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Old 01-28-2012, 04:46 AM   #1
Lani
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Thumbs up Calif legislature considering bill 2 reqre insurance cos. 2 pay 4 oral cancertherapy

SACRAMENTO, Calif. (KGO) -- Some cancer patients, even those with good insurance, are paying thousands of dollars a month for treatment because they're taking pills to fight their disease, instead of regular chemo. And some lawmakers in Sacramento say it's time to change that.

The American Cancer Society says cancer is the second-leading cause of death in California. There's a push for better access to treatment, by including oral chemo, in health plans.

"I've had leukemia twice... and it's very, very difficult to experience that," said Assm. Paul Cook, R-Yucaipa.

"I know what it means to spend a day in a room with a loved one going through chemo," said Assm. Gil Cedillo, D-Los Angeles.

No political party is immune to cancer , so a proposal to provide greater access to treatment won bipartisan support in the Assembly. AB1000 forces health insurance companies to cover anti-cancer pills like traditional chemotherapy. Some plans don't, requiring patients to trek to a hospital or pay out of pocket to stay home for treatment.

"They just couldn't afford it. In fact, these costs could average up to $10,000 per month in order to take their medication," said Assm. Henry Perea, D-Fresno.

Perea says expanding such access would especially benefit women greatly because a number of anti-cancer pills are used for treating breast cancer. In all, more than three dozen medications have FDA approval for different types of cancer. The Central Valley Democrat just wants insurance companies to catch up with science.

Opponents still put up a fight. Without knowing how much the federal health care reform will effect medical costs, critics say they would rather wait.

"If we continue to put mandates on insurers, the people who are paying those premiums are going to pay for it," said Assm. Dan Logue, D-Assm., the Health Committee vice chair.

Shelley Thomas lost her husband to leukemia just 18 months ago. She knows he would have rather taken oral chemo over endless trips to the hospital.

"He wanted to be at home. He knew it was not a very good diagnosis, although he was a fighter. He would have been able to spend more time with his children and me at home," said Thomas.

The bill now heads to the Senate. At least a dozen states, including those with Republican governors, have similar laws in place.

(Copyright ©2012 KGO-TV/DT. All Rights Reserved.)
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Old 01-28-2012, 06:32 AM   #2
karen z
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Re: Calif legislature considering bill 2 reqre insurance cos. 2 pay 4 oral cancerther

"Opponents still put up a fight". OMG.
But it sounds like things are moving in CA.
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Old 01-29-2012, 01:54 PM   #3
DeenaH
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Re: Calif legislature considering bill 2 reqre insurance cos. 2 pay 4 oral cancerther

I wonder how fast these things move along? I am in a major battle over insurance for this exact same thing right now. We changed insurance in November and were told that my Tykerb would be covered as a non-formulary (which it had been with Blue Cross). After the policy was in effect and I tried to order my Tykerb (that I have been on for a year), I found out it is on an extended drug list will cost me 10% out of pocket, and will not apply to my maximum out of pocket deductible for the year. I am outraged. Had I known that, we would have chosen to keep our old policy in spite of an increasing premium. Also, knowing that about the Tykerb would have put up a red flag as far as other drugs I knew I might be on in the future. Right now I am on Xeloda/Tykerb/Herceptin. The Xeloda costs me $315/mo and Tykerb costs me $350/mo. I pay a one time $1500 deductable for the Herceptin and it is covered at 100% for the rest of the year. It makes no sense. I don't qualify for any of the help programs because my husband makes "too much money". We have a huge mortgage due to a bad investment in real estate right before the market crashed. We owe more than our house is worth, so if we sold, we would be homeless. We have 2 little kids. Kids are expensive. We don't drive fancy cars, we shop at Costco, we rarely go on vacations. We can't afford to because of the cost of my medications and medical bills. I know there are others who are much worse off than I am, but it still isn't fair. Sorry to vent! This is such a hot button with me!
__________________
March 2010: Diagnosed with Stage IIIC IDC with axillary, mammary and suplaclavicular node involvement. ER/PR -, HER2+++. 7cm tumor in right breast.
April 2010: Started neoadjuvent chemo. 4 DD A/C every 2 weeks, 4 DD Taxotere every 3 weeks with Herceptin weekly.
August 2010: Finished chemo!
August 20, 2010: PET/CT showed no cancer in any nodes, and only a little uptake to the breast.
September 9, 2010: Bilateral mastectomy with immediate reconstruction with implants and Alloderm.
September 16, 2010: Pathology report showed 18/51 positive axillary nodes, 3.2cm tumor. Granual sized cancer found in the fatty tissue between levels 1 and 2.
October 19, 2010: CT showed several spots on lungs and 1 spot on liver. Liver spot is 2mm, lung spots range from 2mm to 4mm. We don't know if they are cancer or not.
12/15/10: Brain MRI clear
1/7/11: PET/CT
1/13/11: Recurrence in lungs. Start Tykerb
5/13/11: Progression in lungs
6/3/11: Lung surgery to get tumors for chemosensitivity testing.
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Old 01-29-2012, 03:26 PM   #4
Joan M
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Re: Calif legislature considering bill 2 reqre insurance cos. 2 pay 4 oral cancerther

Lani,

Good to hear this about Calif. I was in Albany, New York, the capitol, on advocacy day last spring with several other bc advocates to speak with legislators about the same issue.

Joan
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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