HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

View Poll Results: Do you think your oncol avoids discussion concerning libido?
yes 45 40.18%
no 46 41.07%
N/A 21 18.75%
Voters: 112. You may not vote on this poll

Reply
 
Thread Tools Display Modes
Old 03-31-2007, 12:52 PM   #1
AlaskaAngel
Senior Member
 
AlaskaAngel's Avatar
 
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
Stillhere's poll question #2

Don't know how else to do this, sorry...
AlaskaAngel is offline   Reply With Quote
Old 04-02-2007, 07:52 AM   #2
Vi Schorpp
Senior Member
 
Join Date: Sep 2005
Location: OH
Posts: 385
Personally, I would go into detail with my gynecologist...it's appropriate to raise with the oncologist for sure, but I think each doctor has more time, and knowledge, specifically for their areas of expertise....Just my opinion though.
Vi Schorpp is offline   Reply With Quote
Old 04-02-2007, 08:32 AM   #3
Becky
Senior Member
 
Becky's Avatar
 
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
That is true Vi but oncologists are becoming more and more aware of quality of life issues. Mine just went to a Breast cancer conference on quality of life issues - ie: libido, menopausal symptoms (to include all urogenital problems) etc. He told me these issues cannot be ignored by the oncological community and should be discussed with patients (even if some of the problems are solved via other medical specialists working with oncologists).
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
Becky is offline   Reply With Quote
Old 04-02-2007, 08:40 AM   #4
Vi Schorpp
Senior Member
 
Join Date: Sep 2005
Location: OH
Posts: 385
you'r right Becky...I guess the point I was trying to make was that you know your own doctors best...my gynecologist spends so much time and has always asked the real down to earth questions in the last 23 years. The oncologist answers in detail any questions I have, but not the same "relationship" with him. I am relieved to see that oncologists like yours are becoming more involved with qol issues. Take care.
Vi Schorpp is offline   Reply With Quote
Old 04-12-2010, 01:34 PM   #5
tricia keegan
Senior Member
 
tricia keegan's Avatar
 
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
Re: Stillhere's poll question #2

I've never raised the issue with my onc so can't be sure how to answer this.
I think she'd be sympathetic as she's a young woman herself, just never brought the subject up and neither did she.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
tricia keegan is offline   Reply With Quote
Old 04-12-2010, 02:04 PM   #6
AlaskaAngel
Senior Member
 
AlaskaAngel's Avatar
 
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
Re: Stillhere's poll question #2

Were I a newly diagnosed patient, this whole discussoin would seem very bizarre to me. It is obvious that this is a question that is important for whatever doctor is prescribing the therapy that causes this question to need to be dealt with, to not only grasp in terms of its full meaning for the patient he or she is treating, but to advise the patient about in advance of treatment. If this is beyond the treating provider to do it then it is up to that provider to be sure that a medical provider who is more capable has done so, as part of what is legally called "informed consent".

The whole discussion provides significant answer to the question Stillhere was asking:

"Do you think your oncol avoids discussion concerning libido? "

It doesn't have to be the onc who actually does it. He or she can cop out if they want to, but they should be making sure that a GYN or a nurse who has more guts does it ahead of time so that the patient can use that information as part of their decision-making process about whether or not they think the treatment is worth the trouble and expense before they are treated. This is not a "minor issue" to be dealt with only "after the therapy" "if the question comes up".

AlaskaAngel
AlaskaAngel is offline   Reply With Quote
Old 04-14-2010, 12:54 AM   #7
Merridith
Senior Member
 
Join Date: Sep 2005
Location: Vancouver, BC Canada
Posts: 116
Re: Stillhere's poll question #2

Your poll is showing that I have already voted.....in all of them. I haven't participated in any!
Merridith is offline   Reply With Quote
Old 04-14-2010, 08:30 AM   #8
AlaskaAngel
Senior Member
 
AlaskaAngel's Avatar
 
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
Question Re: Stillhere's poll question #2

Hi Merridith. I read your post and I tried testing using my own sign-on 2 different ways, and either way it tells me that I already voted (which is true) and can't vote again. I do not know why, if you have never voted on these, it would tell you that you have. The site had problems at one point and I think had to be reconstructed in some way but I don't know if that would have anything to do with it, or whether it would be something related to duplicate Merridith's. It may be that we would need to do a fresh poll because of the previous re-entry of database participants.

However, the percentages have changed very little since the first time the polls were conducted.

A.A.
AlaskaAngel is offline   Reply With Quote
Old 04-14-2010, 03:24 PM   #9
tricia keegan
Senior Member
 
tricia keegan's Avatar
 
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
Re: Stillhere's poll question #2

I was told I had voted on all of them too, and had no way to vote again.

I assumed it was an old poll brought forward to get more replies??

Tricia
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
tricia keegan is offline   Reply With Quote
Old 04-14-2010, 04:50 PM   #10
AlaskaAngel
Senior Member
 
AlaskaAngel's Avatar
 
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
Smile Re: Stillhere's poll question #2

Hi Tricia,

Doing a search brought one of the polls forward with a new comment added to it, but because they were all numbered, I brought the rest forward in response to a request that was part of the comment on the one single poll question. The questions Stillhere had asked -- and the results -- are still interesting.

A.A.
AlaskaAngel is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 02:53 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter