after a total normal pregnancy, I had a fever while in labour and she was put into the NICU for 10 days as a precaution for possible meningitis. Of course we were worried sick about her, but I could focus on her health, and did not have to think about anything else. Can you imagine if we had no health coverage? I shudder to think of that thought.
It was the same with my BC diagnosis last fall. My GP referred me to an oncologist - and I got to choose anyone I wanted to go to in the city of Toronto - and I saw both him and the breast surgeon within a week. The breast surgeon was assigned to me from a group of about 6 doctors. All my tests and scans pre-surgery were ordered by my onc. in a timely manner, at world class hospitals. I also had an appointment with a plastic surgeon to discuss reconstruction - again, the PS I chose, not who was part of a certain HMO or "group", as ordered by an insurance company. Everything was covered with my provincial health card, just a swipe at each visit and that was it.
I am not saying our system is perfect - it isn't, nothing is. But everyone is equal here with regards to their health, and I believe this is morally the right way. Yes, I pay high taxes, but I feel it is worth it. As in France, health care in Canada is a right, not a privilege.
Yes, you will hear occasional stories in the US about long wait times for certain surgeries etc. here and that is sometimes true. But these are the exceptions, not the rule. I truly believe that some US insurance companies exaggerate these issues to scare the US population into believing it would be chaos if a universal health care system was created in the States, and that care would evaporate. Ask the millions of Americans who have no health care - and I am not talking about the ones that can afford it but balk at paying. Or the ones who just lost their jobs and are worried sick about losing their health coverage - it's bad enough to lose your job. Or the ones who stay in horrible jobs because they cannot afford to lose their insurance- I would hate to feel trapped that way.
Again, it is not perfect up here, but in general, I'd much rather have it this way. In fact, Herceptin was cleared for use in early stagers up here earlier than in Nov. 2006 as in the States.

Just MHO - Canadian HO, that is.

all the best,
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 09-27-2007, 10:43 PM   #6
mke
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Join Date: Aug 2006
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Posts: 64
Actually I have had breast surgery in both the US and in Canada, have spent roughly half my adult life in each county. Treatment was fine in every case, no complaints.

We were poor when I was growing up in the US and going to to doctor was something to be avoided if at all possible. There were public clinics at school for polio shots and the like. Our family doctor was a kindly man and apparently was always willing to wait for payment. I don't know that I really felt deprived, but I think my parents worried about bills. I grew up, married well and was covered by my husband's insurance.

I never worried about taking my kids to the doctor or the ER in Canada, of course by now both my husband and I were white collar employees so we wouldn't have worried anyway, but the same right was enjoyed by the welfare moms in the co-op housing around the corner and I liked that. My kids were rather healthy so didn't need much care, contrary to popular opinion running off to the doctor because "it's free" is not common in countries with universal health care.

There are some things that I just don't understand about the attitude, and I would almost call it fear, of US citizens to universal health care. There are benchmarks of population health, things like infant mortality and life expectancy. The US which spends way more per capita than any other country is like 35th or 40th for these. How does this compute?

Sure there are lots of factors, but the most obvious one is the layers of beaurocracy that need to deal with the costs. Government is worth complaining about but insurance companies are not better. Unless you have a bottonless purse there is a gate-keeper in both cases.

