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03-09-2012, 10:47 PM
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#21
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Re: Christine our Founder needs Cards & Prayers
Sent a card. And it sounds like our prayers are already having a good effect! Keep the faith.
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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03-10-2012, 05:54 AM
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#22
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Re: Christine our Founder needs Cards & Prayers
Thanks Danielle for the happy update on your mom. We are all very concerned and thinking about her and wishing her a speedy recovery. Hope she can be safely home again soon.
love sarah
__________________
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03-10-2012, 06:41 PM
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#23
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: Christine our Founder needs Cards & Prayers
Danielle,
Your Mom is one tough gal and my bet is she will be back ruling the roost in no time! I'll send a card tomorrow! Have to go find a funny one (and maybe a bit naughty as well) for her!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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03-10-2012, 09:14 PM
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#24
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Re: Christine our Founder needs Cards & Prayers
Sheila, thank ou for letting us know. Danielle, Debra and Christine, my thoughts and prayers are with you. I send my love and my best wishes for Christine best recovery. Thinking of you.
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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03-11-2012, 07:19 AM
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#25
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Senior Member
Join Date: Apr 2008
Posts: 1,477
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Re: Christine our Founder needs Cards & Prayers
Danielle,
Thanks for the posts/updates. My first card goes out tomorrow with more to follow.
Karen
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03-15-2012, 09:27 PM
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#26
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Re: Christine our Founder needs Cards & Prayers
Hi friends,
I wanted to bump this up. Christine and Joe founded our site and we are all grateful for their vision and the design of the site that still works. Joe was our webmaster and could fix anything. He passed away a couple of years ago and as you know the site is still going. I started on the Komen site and then Tricia Keegan saw my post and saw my HER2 status and directed me here. I am forever grateful that I had this site to support me even when it was the middle of the night. I am from the generation that still sends cards via snail mail. At the top of the post you will see Christine's address. Even if you are new to the site, please take a moment to send a card to the lady that made this all possible. We are able to share, learn and support each other because of Christine. There is nothing better than getting a nice card in the mail. Her daughters need us too!
Hugs to all,
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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03-16-2012, 06:23 AM
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#27
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: Christine our Founder needs Cards & Prayers
Well said, Catherine!
We do have many newcomers here who are probably not aware of the genesis of this web site.
Waiting for another update from DDanielle - hopfully soon.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
Last edited by StephN; 03-19-2012 at 05:29 PM..
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03-19-2012, 05:29 PM
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#28
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: Christine our Founder needs Cards & Prayers
Bumping this up for news.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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03-20-2012, 09:48 PM
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#29
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Senior Member
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
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Re: Christine our Founder needs Cards & Prayers
I will pray for her and put a card.
At one time, she called me on a question and we spoke for a long time. Because of her call, I slept that night.
I feel so anxious for her and that she will recover. Her daughters are very young and don't deserve this, after her dad passing away quickly too. My prayers go to them as well for strength and guidance
Thank you Sheila. I know it's a week later but a card is on the way.
xoxo (maria)
ps. a word and warning. my dad who had lund and mestatis to the brain was placed on decadron. but the doctor did not give him any acid med and the decadron burned a hole in his stomach and its content went into the blood system and died within 7 days
Her daughters must be made aware of these side effects
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03-21-2012, 05:34 AM
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#30
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Senior Member
Join Date: Apr 2008
Location: WA State
Posts: 199
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Re: Christine our Founder needs Cards & Prayers
Prayers for Christine going up right now. Give her our best and hugs.
__________________
Cindy
L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008
Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!
I am calling this my pink journey
Follow my journey into the pink at my blog here
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03-21-2012, 05:41 AM
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#31
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Junior Member
Join Date: Jun 2011
Posts: 1
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Re: Christine our Founder needs Cards & Prayers
Hello, I am new to the site, I registered last June. I got online today to look for information, and read the post from Sheila. I will send a card to Christine, and keep her and family in prayer.
Sheila D.
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03-21-2012, 08:14 AM
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#32
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: Christine our Founder needs Cards & Prayers
"I'll drop her a card in the mail tomorrow...so awful for the poor Dear. I hope her family and friends are able to comfort her as well.
All my best Jackie
Lorraine"
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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03-21-2012, 04:52 PM
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#33
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Christine our Founder needs Cards & Prayers
I have'nt logged in here for a few days and was so shocked and saddened to see this post but thank you Sheila for letting us know and my personal thanks to Catherine for the mention too.
This site means the world to me and I still direct people here from Komen who are her2+ because I was helped so much by the ladies here and Joe too when I first joined up. I'm so sorry for Christine and will keep her and her family in my prayers and thoughts xxxx
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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03-21-2012, 05:05 PM
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#34
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Senior Member
Join Date: Sep 2005
Posts: 90
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Re: Christine our Founder needs Cards & Prayers
Thank you, Sheila and Danielle. Yes, Christine is way more than "special." Her inspiration and guidance have helped hundreds or thousands of us, and they continue as this great group continues.
Best of healing.
Carol
__________________
Carol
Lyons, CO
dx June '05 at age 55
Stage 1, 1.5cm
ER+++, PR--, HER2+++
Lumpectomy, A/C, T/H
Herceptin stopped due to low LVEF (35%)
2010: NED, but continuing major chemo brain injury
www.BeyondChemoBrain.com
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03-21-2012, 08:19 PM
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#35
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Senior Member
Join Date: Oct 2010
Posts: 229
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Re: Christine our Founder needs Cards & Prayers
Prayers for Christine! Se has a strong spirit and will receive a lot of love from here! Hope we get a update soon.
__________________
Diagnosed: Feb 2010 @ 46 yrs old
Invasive Ductual Carcinoma, left
2/28/10 Bilateral Mastectomy (tissue saving for future reconstruction)
3.2 cm 2/18 +lymph nodes
Stage 2b; E+/P+/Her2 +++
Nottingham score grade 2
Ki67 30%
3/2010 A/C 4 DD/2wks
5/2010 Herceptin/Taxotere 4D/3wks
8/2010 Herceptin until May 2011
Tamoxifin 20mg
9/2010 RAD 34 treatments
Pet scan Aug 2010 clear
Port removed July 2011
Bone scan, chest MRI 12/11 clear
Vaccine trial began Oct 2011
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03-27-2012, 04:49 AM
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#36
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Re: Christine our Founder needs Cards & Prayers
Hello Christine,
We are all thinking about you and praying for your quick recovery. you are as always an amazing inspiration to us all and without you and your dear departed husband, Joe, we would all be completely lost. What you and Joe have done to help us is a miracle and there is no way we can ever repay you except to offer our sincerest prayers for your swift recovery. you are in my heart always.
hugs and love
sarah
__________________
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03-27-2012, 05:26 PM
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#37
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Re: Christine our Founder needs Cards & Prayers
Christine, we are all pulling for you to come home soon and to have a full recovery. You have 2 wonderful daughters, and many, many friends on this website. Missed you at SABCS. Hugs and prayers, Joan
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03-28-2012, 10:03 AM
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#38
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Re: Christine our Founder needs Cards & Prayers
How's Christine doing?
Sarah
__________________
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03-29-2012, 01:05 PM
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#39
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Senior Member
Join Date: Nov 2009
Location: western ma
Posts: 280
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Re: Christine our Founder needs Cards & Prayers
thank you for letting us know! i am 3 weeks behind the news, but writing a note for her today to drop in the mail ASAP. - valerie
__________________
8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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03-30-2012, 06:52 AM
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#40
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Member
Join Date: Apr 2010
Posts: 17
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Re: Christine our Founder needs Cards & Prayers
Just a quick note to let you all know Mom's progress so far. First off, thank you SO MUCH for all of the cards! They're just the motivation that she needs and a reminder to her of all that she's accomplished, all of the lives that she has touched, and that there are many people out there rooting for her! She's still at the skilled nursing facility, and there's no set discharge date at this time. But she's been improving beautifully, and the nurses and PTs/OTs that see her everyday have no doubt that she'll be able to make a full recovery from her stroke. She's already improved so much in the past three weeks, and I know all of your involvement has played a big role in it. I read her her cards every single day, and they're all neatly hung up right by her bed so she can look over and be reminded that she's got some great HER2 sisters (and as of late, cheerleaders!) on her side. I'll let you all know when she's finally discharged!
Hugs,
Danielle
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