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Old 02-06-2013, 10:29 AM   #1
Lori R
Senior Member
 
Join Date: Jan 2008
Location: Evergreen, Colorado
Posts: 454
Re: Hospital stay & Hair Loss...makes for a full week:(

Dear Jessica,
I have been thinking of you and while not pleased by the news of surprise challenges you amaze me with your fight!!

Your thoughts about waiting a week to physically and emotionally recharge sounds like a solid plan. We are so programmed to push and push to beat back this disease. Sometimes we just need a break.

I too ended up in the hospital with a blood infection and IV antibiotics while on taxotere. I remember going to the bathroom and seeing my bald head in the mirror and all of the IV gear and just breaking down. So, please know that others share the pain of hair loss and the grief that this journey brings. You are not alone!!!

Thinking of you frequently....Lori
__________________
2007
Oct - Diagnosed - Stage IV
5 c.m. IDC - Left Side er/pr- Her2+++
Node + 2/14 - Single Liver Met
Double Mastectomy
Nov - Begin T+H
2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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Old 02-09-2013, 04:22 PM   #2
Catkins
Member
 
Join Date: Nov 2012
Posts: 16
Re: Hospital stay & Hair Loss...makes for a full week:(

Hi Jessica

I'm sorry you ended up in A&E and hospital for five days.

This happened to me too after the first round of FEC. Neutrophils went down to 0.37 and I got febrile neutropenia.

It is very scary having to go to A&E but you did the right thing.

You are doing so well. 10.5 years and beyond is a huge achievement.

Please don't give up. This too shall pass. Brighter days are ahead. Spring is just round the corner.

With best wishes

Catkins
__________________
January 2012 - Grade 3 DCIS (2.8cm) and IDC (3.4cm) HER2+ diagnosed.
February 2012 - Mastectomy. No vascular or lymph node spread.
March-May - 2012 FEC x 4
June-July 2012 - Taxotere x 3
August 2012 - Taxotere x 1+ Herceptin
September 2012+ - Taxotere x 17
October 2012 - radiation x 12 rounds
January 2013 - Started Arimidex.
January 2013 - Finished Arimidex due to a reaction.
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