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Old 04-07-2010, 08:16 AM   #1
whatz
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WestCoastGirl, where are you?

WestCoastGirl,
Haven't seen your post in a while. Last time you were concerned about a rash and recurrence. How are you faring?
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4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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Old 04-08-2010, 05:20 PM   #2
Shobha
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Re: WestCoastGirl, where are you?

yes. I am wondering about her too. Hopefully the rash was just a rash and it is resolved now.
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DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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Old 04-13-2010, 10:58 AM   #3
Westcoastgirl
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Re: WestCoastGirl, where are you?

I come here often to read the current research and see how all of you are doing but don't always post. From time to time I see that you ask about people that have not been here for a bit and think how lovely you all are for caring so much. Imagine my surprise when I saw Westcoastgirl, where are you? I am delighted to be here and saying all is well. The rash I asked about persists to this day but has reduced itself to a small area that appears to have turned from hives into eczema and the cream they finally gave me seems to be working so all is well with that. When the rash did not get bigger I realized it was not a recurrence, just a pesky rash but your input helped me in dealing with it. April 19 I will have my last Herceptin and then April 30 I will have my portacath removed. I am looking forward to that so that I can exercise without restrictions. Then I just continue on with Femera and Zometa. I know that many of us get to where we have "finished" the big treatments and it is what feels once again like a starting point. I try very hard not to let my mind go to recurrence but I know it will probably be a thought I entertain from time to time for the rest of my life, let's hope it is just a thought. I am going to give myself a break and will consider small implants in November, not sure if it will be done yet but considering. So thank you for your concern, makes me feel good. Carolyn
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12/17/08 biopsy after two 6 mos mammo recalls
12/30/08 diagnosed high grade IDC & DCIS
ER/PR +, Her2 (+++) post menopausal/age 57
1/15/09 double mastectomy/skin sparing; no evidence of vascular/lymphatic invasion, 8neg/8 nodes (tumor 8.0mm)
2/16/09 given portacath/removed 4/30/10
2/18/09 "surprise" 2.0mm tumor/positive borders~
completed 28 rads 10/09.
2/23/09 until 4/19/10~treatments every 3wks (4 Cytoxan + Adriamycin, 4 Taxol + Herceptin, 13 Herceptin alone)
8/09 osteoporosis diagnosis/Zometa 3 yrs of 1x/6 months
Chemo side effects; Deafness, kidney function loss
11/09 began Aromatase Inhibitor (Femara)/Feb2014, stopped Femara early/after 3 mos began Tamoxifen for 8 mos to complete 5 years
11/10 Reconstruction, directly to silicone implants
12/11 nipples by skin graft/Right breast size reduced

I have heard th
ere are troubles of more than one kind

Some come from ahead and some come from behind.
But I've bought a big bat. I'm all ready you see.
Now my troubles are going to have trouble with me!
Dr. Seuss
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Old 04-13-2010, 12:05 PM   #4
schoolteacher
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Re: WestCoastGirl, where are you?

Glad to hear from you Carolyn. I know you are excited about not having to take any more medicine.

Amelia
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Old 04-13-2010, 09:20 PM   #5
ElaineM
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Wink Re: WestCoastGirl, where are you?

I am glad you are doing well. I will tell you a little secret. I don't always log on either. I read posts and news, but I only log on when I have something to add, say or type, so you are not alone.
Oh well. My secret is out. Smile.
Take care.
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Last edited by ElaineM; 04-13-2010 at 09:21 PM.. Reason: addition
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Old 04-14-2010, 05:48 AM   #6
ammebarb
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Re: WestCoastGirl, where are you?

Carolyn, I'm so glad your rash is just a rash! It was good to hear that you are doing well. My dear sis is down to just Herceptin now and it is good for me to read of others who are a little farther along the treatment path. Wishing you well with your last Herceptin and removal of your port.

Barb A.
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Old 04-14-2010, 01:31 PM   #7
naturaleigh
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Re: WestCoastGirl, where are you?

Carolyn,

I too had a rash on my torso, hands and legs and went to the dermatolgist with the though of reccurance. He told me what I had was eczema. He also told me to put 1/2 cup of clorox in my bath water twice a week for two weeks and it should clear the rash. He said there has been studies showing babies with eczema taking a clorox bath and the results have been wonderful. I did it and it worked!! Just something else to try, because it might work for you too!!

So glad to hear from you
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Anita

er, pr-, Her2+++
Stage 2b, grade 3
negative nodes
4 rounds AC
3 months of weekly taxol
1 yr of Herceptin
Finish Herceptin May 2007
35 rounds of Radiation
Reconstruction completed Dec 2007
Implant replaced due to infection Mar 2008
4 Years NED!!!
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Old 04-15-2010, 09:33 AM   #8
Shobha
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Re: WestCoastGirl, where are you?

So happy to hear from you, Carolyn. Great to know the rash issue is almost gone.

Anita - Thanks for the clorox idea. My son used to have eczema as a baby and the heavy steroid creams was all that the doctors could suggest. This seems more natural.

-shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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