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11-21-2013, 07:21 AM
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#21
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Senior Member
Join Date: Sep 2011
Location: Mt. Prospect, IL
Posts: 177
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Re: NEDenise Has Died
Absolutely in shock. I haven't been on this board in while and received an IM this morning giving me the news. Denise ways have me hope (and a smile) with her positive upbeat attitude. This is just terrible. I am so saddened by this news. Rest in peace dear sweet friend and thank you for spreading your smile across this board.
xxxxx
Kelly
__________________
10/01/10 - Dx at age 44. Found lump after miscarrying & was told it was "probably a clogged milk duct" not so much:
stage II - invasive ductal carcinoma ER/PR+ HER2+
10/01/10 - BRCA test - Negative
11/3/10 -2.5cm tumor removed via lumpectomy, clear margins. sentinal node biopsy - nodes clear!
12/2/10 - port placement
12/2/10 to 3/17/11 - 6 rounds of taxotere, carboplatin & herceptin every 3rd week.
04/20/11 - 6/6/11 - 33 rounds of radiation
4/6/11 to 11/2/11 - 11 additional rounds of herceptin every 3rd week
7/15/11 - port removal
7/5/11 started my 5 year journey on Tamoxifen
9/4/11 -1 yr Chest MRI - CLEAN!!!!
9/5/12 -2 yr Chest MRI - CLEAN!!!!
8/29/12 - Started spotting after being in chemopause 1.5 years. Ultra sound detected 6cm ovary mass & very thick lining. YIKES! Taken off Tamoxifen
9/6/12 - Full abdominal hysterectomy. Pathology report came back clean... thank you baby Jesus!!
9/28/12 - Started Anastrozole
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11-21-2013, 08:36 AM
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#22
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Senior Member
Join Date: May 2011
Location: El Paso ,Tx
Posts: 436
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Re: NEDenise Has Died
She will be missed greatly!
__________________
 dx: DCIS 6/8/10, HER 2+ 7/26/10; Stage I Age 41
Double mast w reconstruction
6 TCH w 1yr herceptin
Tamox.
25 radiation tx
Removal of expander on L due to infection. Tried to save it had 3 bouts of antibiotics and went to see plastic surgeon 2-3x wk to get drained. Saving it was my idea not his. But lost it anyway.
Reconstruction set for December 21st,2011
Finished chemo 12/2010
Finished Herceptin 8/26/11
Reconstruction 12/21/11
Expanders exchanged for silicon 3/19/12
Nipple reconstruction 5/18/12
Nipple tatooing- 7/9/12- All done yay!
11/22/12-Went back to get scar tissue stretched to even the outside of breast, didn't work due to it being radiated skin.
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11-21-2013, 09:29 AM
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#23
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: NEDenise Has Died
About a week before Denise posted her "Danger, Danger" post, I had awoken in the night with such a feeling of foreboding that our Denise was going to be taken from us. I prayed harder, warred longer, and then despaired when she posted her news in her usual creative, ever upbeat manner. For me, it was a fearsome confirmation of what I had felt that night and I have prayed and beseeched the Almighty to spare her and spare all of us, who need her beautiful soul here on earth, her loss. This morning, again in the night, I awoke and my first thought was for Denise and was spurred to pray until I fell back into a restless sleep.
Denise was a brave, inspiring, compassionate woman who gave to all of us by her marvelous, heartfelt, brilliant, and oh so humorous posts. She brought us laughter with her many witty "cancerizms" and reminded me in my mind's eye of Carol Burnett, another brave and funny lady.
I will miss Denise for as long as I inhabit this earth. I always say that there are 3 famous women whom I want to meet on the other side: Golda Meir, Margaret Thatcher, and Corrie Ten Boom. Now a fourth famous (to all of us, right?) woman has joined that honored group. I now long to meet a healthy, shining Denise too! Can you imagine the gab session going on up there with Denise, Brenda, Sheila, Amanda, Tricia, Jackie, Pam, Courtney, and so many others from our Her2 family? May none of us join the party for many, many years to come!
Condolences to all of us who now mourn her passing: her beloved family and students, and us--her Her2 family. This is the saddest of days.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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11-21-2013, 10:07 AM
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#24
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Re: NEDenise Has Died
I guess I could see this coming but at the same time she always seemed so invincible and upbeat. I wanted to believe she would prevail.
I remember when Denise first came to our board, bringing with her an amazing energy that touched us all. She was like our cheerleader and mascot all in one! A force of nature. It won't be the same without her
Keep the faith everyone. Denise did
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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11-21-2013, 10:32 AM
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#25
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Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
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Re: NEDenise Has Died
I'm over the initial shock. I'd like to think that Denise is free of her body, and free of the suffering from cancer and treatments.
Knowing Denise she is up in Heaven cracking jokes. The angels are rolling on the floor of golden mansions with tears running down their faces and holding their bellies from laughing so hard.
We were so lucky to have enjoyed NEDenise as part of our online family. She is such a treasure.
