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Old 09-19-2007, 03:34 AM   #41
myraazzopardi
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Hello all. My grandaughter has just reminded me that when my hair was growing back it was like her hamsters fur. She says it still is the same. Umm I wonder.
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Old 09-19-2007, 10:26 AM   #42
StephN
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Smile

Oh, ya, Taxol with a side of mouse - worked well for me against those liver mets!
And I don't care for liver, so there must be some synergy with extract of Yew tree and extract of little furry creature that is good against mutant ninja deadly cells.

Better to think this way, like our drugs are pets, rather than some high flown concoction created in a lab by mysterious wizards in steamy cauldrons.

On my way now for my umpteenth vitamin H dose. No benedryl needed. Now if it was from RABBIT ovaries - I would be in trouble!
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 09-19-2007, 02:13 PM   #43
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BHutch... Doctor told me taxol is mixed with a castor bean solution. It's all poison! So we get the chance to be allergic to evergreens or castor beans. Add mice when we take Herceptin. As for our furry friends, I've read that transplant patients take on some characteristics of their donors. The urge to eat spicy food and ride a Harley, for instance, when you have the donor heart of a Hell's Angel who loved Tex-Mex food. If Herceptin slipped me some Chinese hamster cells, well ..... I filled the bird feeder yesterday and had no urge to chew on the seeds. No urge to see the Great Wall either. So far so good.
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IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 09-22-2007, 06:35 AM   #44
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Question Another idea...

I was thinking about buying a little stuffed animal hamster/mouse/rat and a journal. What do you think about mailing this hamster and journal around the world. I was thinking of taking some photos of the hamster and me and of my "life". It would be a good way to get to know more about each other.
Then I will mail her and the journal to the next person who wants her for a visit. What do you all think???
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Old 09-22-2007, 10:36 AM   #45
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Smile serious

My last post was a serious question - just in case any of you think I have officially gone "hamster crazy". I think it would be fun to mail this journal around to everyone.
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Old 09-22-2007, 10:55 AM   #46
harrie
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I think that is a great idea! I would do it!!
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*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 09-22-2007, 01:11 PM   #47
Andrea Barnett Budin
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Talking Open Arms -- Seriously!

I'd be happy to welcome and entertain the little desert creature and take some pics and journal -- then send her, and the complete package, on its way! A group activity! A bonding thing. Love it, Pinkie!
I goggled CHO (Chinese Hamster Ovaries). This hamster originated in Southern China and Mongolia and are commonly used as lab animals -- for biological and medical research. Ie re genetics, gene expression "particularly expression of recombinant (rapidly growing) proteins"!


I like the kind you don't have to feed or cage. The perfect pet. A huggy hamster.


Of course -- we must *name* her something cool... How do you like BRAVEHEART?!!

Just thinking out loud. So to speak...
Andi

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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 09-22-2007, 02:36 PM   #48
PinkGirl
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Talking name that hamster

I like Braveheart. I was also thinking about Warrior Woman. I also thought about "H" names like Harmony Hamster, Honey Hamster, Hope Hamster. Any other ideas???
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Old 09-24-2007, 06:53 AM   #49
PinkGirl
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Smile Andi

I like all the names you suggested, especially ChangChang meaning Flourishing. But.....I keep going back to your initial one - Braveheart.
She could be BraveHeart Hamster, or Brave Heart Hamster, or Ms. B.H. Hamster.

I'm going to start working on the project today. I have to get her a passport or maybe just a visa, and she needs some luggage. I hope she doesn't have any trouble flying to Canada. Ever since that SARS crisis, our airport security is very cautious about visitors from China !!

I just got home on Friday from a week in the big city. I had my scans done and then we decided to stay for a few more days and visit a Casino. I have tons to do today (unpacking, laundry, groceries) but I think I'll work on the Hamster instead.....sounds like more fun. I'll keep you posted.
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PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

My Photo Album
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Old 09-24-2007, 09:04 AM   #50
Andrea Barnett Budin
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Wink I Posted In The Wrong Thread

I GUESS I'M OFFICIALLY TOTALLY LOSING IT. I posted this under Boobette...



Name That Hamster <HR style="COLOR: #cc0033" SIZE=1><!-- / icon and title --><!-- message -->
My Pink one... Looked up Chinese girls' names. Must be a slow day. I just feel so sapped of energy (low RBC) that my brain is too foggy to work on my book. So this is how I am occupying my time. I am successfully amusing myself. These are what I found for our Chinese Hampster -- names and meanings:

BO -- PRECIOUS
NUWA -- MOTHER GODDESS
CHANGCHANG -- FLOURISHING
JINGHUA -- SITUATION SPLENDID
HALO -- ANGELIC


HAPPY THOUGHTS...
Andi


<!-- / message --><!-- sig -->
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 09-24-2007, 10:32 PM   #51
Catherine
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Hamster Love

This may be too much....but my husband and I always liked Dr. Demento....He played Hamster love as a parody to Muskrat Love.... So here are the lyrics if you can stand them. I love that our little mascot will soon travel the world once "she" gets her passport. Catherine<TABLE id=Table1 cellSpacing=0 cellPadding=0 width=400 border=0><TBODY><TR><TD style="BORDER-RIGHT: gray 1px; BORDER-LEFT: gray 1px; BORDER-TOP-STYLE: none; BORDER-BOTTOM: gray 1px solid"><TABLE id=tblfacts style="BORDER-COLLAPSE: collapse" cellSpacing=0 cellPadding=3 border=0><TBODY><TR><TD style="PADDING-LEFT: 15px; BACKGROUND-COLOR: lemonchiffon" vAlign=top align=left>Parody Of "Muskrat Love" by The Captain and Tennille (peterpuck9)


</TD></TR><TR><TD style="PADDING-LEFT: 15px; BACKGROUND-COLOR: lemonchiffon" vAlign=top align=left>Song was unreleased until "Dr. Demento's 30th Anniversary Collection" (peterpuck9)


</TD></TR><TR><TD style="PADDING-LEFT: 15px; BACKGROUND-COLOR: lemonchiffon" vAlign=top align=left>First heard on DrD KMET show of 11/06/1977 (Tim P. Ryan)


</TD></TR><TR><TD style="PADDING-LEFT: 15px; BACKGROUND-COLOR: lemonchiffon" vAlign=top align=left>
</TD></TR><TR><TD style="PADDING-LEFT: 15px; PADDING-TOP: 5px; BACKGROUND-COLOR: lemonchiffon"></TD></TR></TBODY></TABLE><TABLE id=tblLinks style="BORDER-COLLAPSE: collapse" cellSpacing=0 cellPadding=3 border=0><TBODY><TR><TD style="PADDING-LEFT: 5px; PADDING-TOP: 10px"></TD></TR><TR><TD style="PADDING-LEFT: 15px; PADDING-TOP: 5px; BACKGROUND-COLOR: lemonchiffon"></TD></TR></TBODY></TABLE><TABLE id=tblBuyLinks style="BORDER-COLLAPSE: collapse" cellSpacing=0 cellPadding=3 border=0><TBODY><TR><TD style="PADDING-LEFT: 5px; PADDING-TOP: 10px"></TD></TR><TR><TD style="PADDING-LEFT: 15px; PADDING-TOP: 5px; HEIGHT: 30px; BACKGROUND-COLOR: lemonchiffon" vAlign=center></TD></TR></TBODY></TABLE>


</TD></TR><TR><TD style="BORDER-RIGHT: gray 1px; BORDER-LEFT: gray 1px; BORDER-TOP-STYLE: none; BORDER-BOTTOM: gray 1px"><TABLE style="WIDTH: 400px; BORDER-COLLAPSE: collapse; BACKGROUND-COLOR: white" cellSpacing=0 cellPadding=3 border=0><TBODY><TR><TD>Song Lyrics:</TD></TR><TR><TD>Hamster Love



Hamster, hamster by candle light.

