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Trish Has Her Wings

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01-17-2012, 12:00 AM	#21
KsGal Senior Member Join Date: Dec 2011 Posts: 585	Re: Trish Has Her Wings Im sorry I did not get the chance to meet Trish here. Its unspeakably horrible that this disease steals these wonderful people away. Im sure sending lots of prayer and positive energy to her family and friends... __________________ Diagnosed in October 2011 Stage IV with metastasis to liver. January 2012 after double mastectomy, started taxotere, carboplatin and herceptin. Clear. December 2012 was diagnosed with five brain mets, and had whole brain radiation. Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas Clear/NED April 2015 remain NED

01-17-2012, 12:55 AM	#22
Pray Senior Member Join Date: Apr 2011 Location: Michigan Posts: 1,173	Re: Trish Has Her Wings I just can't belive it!

01-17-2012, 07:33 AM	#23
schoolteacher Senior Member Join Date: Feb 2008 Location: Georgia Posts: 1,486	Re: Trish Has Her Wings I am truly sorry to hear this. Trish's family is in my prayers. Amelia

01-17-2012, 07:38 PM	#24
Bill Senior Member Join Date: Nov 2007 Location: Connecticut Posts: 2,077	Re: Trish Has Her Wings My thoughts and prayers go out to the family. __________________ For Nicola

01-18-2012, 02:43 PM	#25
norkdo Senior Member Join Date: Jul 2011 Location: ottawa canada Posts: 367	Re: Trish Has Her Wings So sorry to hear this. My prayers for her and her family. Nora __________________ fall 2008: mammo of rt breast worrisome so am asked to redo mammo and have ultrasound of rt breast.I delay it til january 2009 and the results are "no cancer in rt breast. phew." found plum sized lump in right breast the day before my dad died: April 17th 2011. saw it in mirror, while i was wearing a top, examining my figure after losing 10 lbs on dr. bernstein diet. diagnosed may 10 2011 mast/lymphectomy: june 7 2011, 5/20 cancerous nodes. stage 3a before radiation oncologist during our first mtg on july 15th says he found cancer on the lymph node of my breast bone. Now stage 3b. her2+++, EN-, PN-. Rt brst tumors:3 at onset, 4.5 cm was the big one chemos: 3fec's followed by 3 taxotere, total of 18 wks chemo. sept: halfway thru chemo the mastectomy scar decides to open and ooze pus. (not healed before chemo) eventually with canasten powder sent by friend in ny (illegal in canada) it heals. radiations:although scheduled to begin 25 january 2012, I am so terrified by it (rads cause other cancers) I don't start til february, miss a bunch, reschedule them all and finally finish 35 rads mid april. reason for 7 extra atop the 28 scheduled is that when i first met my rads oncologist he said he saw a tumor on the lymph node of my breastbone. extra 7 are special kind of beam used for that lymphnode. rads onc tells me nobody ever took so long to do rads so he cannot speak for effectiveness. trials had been done only on consecutive days so......we'll see..... 10 mos of herceptin started 6 wks into chemo. canadian onc says 10 mos is just as effective as the full yr recommended by dr. slamon......so we'll see..completed july 2012. Sept 18 2012: reconstruction and 3 drains. fails. i wear antibiotic pouch on my job for two months and have 60 consecutive days visiting a nursing centre where they apply burn victims' silver paper and clean the oozing infection daily. silicone leaks out daily. plastic surgeon in caribbean. emergency dept wont remove "his" work. He finally appears and orders me in into an emergency removal of implant. I make him promise no drains and I get my way. No infection as a result. Chest looks like a map of Brazil. Had a perfectly good left breast on Sept 17th but surgeon wanted to "save another woman an operation" ? so he had crashed two operations together on my left breast, foregoing the intermediary operation where you install an expander. the first surgeon a year earlier had flat out refused to waste five hours on his feet taking both boobs. flat out refusal. between the canadian health system saving money and both these asses, I got screwed. who knows when i can next get enough time off work (i work for myself and have no substitute when my husband is on contract) to get boobs again. arrrgh. I have a blog where I document this trip and vent. www.nora'scancerblog.blogspot.com . I stopped the blog before radiation. I think the steroids made me more angry and depressed and i just hated reading it anymore

