Tip Toe & Tex - revised schedule of mid-June
Need to know the whereabouts of our group so the passport can rejoin Tippy.
We have some requests for changes like going to the Lance Armstrong summit, but I don't have the exact dates to put in. Thus the below is very fluid from mid-June on.
Let's get some specific input from those interested in a visit. Don't let our mascots fall off the map.
2. Feb 15 - from Marlys to LAURIE (Ohio - for her end of treatment party)
3. End Feb to 10 March - Laurie to JONES (Mich.)
4. Mid March to 25 Mar - Jones to LILY (N. Carolina) - might as well keep them through Easter
5. Early to Mid April - Lily to STEPHN (Washington) Steph to take them to San Diego on April 11 for conference & fun with Joe and Christine!
6. Mid April - early May - StephN to MADUBOIS, who will take them from San Diego to Long Island on April 16, then send to BHutch in time for Denver.
7. End April to May 8 - Madubois to BHUTCH (Texas) for May 2 Denver Days of Caring.
8. May 8 to late May - Bhutch to KCHERUB (Georgia)
Schedule was kept to this point.
9. End of May to mid June - Kcherub to SASSY (Virginia)
Sassy is late getting them, so things change from here.
Need to hear from Krista and Sassy on this.
10. End June to JULY 10 - Sassy sends to JOANNE S (Michigan) Hope Joanne has a fun 4th of July for them!
Sassy may have to get them to Sheila for the Lance conference. You all work it out, OK?
11. Mid to late July - Joanne S to PINK GIRL (Canada - and where the whirlwind journey all began - happy homecoming!)
Joanne has had her hands full with her recovery, so getting them a bit later may be better for her. Let us know, OK?
The next three visits will get rearranged as suits everyone.
12. End July to Aug 10 - Pink Girl sends to BELIEVE51 (Rhode Island) for a revisit
13. Mid August to late August - Believe51 sends to ANDI (Florida), also for revisit with Andi and her cute pups.
14. Beginning Sept to mid Sept - Andi sends to KATHY IN TOKYO. This should be a VERY interesting time for the travelers.
Kathy would like her brother to bring them, but we need specific dates. And if that will mean she needs to send them to Canada afterwards. How are those plans progressing, Kathy??
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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