Do it in a casserole is doing it right.

When they're in season, they're pretty pleasin'.

Hamster sandwich, hamster and cheese.

Hamster sandwiches with mayoneeze,

are delicious, and so nutritious.



You can dice, you can slice and fillet them.

Cut off their heads and sauté them.

And into the oven you shove,

smells like hamster love.



Hamster curry, or pickled toes,

Australian hamster tails, any good chef knows

how to make them, or just shake and bake them.

For breakfast, for lunch or while dining,

as a snack munch their deep-fried fur lining.

Into your mouth with a shove,

tastes like hamster love.



For breakfast, for lunch or while dining,

as a snack munch their deep-fried fur lining.

Into your mouth with a shove,

tastes like hamster love.



</TD></TR></TBODY></TABLE>


</TD></TR></TBODY></TABLE>
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Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021

Last edited by Catherine; 09-27-2007 at 09:51 PM.. Reason: easier to read
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Old 09-25-2007, 06:31 AM   #52
mts
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Hamster ovaries... well Premarin comes from urine of pregnant mares...
its all in the hormones !

maria
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Old 09-25-2007, 06:55 AM   #53
myraazzopardi
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Hello girls. Dont you think we are hamming this a little too much. I am only peeved cos I got the hamster hair and my lashes are not growing anymore after I bought ecological organic (what's it called lash paint) Mascara thats it, I am having memory loss on herceptin after all. I am enjoying these fun emails, how about yoos. Myra. A.
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Old 09-25-2007, 07:04 AM   #54
myraazzopardi
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Hi Andi. You are fantastic. Hope you dont mind copied and saved your history records to give me hope. Lots of happiness to you.
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Old 09-25-2007, 07:18 AM   #55
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Smile She has arrived.......

Well, the hamster arrived yesterday from China. She has a tag on her butt that proves her origin. It was presumptuous of me to think that we could name her. She already has a name --- it's Tiptoe. All of her necessary documents were in her journal and she didn't have any problems getting into Canada - no sign of a cough or fever. I think she'll stay with me for a week or two and then I'll send her to Andi. She's already complaining about the weather here, so I'll send her somewhere warmer. Don't worry if you don't hear from me for awhile - it would be rude to ignore my guest.
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Old 09-25-2007, 09:50 AM   #56
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Hamster is welcome to visit me any time. I will treat her right. I will not slap her between two slices of bread. MJO
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IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 09-25-2007, 01:31 PM   #57
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Smile Tiptoe

Hi everyone
I'm glad more of you are looking forward to a visit from Tiptoe. She's been with me for 2 days and she hasn't been any trouble - except for getting under my feet. She's looking forward to her travels around North America, maybe around the world, and she is definitely not camera shy.
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Old 09-25-2007, 02:20 PM   #58
Andrea Barnett Budin
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Talking It's A Girl!

Pinkie, Could you post a picture of Tiptoe? What's her birth date? WELCOME TO THE WORLD, LITTLE ONE.
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 09-25-2007, 03:00 PM   #59
PinkGirl
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Smile Tiptoe

Andi, Her butt tag says she was born in China in 1999. I didn't know hamsters lived that long, but maybe she's some kind of survivor. I don't know how to post a picture, but I will if someone explains how to do it.
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PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

My Photo Album
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Old 09-25-2007, 03:37 PM   #60
Andrea Barnett Budin
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Talking Tiptoe Is A Tiger!

TIPTOE is definitely A SURVIVOR. I believe I read that *statistics SAY* hamsters generally live for 3 years! WAY TO GO, TIPTOE! Come join the 1% club w/me. In fact, every one come join me!!!!!!!!!

The way I posted my pic is the idiot's way. I sent it to Joe, and pleaded for help. Actually, correct that, I had my son-in-law send it to Joe and then I pleaded for his help. You need to take a pic and load it into the computer. Oh dear. It sounds so complex.

Anybody have a smarter more savvy route?????
Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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