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11-21-2013, 10:45 AM
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#26
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Senior Member
Join Date: Aug 2011
Posts: 271
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Re: NEDenise Has Died
I am shocked and heartbroken by this news. She did not have a break from the time she was diagnosed and yet she lifted our spirits at every opportunity she had. She will be greatly missed on the board. There is some comfort in knowing that she believed in God and his promise for eternal life. Rest in peace dear Denise...you are so deserved of an end to your suffering.
__________________
DX November 2010
Brain MRI, CT of lung, liver, bone, all clear
Double Mastectomy w/expanders December 1, 2010
ER- PR- Her2+++, grade 3, 12 positive nodes out of 15
Stage IIIc
Started TCH/Chemo December 31, 2010
6 rounds TCH
Herceptin every 3 weeks for a year
33 rounds of TomoTube radiation, to chest wall, neck, skin and lymph area
September, 2011, MRI to lower spine, hips, DX bulging disk, L4 & L5, pain not from cancer
Expanders removed, implants in Dec 1, 2011
Finished Herceptin, December 21, 2011
August 2012, CT of chest and abdomen, all ok
Enrolled in MC1136 Phase I Peptide Vaccine Trial at Mayo Clinic, Rochester, Minnesota
March 2013, First Vaccine
April 2013, 2nd Vaccine
May 2013, 3rd Vaccine
June 2013, 4th Vaccine
July 2013, 5th Vaccine
August 2013, 6th Vaccine Done!
September 2013, Mayo visit, Echo results 68, vaccine did not effect my heart! Blood work normal.
January 31, 2013, Mayo visit, Echo normal
February 23, 2014, Numb lips on right side, Brain MRI, normal!
June, 2015, Finished the trial at Mayo Clinic. Feels good!
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11-21-2013, 10:48 AM
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#27
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Senior Member
Join Date: Jan 2013
Location: Irvine, CA (Southern CA)
Posts: 414
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Re: NEDenise Has Died
I've been away for a couple weeks and had no idea. So smart and funny. Prayers to her family.
__________________
Julie
Live in Orange County, CA
Diagnosed with DCIS Oct. 2012
Bilateral Dec. 19, 2012
IDC, ER/PR-, Her2+++, Grade 3
Stage IIIa
15.6 cm
4/14 nodes + macrometastases
First thing each morning, I try on my bathing suit. Then, nothing worse can happen the rest of the day.
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11-21-2013, 10:56 AM
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#28
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Senior Member
Join Date: Oct 2006
Location: Southern California
Posts: 900
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Re: NEDenise Has Died
Her faith was unwavering, her love for her family immeasurable, her humor contagious. If a positive attitude could guarantee beating cancer Denise would have lived forever. Sadly, cancer took her - kicking and screaming, I am sure. We are left with a hole in our hearts and her family with a hole in their lives that will never be filled. May the memories they hold of her heal their wounds and guide them in their new life without her.
Rest in peace sweet Denise. You brightened this board and made us laugh, even when life was not so funny. You are loved.
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault
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11-21-2013, 11:45 AM
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#29
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Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
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Re: NEDenise Has Died
I am speechless. God give strength to her family and friends. It is just so unfair...
Rest in peace dear Denise.
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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11-21-2013, 12:35 PM
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#30
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Senior Member
Join Date: Jan 2012
Posts: 362
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Re: NEDenise Has Died
I gasped when I read this. I just gasped.
RIP sweet funny brave Denise. You impacted my life and I will be sure to keep your memory alive in my little world.
__________________
DX 10/2011
PET Scan + MRI 10/2011
Lumpectomy 11/11/11
Stage 2B +++ ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node)
AC started 12/2011 ended 1/2012
Taxol + Herceptin weekly for 12 weeks ended 4/2012
30 zaps of radiation done 6/2012
Tamoxifen 6/2012
every 3 weeks of Herceptin for another year.
Metformin Trial 8/12
10/12 MRI- CLEAR
01/13 BRAIN MRI- CLEAR!
01/13 Neck MRI- CLEAR!
FINISHED HERCEPTIN 1/9/2013...Woot Woot
Starting Walter Reed Vaccine Trial 2/13
CT Scans + ultrasound of abdomen CLEAR-5/13
02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging
12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner
12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system
1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy.
4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life.
7/27/2018 hysterectomy and oopherectomy
01/07/2019 Mastectomy and expanders put in
3/22/2019 Vtach, almost died. Cause unknown.
7/22/2019 New perky boobs put in
7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018.
www.mychemobag.org
www.facebook.com/mychemobag
8 YEARS NED
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11-21-2013, 01:12 PM
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#31
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Senior Member
Join Date: Oct 2012
Posts: 645
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Re: NEDenise Has Died
Oh no! F__king cancer
__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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11-21-2013, 01:40 PM
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#32
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Senior Member
Join Date: Jun 2012
Location: San Diego
Posts: 33
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Re: NEDenise Has Died
This is terrible. I came here this morning to see if she had any updates. I had no idea that things were so bad. She was such an inspiration to brain metsers like me. I will miss her funny posts so much. She had a great sense of humor in the darkest of times. My condolences to her family.