01-18-2012, 09:42 PM	#26
Jean Senior Member Join Date: Oct 2005 Location: New Jersey Posts: 3,154	Re: Trish Has Her Wings This is such sad news. Trish will be missed greatly. A very special lady and friend to many. jean __________________ Stage 1, Grade 1, 3/30/05 Lumpectomy 4/15/05 - 6MM IDC Node Neg. (Sentinel node) ER+ 90% / PR-, Her2+++ by FISH Ki-67 40% Arimidex 5/05 Radiation 32 trt, 5/30/05 Oncotype DX test 4/17/06, 31% high risk TOPO 11 neg. 4/06 Stopped Arimidex 5/06 TCH 5/06, 6 treatments Herceptin 5/06 - for 1 yr. 9/06 Completed chemo Started Femara Sept. 2006

01-24-2012, 07:44 AM	#27
Sheila Senior Member Join Date: Aug 2003 Location: Morris, IL Posts: 3,507	Re: Trish Has Her Wings Prayers and Condolence sent to Trish's family...I am so sorry to read this, we have so many angels looking down on us~~~ __________________ "Be kinder than necessary, for everyone you meet is fighting some kind of battle." Hugs & Blessings Sheila Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications) Core Biopsy 2/22/02 L. Mastectomy 2/25/2002 Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg 6/2003 Reconstruction W/ Tissue Expander, Silicone Implant 9/2003 Stage IV with Mets to Supraclavicular nodes 9/2003 Began Herceptin every 3 weeks 3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes 3/2007 Added back the Xeloda with Herceptin for continued mets to nodes 5/2007 Taken Off Xeloda, no longer working 6/14/07 Taxol/Herceptin/Avastin 3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee 5/29 2008 Back on Taxol w Herceptin q 2 weeks 4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve 5/2009 Begin Rx with Navelbine/Herceptin 11/09 Progression on Navelbine Fought for and started Tykerb/Herceptin...nodes are melting!!!!! 2/2010 Back to Avastin/Herceptin 5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate Pericardial Window Surgery to Drain Pericardial Effusion 7/2010 Back to walking a mile a day...YEAH!!!! 9/2010 Nodes are back with a vengence in neck Qualified for TDM-1 EAP 10/6/10 Begin my miracle drug, TDM-1 Mixed response, shrinking internal nodes, progression skin mets after 3 treatments 12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments 2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!! 7/5/11 begin Gemzar /Herceptin for node progression 2/8/2012 Gemzar stopped, Continue Herceptin 2/20/2012 Begin Tomo Radiation to Neck Nodes 2/21/2012 I CELEBRATE 10 YEARS 5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression 6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin

01-24-2012, 02:10 PM	#28
CoolBreeze Senior Member Join Date: Dec 2009 Posts: 562	Re: Trish Has Her Wings May she rest in peace and her family find comfort. __________________ http://butdoctorihatepink.com 08/17/09 Dx'd. Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS HER2+ ER+/PR- Grade 3, Node Negative 10/20/2009: Right mastectomy, reconstruction with TE 12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy 03/31/2010: Finished chemo 05/01/2010: Began tamoxifen, the worst drug ever 11/18/2010: Reconstruction completed 12/02/2010: Finished herceptin 05/21/2011: Liver Mets. Quit Tamoxifen 06/22/2011: Navelbine/Zometa/Herceptin 10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure! 11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years" 03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa 10/10/2012: Progression continues, started Halaven, along with herceptin and zometa. 01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa 03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta. 04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success! 05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo. 06/07/2013: Fiducial placement for SBRT 07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone 07/25/2013: SBRT (gamma knife) begins 08/01/2013: SBRT completed 08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa 06/18/2014: *** NED!!!!*** continuing with Perjeta, Herceptin, Zometa 01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly. 11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted. 5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean. I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.

01-31-2012, 06:00 PM	#29
flynny Senior Member Join Date: Jul 2008 Location: New Boston, NH Posts: 275	Re: Trish Has Her Wings I haven't been on in awhile and I was wondering about Trish. It makes me so sad. I pray for her family and feel blessed to have known such an amazing fighter!! __________________ -Sarah- Jan '07 felt lump (PCP "thought" it was a cyst) Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E) Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008) 2/1/08: Biopsy Dx: DCIS (age 34) 2/22/08: Surgery R-side Mast 2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm 2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm) Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++ 5/5 nodes NEG; Clear Margins Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08 TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08 Herceptin 9 mos (every 3 weeks) finished 6/8/09 BRCA 1/2 NEG Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo

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