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10-23-2006, 05:59 AM
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#21
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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All the best to you. I hope it's just one of those routine problems we all have to deal with...like a gallstone. MJO
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10-23-2006, 10:16 AM
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#22
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Senior Member
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
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You are scared. and i understand. I also lost my dad recently and I'm going to see a bone oncologist this wednesday ( very scary).
Don't you just want to scream ENOUGH, STOP.
I also have a doc with little bedside touchy feely manners. I think they say cancer everyday to lots of folks, and so the sensitivity of the word is lost.
Good luck
MCS ( maria)
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10-23-2006, 11:25 AM
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#23
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Lisa,
You are so strong and so kind.....Just think very positive regarding your coming
surgery...
As far as the loss of your Dad....It is so difficult when we no longer have our
beloved parents. Both my parents have passed and each day I miss them,
but they remain in our hearts and are always with us. I hope this thought
will offer some ease at this challenging time for you.
Sending you much love.
Jean
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10-23-2006, 06:57 PM
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#24
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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The "H" word
"Hospitals" are not fun - having just been in one that is very good, but the discomfort of surgery of any kind is enough to make most of us afraid. But, to me you are afraid of what they might find in the worst case. I know this feeling very well.
We think we are tough after a long bout with this disease, but each new phase hits us just as hard as the last one.
When is the surgery date?? This week?? Let us know so that all of us will focus our prayers your way. The comfort will be in the KNOWING.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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10-23-2006, 09:13 PM
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#25
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Senior Member
Join Date: Sep 2005
Location: Atlanta
Posts: 87
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Lisa~
Praying for you & your family...and you don't "need to be a LOT tougher" - you've already proven that you are more than tough enough! Just hang in there...& know that whatever comes your way, you have the tools, support, courage, & everything else you need to get through it.
I hope you find a doc/surg that you respect and trust and LIKE!And it's not too much to ask for ALL of these things. I had my liver resection last December & I had/have complete respect & trust in my surgeon-for his skill, compassion & the respect he showed for ME and the difficult decisions I had to make.
I hope you find the same in your doc. (PS-my surgeon is a Surgical Onc. that specializes in cancers in the peritoneal cavity-liver,stomach,intestines, etc.I'd recommend that you look for someone with specific expertise.)
Prayers, Faith & Courage~
Jess
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10-23-2006, 09:53 PM
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#26
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Senior Member
Join Date: Jul 2005
Location: Ontario, Canada
Posts: 722
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Lisa, Thinking about you lots and stay positive.........You've been through lots but have always managed to stay on top. Just make sure they have a good reason for the surgery.
Love Al
__________________
Primary care-giver to and advocate for Linda, who passed away April 27, 2006.
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10-23-2006, 10:25 PM
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#27
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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Dear Lisa,
You are in my thoughts and I'm sending you positive energy, let us know when is the surgery, we will focus and be with you all the way.
Lots of love and hugs,
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10-24-2006, 04:37 AM
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#28
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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good luck Lisa
My prayers for you Lisa. I will keep watching the board for news of your surgery.
Keep the faith my friend.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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