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11-21-2013, 02:07 PM
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#33
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Senior Member
Join Date: Jan 2012
Posts: 30
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Re: NEDenise Has Died
I am in total shock. Denise was such an inspiration to us all. I am in tears :'( My prayers and thoughts are with her family. RIP my dear friend....
__________________
Mum Diagnosed: 11/11/2011 (Left breast CA)
Age: 59yrs
Lumpectomy done: 23/11/2011 (Tumour 1.2cm, Grade 2, 2 nodes removed. All negative)
Results: ER+, PR+, HER2 +++
Started treatment: RADS on 20/12/2011 (Finished on 02/02/12)
Will be going onto Femara for 5 years and receive once in 3 weeks Herceptin for 1 year.
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11-21-2013, 02:43 PM
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#34
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Senior Member
Join Date: May 2011
Posts: 137
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Re: NEDenise Has Died
Utterly shocked and heartbroken. Amen- to all the beautiful things said about her by so many others- she was a one-of-a-kind-gem. She will be so missed. Deepest condolences to her family.
__________________
3-16-11 dx IDC 4.4 cm tumor, right breast,HER-2 neu 3+++, Stage III
3-25-11 PET scan shows 3 mets to liver and 1 to spine, Stage IV
4-12-11 start clinical trial of TDM1 infusion 1x every 3 weeks.
6-14-11 CT scan after 3 cycles shows NO liver spots, reduced spinal met from 18mm to 13mm and right breast mass from 4.4 to 4.2 cm.
8-12-11 Mastectomy rt. breast.
10-11 scans reflect stable cancer
12-11 MRI reveals area of concern in brain, CT scan reveals 3mm spot on lung. Watch and wait and rescan in a few weeks. Round 13 TDM1 complete.
2-21-12 Scans reveal progression in lungs with 4 new small mets. Officially off tdm1. Start halaven and radiation for single brain met, 1 spot in spine.
3-13 stereotactic radiosurgery for single brain met.
5-31-12 Halaven stopped due to low blood counts. Start tamoxifen and cont. Herceptin 1x3 weeks.
7-11-12- brain mri shows shrinking brain met and no new lesions. Cont. Herceptin and Tamoxifen
10-2-12 Stable tumor markers. Continue Herceptin and Tamoxifen
4-9-13 progression in lymph node under arm and new lung spots. Stop Tamoxifen. Add Xeloda to Herceptin.
6-10-13 Stereotactic radiosurgery to two new brain mets. Stop Xeloda due to lung mets progression. begin Tykerb 7-2-13.
10-29-13 Begin radiation to my lungs and one lymph node under my arm. Stop Tykerb until completion and then recommence.
1-31-14 Progression in lungs. Oophorectomy performed.
2-18-14 Begin Arimidex and continue Herceptin
7-7-15 progression with spots on colon, in pelvic region, and in lungs. Begin Taxotere, Perjeta and Herceptin.
11-15 Switch to weekly Taxol, and continue with Perjeta and Herceptin.
12-23-16 PET scan shows Complete Response with no new spots. Continue on with TPH indefinitely.
3-16-16 Still no evidence of disease, break from Taxol. Continue on with Perjeta and Herceptin.
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11-21-2013, 02:45 PM
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#35
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Senior Member
Join Date: Jul 2006
Posts: 869
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Re: NEDenise Has Died
Another devastating loss for all of us. My heart breaks for all those who love her. She was so full of life...always. Do I remember correctly, wasn't she hoping to go to Hawaii? May her soul rejoice in God's Paradise. Missing you, Denise. Ceesun
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11-21-2013, 02:53 PM
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#36
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Senior Member
Join Date: Sep 2007
Posts: 118
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Re: NEDenise Has Died
Such a sweet, warm, welcoming individual and so quickly gone! Such a shock to others but quickly might have been the most merciful outcome for Denise.
My sincere condolences to all who knew her well and miss her, and family who will miss her the most.
Ev
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11-21-2013, 03:23 PM
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#37
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: NEDenise Has Died
In shock too. I thought she was going to tweak treatments and get on top of her latest issues. I had no idea she was in such bad shape.
I do so hope she had time to say goodbye to Ted and her kids.
She was a ray of sunshine.
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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11-21-2013, 03:51 PM
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#38
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Senior Member
Join Date: Jan 2011
Posts: 36
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Re: NEDenise Has Died
So sad as I read this. In shock. I would check the boards to see what hilarious twist she put on this awful disease. I'm glad she doesn't have to worry about it anymore, sad for all who have to go on without her.
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11-21-2013, 04:13 PM
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#39
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Re: NEDenise Has Died
I'm very sad over the loss of Denise. We spent time together in Philadelphia in the spring. We laughed a lot, despite cancer. My condolences to her family.
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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11-21-2013, 04:39 PM
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#40
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: NEDenise Has Died
Rest in peace. dearest Denise. I wish words could adequately express my feelings at your passing. I love you.
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