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03-19-2011, 06:55 AM
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#1
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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~Today is the Anniversary of the Day I Met My Mighty Oak~
I dedicate my 3,000th post to a legend, my Mighty Oak. I still cannot believe that he has passed. I am having a hard time, actually a harder time as the moments pass on without him. Each day is a challenge and a great feat at the end of the each night. A candle burns bright as I tribute my day to the memories that flourish inside.
I have remarried to a wonderful man that he would be so proud of and although love lives in my heart, a part of it shall always be his. I will never get over losing him. There is a piece of me that hurts so bad at times I think I am dead. He is a man I knew from High School and a person who allows me to grow, to speak of Ed, to mourn each day. His wish for the holidays was to raise money in the Mighty Oak's honor, how blessed am I to be able to love such a man?
I am making giant strides for male breast cancer. Right now I am voluntering at the number one breast cancer resource foundation in New England. There is a position that is being devised for me just for male breast cancer and I will soon be there full time. I will be going to Washington DC as a male breast cancer guest speaker in October. I am studying clinical trials, the brain, Her2, Inflammatory and stage IV breast cancer.
How can one be so happy and so sad at the same time? I do not know. I know I used to miss my life but realized that it is still my life it has just changed. I move on the best I can but each day is full of thoughts of him.
I guess I needed to come here because these feelings are those only all of you could understand. I try to come here to support but I do not feel like I can support you like I should when I feel like this. I follow you all you know, I may not post but I do follow your journeys. I send positive energy and still say my prayers for you all. Please know that I am still here and anyone can contact me at anytime. My heart lives here on Her2support.
On a lighter note, I have a Husky pup, he will turn a year old in April. ENZO (means Ruler of the House in Italian) was the first animal I did not rescue. A handful he is, but the best little creature I know. My cats have both passed but I do have plans on saving another...or two...lol.
Forever in my Heart>>>Believe51
Love to you, Marie
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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03-19-2011, 01:51 PM
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#2
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Senior Member
Join Date: Aug 2010
Location: New York, New York
Posts: 1,580
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Re: ~Today is the Anniversary of the Day I Met My Mighty Oak~
Hi, Marie
It is known that love transcends death, that there are no coincidences, that we are linked by the ones we love, that we can and will hear the messages sent to us if we...listen...wishing you peace, and that knowledge that your beloved Oak lives on. He is so proud of you for what you strive to accomplish.
Best
Karen
__________________
World Trade Center Survivor (56th Floor/North Tower): 14 years and still just like yesterday.
Graves Disease, became Euthyroid via Radioactive Iodine, June 2001.
Thyroid Eye Disease. 2003. Decompression surgery in 2009; eyelid lowering surgery in 2010.
Diagnosed: June 2010, liver mets. ER-/PR+10%; HER2+++.
July 2010: Begin Taxol/Herceptin. Eliminate sugar from diet. No surgery or radiation.
January 2011: NED
April 2011: Progression in liver only. Other previous affected areas eradicated. Stop Taxol/Herceptin after 32 infusions.
May 2011: Brain MRI: clear.
May 2011: Begin Tykerb daily, Xeloda twice per day for one week on, one week off, and Herceptin.
November 2011: Progression in liver. All other tumors remain eradicated.
December 2011: BEGIN TRIAL #09-093 Taxol, MCC-DM1 (T-DM1), Perjeta.
Trial requires scans every six weeks, bloodwork and infusions weekly.
Brain MRI: clear.
January 2012: NED. Liver mets, good riddance!
March 2012: NED. Developed SMA (rare blood clot) in intestinal artery and loss of sight in right eye due to optical nerve neuropathy. Resolved when Taxol removed this month.
Continue Protocol of T-DM1 weekly and Perjeta every 3 weeks.
May 2012: NED.
June 2012: Brain MRI: clear.
June-December 2012: NED.
December 2012: TRIAL CONCLUDED; ENTER TRIAL EXTENSION #09-037. CT, Brain MRI, bone scan: clear. NED.
January-March 2013: NED.
June 2013: Brain MRI: clear. CEA upticking; CT shows new met on liver.
July 3, 2013: DISASTER STRIKES during liver ablation: sloppy surgeon cuts intercostal artery and I bleed out, lose 3.5 liters of blood, have major hemothorax, and collapsed lung requiring emergency resuscitative thoracotomy, lung surgery, rib rearrangement and cutting deep connective tissue, transfusion. Ablation incomplete. This life-saving procedure would end up causing me unforgiving pain with every movement I make, permanently, otherwise known as forever.
July 26, 2013: Try Navelbine/Herceptin. Body too weak after surgery and transfusion. Fever. CEA: Normal.
August 16, 2016: second dose Navelbine/Herceptin; CEA: Normal. Will skip doses. Watching and waiting.
September 2013: NED, Herceptin only. CEA: Normal. Started Arimidex.
October-November 2013: NED. Herceptin and Arimidex. CEA, CA125, 15-3: Normal.
December 2013: Something brewing. PET lights up on little spot on liver; CEA upward trend, just outside normal. PET and triphasic liver scan confirm Little Met. Restart Perjeta with Herceptin, stay on Arimidex. Genomic sequencing completed for future treatments, if necessary.
January 2014: Ablate Little Met on the 6th. Happy New Year.
March 2014: Brain MRI: clear. PET/CT reveal liver mets return; new lung mets. This is not funny.
March 2014: BEGIN TRIAL #10-005 A(11)-Temsirolimus plus Neratinib.
April 2014: Genomic testing indicated they could work, they did not. Very strange drug combo for me, felt weird.
April 2014: Started Navelbine and Herceptin. Needed something tried and true, but had significant progression.
June 2014: Doxil and Herceptin.
July 2014: Progression. Got nothing out of it. Brain: NED.
July 2014: Add integrative medical hematologist-oncologist to my team. Begin supplements. These are tumor-busting, immune system boosters. Add glutathione, lysine and taurine IV infusions every three weeks.
July 2014: Begin Gemzar, Herceptin & Perjeta. Happy.
August 2014: ECHO perfect.
January 2015: Begin weekly Vitamin D Analog infusions. 25 mcg. via port.
February 2015: CT: stable.
April 2015: Gem working, but not 100%. Looking into immunotherapy. Finally, treatments for the 21st century!
April 2015: Penn Medicine. Dendritic cell immunotherapy.
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03-19-2011, 02:07 PM
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#3
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Senior Member
Join Date: Mar 2006
Posts: 4,778
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Re: ~Today is the Anniversary of the Day I Met My Mighty Oak~
Wonderful to hear from you!
Keep up the good work -- so glad you found a worthy man to nurture you in your efforts (as well as the love of a wonderful fuzzy creature or two or three)
From the depths of your troubles you have recreated yourself---while still being the one and only, the original...Marie of the Mighty Oak
I dedicate my 3507th post to you.
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03-19-2011, 02:50 PM
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#4
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: ~Today is the Anniversary of the Day I Met My Mighty Oak~
What a wonderful tribute!
It's so good to hear from you, Marie. Do stop by once in a while when you have time.
Good luck to your new job advocating for male breast cancer treatment/prevention. You will be great!
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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03-19-2011, 03:15 PM
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#5
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Senior Member
Join Date: Mar 2006
Posts: 4,778
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Re: ~Today is the Anniversary of the Day I Met My Mighty Oak~
did you catch this one...hot off the press:
Am J Mens Health. 2011 Mar 16. [Epub ahead of print]
Differences in Male Breast Cancer Stage, Tumor Size at Diagnosis, and Survival Rate Between Metropolitan and Nonmetropolitan Regions.
Klein J, Ji M, Rea NK, Stoodt G.
Abstract
Although the incidence for breast cancer in men is lower than for women, male breast cancer (MBC) patients are diagnosed at a later stage and have a higher mortality rate than women. This study examined male cases reported from 1988 through 2006 in the Surveillance, Epidemiology, and End Results Program of the National Cancer Institute for differences in cancer stage, tumor size at diagnosis, and survival rate between metropolitan and nonmetropolitan regions. Pearson's chi-square was used to evaluate differences in stage and tumor size at diagnosis. Cox proportional hazards regression was used to assess survival differences after adjusting for confounders (race, marital status, median family income, age, and education). Regional differences in tumor grade size and stage at diagnosis were not statistically significant; however, survival differences were observed between metropolitan and nonmetropolitan regions. An interaction between nonmetropolitan area and regional stage MBC was a significant predictor of poorer survival. Raising awareness of MBC in nonmetropolitan areas could save the lives of many men and action should be taken to improve health care access, treatment, and thus prognosis in this population.
PMID: 21411477 [PubMed - as supplied by publisher
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03-19-2011, 04:54 PM
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#6
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Senior Member
Join Date: Nov 2004
Posts: 190
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Re: ~Today is the Anniversary of the Day I Met My Mighty Oak~
Marie,
It's Soooo good to hear from you. I am glad to see that your are both moving on and keeping the "Mighty Oak's" memory alive. Sounds like you are blessed with another great man. I'm praying for the pain to go away and that you will be left with beautiful memories!!
Kim
__________________
8/98 dx right breast
5/2003 tram flap right breast
8/2004 dx new primary left breast with inflammatory bc
er/pr-, her2neu+++
8/19 taxotere and herceptin
1/15/2005 Navelbine/Herceptin
4/2005 radiation and Herceptin
5/15/2005 Herceptin alone
2/12/2008 skin biopsy positive
2/14/2008 met to sternum, possibly right breast
2/27/08 Start omitarg, herceptin, taxotere trial
3/17/08 Kicked off trial because I started too close to my last herceptin
3/19 start tykerb xeloda
Right breast confirmed met
5/15/08 skin mets gone, no hypermetabolic activity in breast, sternum healing
8/24/08 scans still look good. sternum still active with scarring. No evidence of progression
10/08 Progression in sternum
12/08 Start TDM1 trial
1/09 Scans show stable
12/09 1 year on TDM1 still stable
10/10 progression in chest and liver
11/10 false positive of liver mets; tykerb and herceptin
4/11 Tykerb/Herceptin/Xgeva
4/11 Rads to Sternum
5/12/12 NED Herceptin/Zometa
3/16/19 still NED Herceptin/Zometa very 6months
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03-19-2011, 05:17 PM
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#7
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: ~Today is the Anniversary of the Day I Met My Mighty Oak~
Its so good to hear from you Marie, I've thought of you and Ed often and I'm so glad to know you have found some happiness in your life and a very worthwhile career to boot!!!
Sending my good wishes to you today and I know Ed would be proud to know you have picked up the pieces and carried on the fight!  xx
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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03-19-2011, 06:56 PM
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#8
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Senior Member
Join Date: Apr 2007
Location: Mississippi
Posts: 600
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Re: ~Today is the Anniversary of the Day I Met My Mighty Oak~
Marie, glad to hear from you. You are as remarkable as your might oak. I know that he is proud for you.
__________________
In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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03-19-2011, 07:31 PM
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#9
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Senior Member
Join Date: Jul 2006
Posts: 869
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Re: ~Today is the Anniversary of the Day I Met My Mighty Oak~
Marie,... Believe,.... it is so good to hear from you once again and touched that you have come back to speak to us again....so heartfelt....and not easy to do, I am sure. You certainly honor your Mighty Oak's memory with all that you do and I thank you so much. I recall the wonderful Christmas card you sent to me several years ago and I was so happy and pleased to receive it from you. Be happy, Marie and please.....stay well. Fondly, Ceesun
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03-19-2011, 08:06 PM
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#10
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Senior Member
Join Date: Jul 2008
Location: New Boston, NH
Posts: 275
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Re: ~Today is the Anniversary of the Day I Met My Mighty Oak~
Sounds like you have been very busy and enjoying a new chapter in your life, but paying tribute to the one you loved. I am so happy for you.
__________________
-Sarah-
Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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03-19-2011, 10:56 PM
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#11
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: ~Today is the Anniversary of the Day I Met My Mighty Oak~
Marie,
It's nice to hear from you. It sounds like your staying pretty busy getting the word out about male breast cancer. You certainly are the right person for the job. I'm happy to hear things are going well for you...enjoy that 4 legged furkid of yours. You take care.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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03-20-2011, 06:43 AM
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#12
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: ~Today is the Anniversary of the Day I Met My Mighty Oak~
It's lovely hearing from you. I think these mixed emotions are only normal. You are grieving and moving on with life. There are no clear-cut phases, as you are finding out. They come and go. I think you are doing well and it will get easier over time. It helps to accept what is and it seems that both you and your husband are able to do that.
You will be okay. And you will do a lot of good for all men with breastcancer. You are making a difference. Your Mightey Oak would be proud of you! He is proud of you, I should say, because he is with you all the time.
Love
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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03-20-2011, 07:39 AM
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#13
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Senior Member
Join Date: Jan 2008
Location: Evergreen, Colorado
Posts: 454
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Re: ~Today is the Anniversary of the Day I Met My Mighty Oak~
Dear Dear Marie,
I am so glad that you returned to post in Mighty Oak's honor. There are so many of us on the site that vividly remember your journey and how brave and loving you were. You continue to amaze me. I am so glad you are using your talents to educate us on male breast cancer. You are so eloquent, there could not be a better representative.
I am also pleased that god placed another strong, confident man in your life. It is wonderful that you are able to enjoy love in your current life, while being able to honor Mighty Oak.
I miss both of you and am so glad you posted. Please continue to pop in and keep us posted on that puppy.
Love, Lori
__________________
2007
Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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03-20-2011, 11:02 AM
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#14
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: ~Today is the Anniversary of the Day I Met My Mighty Oak~
Hello Marie. It is wonderful to hear from you, and good to hear that you have remarried. He sounds like a remarkable man---one who knows and loves you and your need to remember and honor the Mighty Oak. I hope that with additional time you will hurt less and that your new marriage will continue to bring you happiness and abiding love. Good luck in your important work and do stop by to post once in a while....Sending a hug.
Barb A.
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03-21-2011, 06:15 AM
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#15
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: ~Today is the Anniversary of the Day I Met My Mighty Oak~
Marie,
I am so glad to hear from you. That is a grand dedication of your 3000 post. You were a great wife to the Mighty Oak.
Amelia
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03-21-2011, 01:31 PM
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#16
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Re: ~Today is the Anniversary of the Day I Met My Mighty Oak~
Hi Marie,
I don't visit her2support as much anymore but was happy I did today. I was thrilled to see your post. I'm happy you are doing well. I knew my husband since highschool too. Almost 33 years married and 36 years together. I can only imagine how devastating it would be for us to be without the other.
I am thankful you have found love again. It is normal that you would carry Ed's love in your heart always and it's SO wonderful that your new love accepts that also. No wonder you love him.
God Bless you sweet Maria. I feel as if you are a dear friend from my past - a yesteryear.
Love and peace,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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03-21-2011, 04:12 PM
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#17
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Senior Member
Join Date: Sep 2009
Location: Kensington, CT
Posts: 394
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Re: ~Today is the Anniversary of the Day I Met My Mighty Oak~
Marie,
What a beautiful post and how wonderful of your efforts to adocate Men's BC awareness and research. You are truly a giving person. I am glad you found someone and wish you the best.
Thanks for checking in.
Hugs,
Kris....
__________________
06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found
Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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03-21-2011, 06:33 PM
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#18
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: ~Today is the Anniversary of the Day I Met My Mighty Oak~
Hey Marie!
I am so glad I popped on for a mo. tonight! It is good to hear from you again. Life is like that happy little brook that flows near my house. At times when the rains have been heavy it churns along in a big hurry to get somewhere (who knows where?). At other times it trickles lazily along allowing the 4 white ducks who live on its banks to float happily in its pools and eddies. When we are caught up in life's storms its currents take us swiftly to where we do not want to go, and then the winds ebb and the rain gives way to sunshine and we float along...to something new, not better, just new. Enjoy the sunshine, dear Marie. You'll see the Oak again. I have no doubt of that.
Thank you for your dedication to our guy-pals who get ravaged by this disease,too. They need an advocate such as you. Make Her-2 pay!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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03-21-2011, 08:21 PM
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#19
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Re: ~Today is the Anniversary of the Day I Met My Mighty Oak~
Dear Marie,
I am so glad that you are posting again in this board, your words are always so touching and profound, you touch my soul with your wonderful tribute to Ed. God bless you always.
Congratulations on your advocacy work on male bc.
Love always,
Paty
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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03-23-2011, 08:01 AM
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#20
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Re: ~Today is the Anniversary of the Day I Met My Mighty Oak~
It is so good to get an update on your life, the goods and the bads! Your posts always meant a lot to me and following your journey was very important. Funny how we connect on this site, like family. Keep on keepin' on! Love the puppy and cats story...we usually choose a dog, cats choose us!!! XOX Suzan
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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