I worked in management in a 450 bed community hospital in Ontario. We had a 3-4 person perchasing department, billing was done by one of the secretaries that I shared with another manager. We did not count things by patient. The province funded the hospital based on its patient base. We did have to worry about overspending our budget on expensive items or expensive elective procedures.
I watched a program about a similar sized community hospital in with Oregon or Washington which had a separate building with 250 people doing billing. That is where your money is going - billing clerks and insurance companies.
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Old 09-28-2007, 08:37 AM   #7
hutchibk
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I am not afraid of universal health care. I just don't agree that it is the best and only solution in the US. I am tremendously interested and concerned about how it will be sustained... which Canada, Italy, England, etc etc are facing currently. Much like our failing social security system, (simplistically) more are using than are paying in. Over time, it will require curtailed services or even higher taxes, and many countries will also have to tackle reforming and more aggressively enforcing their taxing system to accomodate their healthcare system. I believe that just because there are aspects to our system that are bad, that the current model used in mentioned countries are NOT necessarily good or the only option or answer. Inside Canada for example, one is not allowed to seek and pay directly for health care outside of the public monopoly. This means that if you would prefer a procedure other than that offered by your Nat'l health doctor (and approved/mandated by the Nat'l healthsystem), you cannot go to a different Canadian doctor and pay privately. Any Canadian doctor who would agree to it would be breaking the law and would/could be prosecuted. These are the types of controls that make my blood boil.

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

Written by a Canadian:

The top ten things many people believe about Canadian Medicare, but shouldn't:
  • Number One: Canada has the best health care system in the world.
  • Number Two: The Canadian public love Medicare.
  • Number Three: Canadian Medicare is sustainable.
  • Number Four: Single-payer, Canadian-style coverage, keeps costs under control.
  • Number Five: More cash is the solution to Medicare's problems.
  • Number Six: Under Medicare, people get the health care services that they need.
  • Number Seven: "Free" health care empowers the poor.
  • Number Eight: Canadian Medicare is fairer because no one gets better care than anyone else
  • Number Nine: Medicare-type spending is the best way to improve health.
  • Number Ten: Medicare is an economic competitive advantage for business.
Now, like most Canadians, I believe that our system is superior in many respects to the U.S. system, but it is a system that staggers under the burden of serious design flaws. I am deeply worried about the long-term sustainability of our health care system, and I think that we have much to learn from countries that ranked much higher than either Canada or the U.S. in the World Health Organization rankings.

These countries demonstrate that many of the fears that Canadians have about significant reform to Medicare (to introduce payment for health care, to allow people to pay directly for health care outside the government monopoly, and even breaking up the provision monopoly to allow competition and a greater role for the private sector) are all reforms that can be carried out within a public policy framework that continues to be preoccupied by equity considerations. That gives Canadians better value for the tens of billions of dollars they so patiently and lovingly devote to public health care spending in a repeated triumph of hope over experience.
Brian Lee Crowley is the President of the Atlantic Institute of Market Studies located in Halifax, Nova Scotia, Canada.
http://www.heritage.org/Research/HealthCare/hl856.cfm
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 09-28-2007, 09:26 AM   #8
sarah
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AS Caya said about Canadians, here in France there would be a violent revolution if they changed the health care system. Having been treated in both the USA and France for cancer, I personally am happier to be here where I don't have to worry will the insurance company fight me about my care. Health insurance in the US costs a lot of money. I had "great" insurance and still paid $10,000 or more out of pocket for the loop holes.
The French government has absolutely NOTHING to say about my treatment and wouldn't dare to say anything. My oncologist is who decides and he decides with me - since I'm a pro-active patient.
I too have trouble understanding this fear that the government will take it over - it's certainly not being used properly or economical now and since the USgovernment is paying twice as much as the universal health care countries per person, something is wrong.
As for social security, it's a right and it's fully funded and if the government would not borrow from its lucrative fund, it would be even better funded.
Many doctors I've had in the US have fallen out of various health insurance plans because of the paperwork; and malpractice is hugely expensive for them.
Also there is always the danger of an epidemic breaking out and poor people, who can't afford to go to their doctors, getting sicker and making others sicker. I really think it is cheaper for a person to see their local doctor and be treated early than to wait until it becomes a catastrophic illness.
Sadly I think the American public will be scared again into thinking they can't choose their doctors or can't get the best care - as if many can now. Don't you have to refer to a list of doctors signed to your insurance!!?? I know I did when I had my private insurance in the US.
As I've said before just because you're in a universal care system doesn't mean you can't see any doctor you want - some you just may have to pay for out of pocket.

I LOVE the universal heath care here in France - it's great - the New York Times voted France #1 for health care and very human. However I'd still rather be healthy!
sarah
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Old 09-28-2007, 10:59 AM   #9
caya
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Brenda,

With all due respect, you are not Canadian, you do not live here, you do not deal with my medical system. Like Sarah in France said, my oncologist and I decide what my treatment will be - the government DOES NOT decide. They approve drugs, but that is done in the States as well.
It is true that if you want to have a procedure done, and have to wait for it (i.e. a hip replacement), you cannot seek out another doctor who will do it immediately for payment. But all procedures are fully covered, and believe me all emergencies are done IMMEDIATELY.
My DH had a brain aneurysm in Jan. 2006 - it was discovered after a few weeks of misdiagnosis, ultimately by a brilliant neuroradiologist who did a few different brain scans. The aneurysm was discovered at 1:00 p.m. at the CT/MRI clinic, DH was rushed to a first rate hospital that specialized in brain surgery, he was seen within 1 hour by 2 neurosurgeons, and the decision was made by all of us to operate on him the next day. And we were asked which hospital we wanted to go to - none of this "they're not in your network" stuff.
Again I will state again that it is not perfect here, and I agree that if I want a procedure done more quickly, and I want to pay, I should be able to do it. But not at the risk of collapsing universal health care - when people are very ill, they should not have to be worrying about medical bills. Period. Or wondering if they can afford to take their sick child to the pediatrician.
I can also tell you that since DH had his aneurysm in Jan. 2006, and my diagnosis with BC in Oct. 2006, I have been under extreme emotional, physical and mental stress just dealing with all this. It has been a tremendous pressure to bear for my family, but at least I never have had to worry about money. My finances have not for one second been diminished in any way because of medical bills. There are no medical bills. I pay my taxes, kind of like paying insurance - when you need the coverage you will have it. But I will always have it, along with every Canadian citizen.

all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 09-28-2007, 05:45 PM   #10
Lolly
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Posts: 1,756
I highly recommend Michael Moore's new documentary "Sicko". He documents stories of people here in the U.S.A., with and without health insurance, and also goes to other countries and interviews citizens on various national health plans. A real eye-opener. Warning, you will cry.

<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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Old 09-29-2007, 01:27 AM   #11
hutchibk
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With all due respect as well, we will have to agree to disagree about universal/national healthcare being the answer for the US. I have had Canadian friends, British friends and I have family who live in France. I do understand both systems. I understand that your system works for you, I don't believe it is the proper solution for the US. Sorry Lolly, Michael Moore could never make me cry, because I won't spend my $$ on his half-truths and posed re-enactments.
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 09-29-2007, 06:17 AM   #12
tousled1
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Brenda,

I'm with you on this one! Universal Health Care is nothing more than socialized medicine. I have had experience with it while living overseas and would definitely not want to deal with it here in the United States. I see what has happened to my medical care since I had to go on Medicare and not due to cancer. I also have my original health care plan. All you have to do is look at how Medicare, Medicaid, and Social Security are run and you realize that socialized medicine is not the answer for the U.S.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 09-29-2007, 06:59 AM   #13
Mary Anne in TX
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Hey!
I just love a good clean fight! I guess being in the middle makes it easy! My insurance doesn't pay for some of my care, but does cover most. But as a "wish I could retire, but have 3 more years til medicare kicks in, it's hard to cover the cost of insurance sometimes. We see life through our own life experiences and understandings.
The one delightful thing about chemo has been that my understandings and thinking are "roller-coaster" like now! I'm a terrible "True Blue Texan" so can't imagine living anywhere else, but would sure love to let go of just one stresser!
Thanks to all of you for being so willing to share an make us aware. I guess the important thing is to keep our eyes on the real enemy...cancer!
Luv U bunches,
Mary Anne
__________________
MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 09-29-2007, 10:02 AM   #14
Brenda_D
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I don't what the answer is. Something in between.
My greatest fear right now, is not the cancer itself, but losing my insurance coverage.
I'm on my husband's health insurance through his work, and whether we have it or not from quarter to quarter, is based on the hours he works. In his field (construction) he may work alot, or very little in a given time frame.
We can self pay for 2 quarters, but only 2, and after that we lose coverage. I'm not even sure we could go to Cobra since it would be due to a lack of work, and not that he no longer works there. Besides the full cost of Cobra coverage would more than likely be much more than we could afford, and I can't get on Medicare for at least another year. We make too much for Medicaid, and are the ones that fall between the cracks.
I've already run into problems affording the co-pay for my herceptin, and the onc writes it off. Now the insurance co. decided to take away the "provider discount" because my onc doesn't buy from "their pharmacy", and guess who that is now billed to? I can't afford that either, so if the onc doesn't waive it too, I guess I will be done with Herceptin.

