HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 06-22-2012, 07:23 PM   #1
Debbie L.
Senior Member
 
Debbie L.'s Avatar
 
Join Date: Jul 2006
Posts: 463
NBCC: Let's end breast cancer by 2020

Fran Visco's Op Ed in the Boston Globe:

Opinion
THE PODIUM
Let’s end breast cancer by 2020 By Fran Visco
JUNE 20, 2012

Man’s first steps on the moon, which we commemorate every July 20, were both an astonishing human achievement and an affirmation of our nation’s unique willingness to do great things. The seemingly impossible challenge President Kennedy issued in 1961 became breathtaking reality only 98 months later. It is time to reawaken this impulse and honor our heritage by committing to a goal no less ambitious or achievable — than the moon landing seemed half a century ago: ending breast cancer by 2020.

On one level, we have made great strides in attacking breast cancer. Pink ribbons abound. Countless thousands of women and men — walk and run to raise money for a cure. Awareness is near universal. From this perspective, it’s easy to believe that breast cancer is in retreat.

But this seeming success has masked a medical failure. The United States spends well more than $1 billion a year on breast cancer research, and we have little to show for it in terms of the outcomes that matter most. While mortality rates have been gradually declining, they are nowhere near commensurate with our investment in dollars and attention to the issue.

The numbers tell an important story. Twenty years ago, 119 American women died every day from the disease; today, it’s 110. Nearly 300,000 women in this country will be diagnosed with the disease this year. About 40,000 women will die. That number is close to 500,000 globally. If this is victory, no one should want to contemplate defeat.

We have learned a great deal about the enemy during this long, drawn out war. Our understanding of the biology, pathology and genetics of breast cancer has increased dramatically. And, our capacity to gather, synthesize and analyze data is beyond anything even conceivable 40 years ago. The problem is that we are not applying our forces intelligently.

The shortfall is not in scientific knowledge, but in organizational and systemic dysfunction that discourages bold new ideas in favor of safe research and predictable results. We have created an infrastructure intent on keeping itself going, with no real focus on the true goal. As a result, we get slightly better treatments, slightly better surgeries and slightly better radiation regimes – benefits, to be sure, but no end to the disease itself.

It is time to leverage the knowledge we’ve gained and allocate our resources to create a collaborative effort to achieve two overarching goals: preventing people from getting breast cancer in the first place and preventing those who get it from dying of it.

The process has already begun and is yielding some promising results. The National Breast Cancer Coalition has created the Artemis Project® — named for Apollo’s sister — to implement strategic plans in these areas starting with a collaboration to develop preventive vaccines. Under NBCC leadership, some of the world’s leading breast cancer researchers, as well as a cadre of multi-disciplinary experts, are working in parallel to tackle the tasks necessary to prepare vaccines for clinical trials in five years.

As breast cancer survivors and NBCC advocates, we have given up hope and taken action. We have but one agenda: to end breast cancer. No one is minimizing the difficulty of the task ahead. But it is because the goal is so big and important that nothing less than a national commitment of our energies and skills is required.

Those who think this is impossible should look to the sky. Yesterday’s science fiction is today’s science. We can end breast cancer if we summon the will to do so. Decades of investment have given us the tools and refined the technology. We now know much and can learn the rest in time to meet our goal. Failure cannot be an option.

Fran Visco is president of the National Breast Cancer Coalition.
Debbie L. is offline   Reply With Quote
Old 06-22-2012, 08:52 PM   #2
Mtngrl
Senior Member
 
Mtngrl's Avatar
 
Join Date: May 2011
Location: Denver, CO
Posts: 1,427
Re: NBCC: Let's end breast cancer by 2020

