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01-08-2012, 05:39 PM
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#1
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Senior Member
Join Date: Oct 2011
Location: Geelong, Australia
Posts: 250
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Courtneys latest Caringbridge message
Resting
Hey team – its Courtney again. Just a quick note to let you know that all is going okay here. I continue to receive radiation treatments on an almost daily basis and the main side effect from this seems to be fatigue. This is primarily why your voicemails, emails, letters, and thoughtful packages have all gone unacknowledged. Not because we aw ungrateful, but because we (at least me) are so fatigued these days. I hope you will all understand and know that big thank yous and hugs are coming your way.
With love,
Courtney (and Jay)
__________________
Dx May 27 2011, age 43
Stage 1V 3.6cm breast lump, spot on lungs, nodes chest + neck
HER2+ ER/PR-
Abraxane weekly - 16 weeks
Herceptin every third week
September 26 2011 N.E.D!
Herceptin ongoing
8th Dec 2011 Brain MRI - clear
20th Dec 2011 bone/cat scan clear still NED
April 2012 scans show axillary node lump - ? what to do...
June 2012 Axillary node dissection 1/11 nodes affected, a wide local excision shows DCIS. Now what to do again? Watch and scan 3 monthly
April 2013, two spots in nodes to chest wall, start TDM1 (Kadcycla) as part of clinical trial
July 2013 stable
Oct 2013 progression off TDM-1 (Kadcycla)
Nov 2013 radiation to lymph nodes in sternum
Dec 2013. Mastectomy right side, pathology shows tumour was HER-2 negative, no wonder TDM-1 (Kadcycla) didn’t work!
April 2014 NED. On Herceptin only
August 2014 NED. On Herceptin only
March 2015. NED. On Herceptin only
September 2015 NED on Herceptin only
March 2016. Pulmonary embolism, Clexane injections daily forever. Still NED On Herceptin only
Nov 2016. Bone Mets in ribs - Radiation. Don’t know if bone Mets are er-/pr-/HER2+ or triple negative.
Can’t give self injections on to tablets (Xarelto) for blood clots.
2017 NED - On Herceptin only
2018 NED - On Herceptin only
2019 NED - On Herceptin only
2020 NED - On Herceptin only
2021 NED - On Herceptin only
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01-08-2012, 05:42 PM
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#2
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Re: Courtneys latest Caringbridge message
Hugs to you and keep resting.
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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01-09-2012, 06:21 AM
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#3
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Senior Member
Join Date: May 2010
Location: Ireland
Posts: 271
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Re: Courtneys latest Caringbridge message
Great to hear from you Courtney. Thinking of you. Hope you get lots of rest.
__________________
Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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01-09-2012, 10:30 AM
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#4
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: Courtneys latest Caringbridge message
Thanks for the update. I checked this morning to see if anything had been posted.
Amelia
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01-09-2012, 03:03 PM
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#5
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Senior Member
Join Date: Feb 2006
Posts: 437
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Re: Courtneys latest Caringbridge message
keeping you and yours in my prayers that once your Rad Tx is over you'll be back to you!
__________________
Linda
Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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01-09-2012, 05:28 PM
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#6
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Senior Member
Join Date: Oct 2010
Location: Perth Australia
Posts: 45
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Re: Courtneys latest Caringbridge message
Sending my love Courtney from Perth.
Diane
xx
__________________
adenocarcinoma ductal grade 3 DX Oct 2001 2mm grade111. Level one two out of four lymph nodes positive. ER strongly positive PR strongly positive HER2 staus not known. Chemo FEC six courses Radiotherapy course. Arimidex 5 years. Recurrence April 09 Liver, Lungs & Bones May 09 Liver Biopsy ER status changed to negative PR status changed to negative. HER2 now+++May09 Docetaxol 6 cycles Herceptin and Zometa added.Disease stable for 17 months Scans Jan 2011 one of the tumours in right lung has grown significantly scan due in April 2011 to check lung tumour. Current treatment Herceptin & Zometa February 2011 unwell so hospital. DX inoperable Brain mass 11x8mmx12mm left of midline. from lungs and heart March 2011 Gamma knife treatment to brain met.March2011Tykerb/Xeloda/Zometa
March 2011 Severe allergic reation to Tykerb July 2011 New met in lymph glandineck.July2011Navaline/Herceptin/Zometa
August 2011 Necrosis in brain
Herceptin/Zometa Oct 2011 considering Avastin for Necrosis
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01-11-2012, 10:09 PM
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#7
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Guest
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Re: Courtneys latest Caringbridge message
{{{{{"bump"}}}}}
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01-11-2012, 10:22 PM
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#8
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Senior Member
Join Date: Apr 2011
Location: Michigan
Posts: 1,173
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Re: Courtneys latest Caringbridge message
Gods blessings to you Courtney. You are in my prayers. What a fighter you are!Your Friend,Nancy
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01-12-2012, 01:50 AM
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#9
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Senior Member
Join Date: Dec 2011
Posts: 585
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Re: Courtneys latest Caringbridge message
Sending lots of love and many prayers to Courtney and her family. ((hugs)) to you all...keep the faith and stay strong.
__________________
Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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01-15-2012, 01:25 PM
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#10
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: Courtneys latest Caringbridge message
Jay's update today on Courtney's progress.....it's GOOD NEWS!
"Courtney is improving. I quote our doctors visits on Wednesday and Thursday who note that "the latest chemo is definitely working" and that the her disease is "much better." Courtney's taking half as many pain meds as she was around Christmas, and is making great progress.
We have a long road to full recovery, however. Those of you who have visited us over the past few weeks noticed that Courtney is really fatigued from the radiation (which ended last Wednesday), and very wobbly due to all the drugs. We expect a few more weeks of fatigue and then things should slowly improve. But what keeps us going through this hard period if knowing that it IS working - this week, we finally received some good news that we are on the right path.
I didn't want another day to go by without letting you all know of our good news. And... I wanted everyone to know about the incredible role that you all play in this supporting Courtney and me. In the past 1 week , we've received dozens of letters/cards, about 6 flower delivers, 5 meals (either cooked or us or dropped off at our house), 4 pints of ice cream, about 24 visitors, several warm items of clothing, 1 bottle of scotch (for me, obviously), and so much assorted help and support that I'm failing to remember everything. But it's working. "
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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01-15-2012, 01:42 PM
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#11
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Re: Courtneys latest Caringbridge message
Hi Courtney and Jay,
Please note that you are both an inspiration to me. I know the road with brain mets is not easy although I did not have the same issues as you. My thoughts and best wishes continue to be with you. I hope that it will not be long before you are feeling better.
Kind regards,
Barbara H.
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01-15-2012, 07:51 PM
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#12
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Senior Member
Join Date: Jul 2011
Location: Melbourne, Australia
Posts: 432
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Re: Courtneys latest Caringbridge message
I am so pleased to hear that you have some good news - wishing you the very best Courtney for your recovery from the latest treatment.
__________________
Amanda xx
40 year old Mum to three gorgeous kids - son 5 and daughters 8 and 11
Wife to my wonderfully supportive husband of 17 years!
22 February 2011 - Diagnosed Early Breast Cancer IDBC Stage2b (ER/PR -ve, Her2+ve +++) - 38 years old
(L) skin sparing mastectomy with tissue expander, axilla clearance (2/14 affected) clear margins.
Fec*3, Taxotere and herceptin*2 - stopped due to secondary diagnosis
June 24 2011 Stage IV - Skin met, axilla node, multiple lung lesions
Bolero3 trial - Navelbine, Hereptin weekly, daily Everolimus/Placebo
February 2012 - July 2012 Tykerb and Xeloda - skin mets resolved, Lungs initially dramatically reduced but growing again
August 2012 (turn 40!) tykerb and herceptin (denied compassionate use of TDM1) while holidaying in Italy!
September 2012 - January 2013 TDM1 as part of the Th3resa trial - lymph nodes resolved, lungs slowly progressing.
January 2013 - herceptin, carboplatin and Perjeta (compassionate access)
April 2013 - Some progression in lungs and lymph nodes - Abraxane, Herceptin and Perjeta
July 2013 - mixed response - dramatic reduction of most lung disease, progression of smaller lung nodules and cervical and hilar nodes - ? Add avastin.
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01-15-2012, 08:44 PM
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#13
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Re: Courtneys latest Caringbridge message
Glad that you're able to write and praying that you'll have less fatigue soon and back to taking all those great trips with Jay! Many hugs, Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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01-15-2012, 08:52 PM
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#14
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Courtneys latest Caringbridge message
I am so happy the chemo is working. Don't worry about us. We know you appreciate everyone's efforts on your behalf. Get lots of rest.
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01-17-2012, 07:46 AM
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#15
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: Courtneys latest Caringbridge message
Jay,
Thank you for the update. Glad to hear the chemo is working.
Amelia
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01-17-2012, 06:35 PM
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#16
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Senior Member
Join Date: Oct 2009
Posts: 84
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Re: Courtneys latest Caringbridge message
Hi Courtney! Joyce here. So happy to hear you are doing well! If Jay gets time ask him to send me your email address as my account was compromised and I can't get my contacts. I'd like to update you on Pam's situation. My new email is Jeldance43@Yahoo.com. I think and pray for you often. Keep up the good fight m'friend.
Love
Joyce |
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