Are 4, 3 week treatments enough??
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12/12/06- IDC Stage III, 4x A/C, 35 rads, Herceptin 1 year
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Old 09-29-2007, 11:36 AM   #15
caya
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Brenda D - This would NEVER happen in Canada. You are a prime example of what I mean - NO ONE SHOULD BE DENIED HEALTH COVERAGE, ESPECIALLY TREATMENT FOR A LIFE-THREATENING ILLNESS, BECAUSE THEY CANNOT PAY.

Brenda H and Kate - Sorry, but I agree to disagree. Again, the Canadian system is not perfect, but how would you feel if you were in Brenda D's position?

And Mary Anne - you are so right - the enemy here is Cancer. Tomorrow my girls and I with some neighbours and friends are doing the CIBC Run for the Cure - the big coast to coast Breast Cancer Run/Walk in Canada. Let's hope this is the last year we will have to do it!!

all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 09-30-2007, 11:05 AM   #16
AlaskaAngel
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It will be interesting to see where the USA goes next in dealing with health care, now that so many have either lost insurance coverage entirely as part of their jobs in the USA, or when they are still able to get it as part of their jobs, are getting far less coverage than most employees were able to get just a decade ago (now at far higher cost). What is most concerning is how easy it is with a chronic expensive disease to end up without employer-sponsored insurance even when a person has spent years and years sharing the cost, and then left to cope with whatever is available through government programs.

The people I've known by chance who have dealt with Canadian health care as U.S. citizens have had only praise for it, even though the coverage does vary between provinces -- although I don't know whether any of them were not covered by insurance of any kind at the time, or whether that would make any difference.

One of the controversies about the 2 systems is that it is very expensive to fund educational training and research, which is much more extensive and available in the USA than in Canada, and therefore Canada benefits from that major investment by the USA without having to spend as much for it.

A.A.

Last edited by AlaskaAngel; 09-30-2007 at 11:06 AM.. Reason: add "now" to clarify content
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Old 10-01-2007, 01:30 PM   #17
Lolly
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Posts: 1,756
Brenda, what made me cry in M.M.'s documentary are the REAL stories told by REAL people. Some of the tears were happy, and yes, some were sad, but the operative word is that it is a documentary and not filled with "half-truths and posed re-enactments"(IMO).
Our health care system functions well for MOST people fortunate enough to have health insurance, but even for some who have coverage (and I'm not speaking of Medicare; I'm on Medicare and have pretty good coverage and guess what, it's a government-run program)
our system is broken, and for way too many who have no insurance, it's just a very sad situation.

<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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Old 10-01-2007, 05:20 PM   #18
hutchibk
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Hi Lolly - I don't see it as I am "fortunate enough" to have health insurance. Health insurance has been a priority my whole life and I have always had it. Individual insurance. Not employer provided. It is a matter of priorities, I believe. I have never made more than $30,000 a year. That does not make me one of the "fortunate" few. It puts me right there in the lower mid-income range of the US population. I had no problem affording it. I made a choice that health ins was a necessity, whereas, for example, luxuries such as an expensive car or the most expensive cable TV package or expensive clothes, etc etc that were beyond my means, were not a necessity. It was how I was raised... in a personal responsibility, priorities in order, financially conservative family.

As I have said before, I know many people who make a lot more money than me and can certainly afford health insurance, however they don't have it because they are waiting for it to be free and/or are complaining because their job doesn't currently offer it. Instead, they spend a bulk of their money on having a cooler car than their friends, or on risky and unhealthy lifestyle choices. In the meantime they don't go to the doctor or take care of their health. It burns me up.

I don't necessarily agree that our system is broken as much as it is just upside down. I am newly on medicare as well. I didn't want it, but was basically forced into it as a by-product of being on disability. I don't have a bias or negative opinion about a "safety net" (medicare, medicaid) being provided for the truly needy in our society. I don't feel as though I am truly needy. I can still work part-time and did not want to be a burden on the system yet... however, if I did not take the option of medicare now, I would not get another chance in the future, when perhaps I was truly unable to work. I just know that there is a solution out there that makes sense, and is not a huge beaurocratic, inefficient government monopoly program.

I know there are sad stories out there. I am not heartless by any means. But, I won't pay a proven liar to tell me about it. IMO, MM is not a documentarian. Ken Burns is a documentarian. MM is a screen-writer and he makes movies. His fabrications/exaggerations/posed situations in his movies over the years are pretty well-documented. I don't know about this movie, because I haven't seen it and don't need to. IMO, if he was a real, genuine documentarian, he would go to countries with national health care and also tell the stories of their people in their 'rationed' type of systems who have been left out of care that they needed or denied new and/or expensive treatments that their systems won't approve... there are sad stories all around the world, regardless if you have perceived "free" health care or "private consumer insurance" health care.
_________________________

I am very interested in one particular expert who has researched for many years how to transform our healthcare system... Regina Herzlinger, who is known as the 'Godmother' of consumer-driven healthcare. Google it. Consumer-driven health care empowers individuals and brings their force to bear on the offerings of doctors, hospitals, and insurance and pharmaceutical companies. It converts the entire system to one that is responsive to the ultimate consumers of its goods and services.

Imagine the concept of consumer-driven health insurers that give you the health care you need at a price you are willing to pay; lower-cost hospitals that do not treat you like a slab of meat; and a government that does only what it is supposed to do—help the poor, provide transparency, and protect against fraud and abuse—rather than telling your doctor how to practice medicine. There is a way to create dynamic markets for health services that are more effective, more efficient, and more responsive to the patient-consumer—and the doctor—than anything we have today.
_______________________

Healthcare solutions are not globally applicable. Looking to other countries for magical fixes to U.S. healthcare woes is like expecting that all cancers will respond to the same chemotherapy regimen.
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 10-01-2007, 11:30 PM   #19
hutchibk
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Brenda D - have you had your clinic social worker or advocate contact Genetech to see if you can qualify for Herceptin under their access program?
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 10-01-2007, 11:39 PM   #20
hutchibk
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Posts: 3,519
Hi Caya - I am not certain that there is a guarantee that you will always have the level of coverage you currently have, for free. From the reading I have done, if I am not mistaken, it seems that Canada and other countries are currently struggling with the sustainability of their national healthcare systems. It sounds similar to our failing social security system. Not enough people paying into it/current taxation rates can't sustain it... either taxes/contributions will have to go up quite a bit more than they already are before too many years pass, the levels of care and coverage might have to be curtailed or more rationed, and/or the population may be required to begin paying a monthly stipend (as in 'insurance premium' type of payment), or a high 'copay at time of service' (as they already have in France on top of their exorbitant tax structure)to keep the system going. That will end up being quite a shock to those in countries who are not used to paying anything out of pocket for their own healthcare...
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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