Thank you, Debbie.
__________________
Amy
_____________________________
4/19/11 Diagnosed invasive ductal carcinoma in left breast; 2.3 cm tumor, 1 axillary lymph node, weakly ER+, HER2+++
4/29/11 CT scan shows suspicious lesions on liver and lungs
5/17/11 liver biopsy
5/24/11 liver met confirmed--Stage IV at diagnosis
5/27/11 Begin weekly Taxol & Herceptin for 3 months (standard of care at the time of my DX)
7/18/11 Switch to weekly Abraxane & Herceptin due to Taxol allergy
8/29/11 CT scan shows no new lesions & old lesions shrinking
9/27/11 Finish Abraxane. Start Herceptin every 3 weeks. Begin taking Arimidex
10/17/11--Brain MRI--No Brain mets
12/5/11 PET scan--Almost NED
5/15/12 PET scan shows progression-breast/chest/spine (one vertebra)
5/22/12 Stop taking Arimidex; stay on Herceptin
6/11/12 Started Tykerb and Herceptin on clinical trial (w/no chemo)
9/24/12 CT scan--No new mets. Everything stable.
3/11/13 CT Scan--two small new possible mets and odd looking area in left lung getting larger.
4/2/13--Biopsy of suspicious area in lower left lung. Mets to lung confirmed.
4/30/13 Begin Kadcyla/TDM-1
8/16/13 PET scan "mixed," with some areas of increased uptake, but also some definite improvement, so I'll stay on TDM-1/Kadcyla.
11/11/13 Finally get hormone receptor results from lung biopsy of 4/2/13. My cancer is no longer ER positive.
11/13/13 PET scan mixed results again. We're calling it "stable." Problems breathing on exertion.
2/18/14 PET scan shows a new lesion and newly active lymph node in chest, other progression. Bye bye TDM-1.
2/28/14 Begin Herceptin/Perjeta every 3 weeks.
6/8/14 PET "mixed," with no new lesions, and everything but lower lungs improving. My breathing is better.
8/18/14 PET "mixed" again. Upper lungs & one spine met stable, lower lungs less FDG avid, original tumor more avid, one lymph node in mediastinum more avid.
9/1/14 Begin taking Xeloda one week on, one week off. Will also stay on Herceptin and Perjeta every three weeks.
12/11/14 PET Scan--no new lesions, and everything looks better than it did.
3/20/15 PET Scan--no new lesions, but lower lung lesions larger and a bit more avid.
4/13/15 Increasing Xeloda dose to 10 days on, one week off.
7/1/15 Scan "mixed" again, but suggests continuing progression. Stop Xeloda. Substitute Abraxane every 3 weeks starting 7/13.
10/28/15 PET scan shows dramatic improvement everywhere. All lesions except lower lungs have resolved; lower lungs noticeably improved.
12/18/15 Last Abraxane. Continue on Herceptin and Perjeta alone beginning 1/8/16.
1/27/16 PET scan shows cancer is stable.
5/11/16 PET scan shows uptake in some areas that were resolved on the last two scans.
6/3/16 Begin Kadcyla and Tykerb combination
6/5 - 6/23 Horrible diarrhea from K&T together. Got pneumonia.
7/15/16 Begin Kadcyla only every 3 weeks.
9/6/16 Begin radiation therapy on right lung lesion that caused the pneumonia.
10/3/16 Last of 12 radiation treatments to right lung.
11/4/16 Huffing and puffing, low O2, high heart rate, on tiniest bit of exertion. Diagnosed as radiation pneumonitis. Treated with Prednisone.
11/11/16 PET scan shows significant improvement to radiated part of right lung BUT a bunch of new lung lesions, and the bone met is getting worse.
11/22/16 Begin Eribulin and Herceptin. H every 3 weeks. E two weeks on, one week off.
3/6/17 Scan shows progression in lungs. Bone met a little better.
3/23/17 Lung biopsy. Tumor sampled is ER-, PR+ (5%), HER2+++. Getting Herceptin and Perjeta as a maintenance treatment.
5/31/17 Port placement
6/1/17 Start Navelbine & Tykerb
Mtngrl is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 05:48 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter