HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 11-28-2011, 08:57 AM   #1
Joan M
Senior Member
 
Joan M's Avatar
 
Join Date: Oct 2007
Posts: 1,851
MBCN conference

I attended a one-day conference on metastatic breast cancer in Baltimore given by the Metastatic Breast Cancer Network at Johns Hopkins Hospital with hospital staff.

MBCN has been slowly posting videos of the presentations to it's website. Unfortunately, they haven't uploaded all of them yet. Here's the link to conference information (with a link to the agenda and already posted videos).

http://mbcn.org/special-events/categ...conference-md/

Interestingly, Johns Hopkins surgeon Kenso Hirose (seen at the podium in one of the pics) spoke about surgical solutions to limited metastatic disease, or otherwise oliogometastatic disease. His presentation and that of Stephen Baylin on cutting edge research were excellent, but the videos of their talks are still missing.

Besides the conference, here's an excellent overview of the literature on the statistics of local procedures for oligometastatic tumors. The article has other very interesting information:

http://www.nature.com/nrclinonc/jour...011.44.html#t1

Please know that I believe a cure for metastatic bc will come from a systemic approach and that I don't advocate willy nilly slicing and dicing of mets. However, I do feel that local procedures are an important option for mets survivors, under specific circumstances, and the these procedures may in select cases help to fend off metastatic disease until such time as we have a cure.

I'm due for follow-up scans in December. A brain MRI and CT scans of the chest, abdomen, and pelvis, and having the usual pre-scan anxiety. It's been four months since my last brain scan and 6 months since my last CT scans.

Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!

Last edited by Joan M; 11-28-2011 at 08:59 AM..
Joan M is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 08:33 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter