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Old 02-15-2010, 05:15 PM   #21
lkc Gumby
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Re: I heard from Vicki h & have an update.

prayers going out for you, dear Vicki, and Cap.
I am sorry to read this. I hope you are comfortable and know how much you mean to those on these boards.
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Linda

Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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Old 02-16-2010, 01:40 AM   #22
Lien
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Re: I heard from Vicki h & have an update.

Thanks Chelee, this is bad news, but we are so glad you told us.

Vicky, you have been a champ and I don't have words for the feelings I have about you right now. Sorrow, admiration, love, respect, grief, they don't even begin to describe my emotions.

But I know you will be ok. Even in these terrible times, you will be able to handle what's happening to you.

Cap, stay strong. And cherish every second you have together. They will have to last a lifetime. They will last a lifetime.

Love

Jacqueline
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Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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Old 02-16-2010, 07:15 AM   #23
Leslie304
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Re: I heard from Vicki h & have an update.

I am so incredibly sad to hear about Vickie's struggle. When I was first diagnosed less than a year ago and scanning these boards I was drawn to a post of Vickie's. She was an inspiration to me and helped me through some difficult days and I was so grateful to have her to talk to. Ever since then I have been corresponding with her and she has been a source of ongoing courage and support for me. I hadn't heard from her lately and was fearing for her and praying for her daily. She stopped emailing because she didn't want to worry me!!! (but I wanted so much to be able to comfort her) I hope now, in her time of need, that she can sense all of our prayers and they can reach across the miles and support her as she has supported so many of us. I hate cancer!! I'm sending love and courage and the strength to fight to all my sisters in this battle! Most of all, I pray for a cure!
Leslie
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2009
3-15 Age 48 -found lump
Dx 4/15/09: IBC Stage III w/extensive lymph node involvement HER2+++
5/1/09: Adria/Cytoxan for x 3-no response
6/12/09: Taxol/Herceptin for 1 tx -no response
6/24/09: added Carboplatin to T/H x 3 - no response
7/09 -added F5U -no response
7/29/09: Herceptin/Xeloda/Tykerb no response
8-18-09: 2nd opinion at MDA - IDC not IBC! First Onc disagrees,
BRCA 1/2 Neg
8-19-09: continue on Herceptin/Xeloda/Tykerb-slight response
9-24-09 MRM right breast 10x10 cm tumor! (Huge!) no necrosis - Got clear margins! A miracle!
13 of 18 nodes positive
11-2-09 -12/10 started radiation
12-10-2009 - Finished with radiation!!
2010
1/13/2010-Back on Xeloda x six cycles (have been on Tykerb/Herceptin all along)
4/4/14 - stopped Xeloda/Tykerb one cycle early. Liver enzymes high!
4/20/2010 Clear PET Scan!! NED
6/10/2010 - Finished Herceptin11/8 - Brain METS! CRAP! WBRT only option given. Four mets, separate locations in brain, no SRS
12/10 - Herceptin/Tykerb/Xeloda
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Old 02-16-2010, 07:43 AM   #24
Mary Anne in TX
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Re: I heard from Vicki h & have an update.

So precious and caring and such a blessing as an example and friend. You have enriched my life so very much and brought me so much joy as I experienced the love and effection your family shares! May each day bless you enormously and may you feel the love from each of us. God bless you, ma
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Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 02-16-2010, 11:22 AM   #25
Terri B
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Re: I heard from Vicki h & have an update.

Vickie,

I pray for your comfort and peace sister.
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46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
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Old 02-16-2010, 06:31 PM   #26
Jackie07
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Re: I heard from Vicki h & have an update.

Found this story posted by Vickie last year:

http://her2support.org/vbulletin/showthread.php?t=40796

She certainly has taught us how to 'dance in the rain'...
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 02-16-2010 at 06:33 PM..
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Old 02-19-2010, 10:24 AM   #27
juanita
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Re: I heard from Vicki h & have an update.

thanks for the update! will add an extra prayer for her!
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st 1, gr 3, er,pr-, her2 +,
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1 yr herceptin,
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Old 02-19-2010, 11:57 AM   #28
alicem
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Re: I heard from Vicki h & have an update.

I loved your poem, Vicki, the first time I read it and I love reading it again just now. Steph, thanks for the reminder.

Vicki, my love and prayers go out to you. I hope that your pain is easing & that you are finding some peace and comfort. You inspired me often this past year, thank you for that. Because of you, my life now is all about dancing in the rain.
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9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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Old 02-22-2010, 03:49 PM   #29
schoolteacher
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Re: I heard from Vicki h & have an update.

Vickie and Cap,

You and your family are in my prayers.

Amelia
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Old 02-22-2010, 04:01 PM   #30
Mary Anne in TX
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Re: I heard from Vicki h & have an update.

Hey Vickie Girl,
Sending you huge hugs and love today!
ma
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 02-22-2010, 04:24 PM   #31
Midwest Alice
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Re: I heard from Vicki h & have an update.

Hi Vickie, Thinking of you and sending love and hugs,

Alice
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04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!

1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."

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Old 02-24-2010, 08:30 AM   #32
Karen Wheel
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Re: I heard from Vicki h & have an update.

Geezzzz... I just saw this thread - and what a bummer. Thank you for sharing with us - and as usual she is worried about us and not her. WOW. We will all be thinking of her and praying for her.

And for Pam - gosh girl - you have been such an inspiration for me - I do think of you so often and am praying that your new treatment does start to kick into gear for you.

This disease is flipping the pits - I hate HER2! Well, cancer in general, but this bugger still makes my head spin. I have watched the Living Proof film about 4 times since I found it (in Italian even! - which I am making a copy of and giving to my Italian Dream Team of Oncologists) but I really enjoyed it and had new respect for those who have passed before us helping with the making of Herceptin. Even though Herceptin is our biggest bullet - it makes me realize how many of us with breast cancer are fighting this beast.

And, Pam - I too keep reading.... I am somehow connected to all of you - we are sisters and brothers in this fight - we all need each other, even if we feel we aren't winning.
Stay strong - Karen
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Karen Wheelhouse Age: 46
Facebook id: Karen Wheel
2-09 – Age 44 -Biopsy-Cancer
3-09 – Right Quadrantectomy. Clear margins.
3 lymph nodes taken - all clear
Tumor results: Stage 1, 1.5 cm, Her2 +++
Est positive 80% - Prog 10% - Ki67 postive 30%
4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH!
4-09 Started Herceptin & Chemo (9 weeks of Navelbine *)
* FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer!
8-09 - 30 RADS
9-09 - Said NO to hormone therapy
4-10 Finished Herceptin!!!!


7-10 PET Scan & other exams .... All clear! YIPPEE!!!!
11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED!

2-25-2011 --- 2 years from surgery and NED!!!!!!
7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]
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Old 02-24-2010, 10:52 AM   #33
lexigirl
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Re: I heard from Vicki h & have an update.

Dear Vickie and Cap,

Thinking of you both right now. Praying for peace and love to surround you.

Love,
Lexi
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Old 03-10-2010, 05:54 PM   #34
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Re: I heard from Vicki h & have an update.

please seee the new post under chelee and vickie.
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