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10-13-2006, 06:17 PM
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#21
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Senior Member
Join Date: Sep 2005
Location: Coatbridge, Scotland
Posts: 73
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Dear Maryann,
what an inspiration you are.
You have come through so much and now, are back on this uphill struggle again, yet, you have this terrific spirit, which I know will get you over this "Mountain".
I wish you a very speedy recovery and hope you are back with your family soon.
I am lighting a candle, with you and your family in mind.
God Bless
Geraldine
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10-13-2006, 07:08 PM
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#22
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Senior Member
Join Date: Sep 2005
Location: .
Posts: 211
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Dear MaryAnne
All the best - will be thinking of you. Wish I was closer ( am in Australia) so i could help you out.
love
linda
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10-13-2006, 07:35 PM
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#23
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Good luck and will keep praying for a successful recovery. hugs, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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10-14-2006, 01:20 AM
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#24
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Dear Maryann,
My thoughts are with you and your family and for your speedy recovery. You're so brave and inspiring to all of us.
Take some books on tape with you to listen to when you're too tired to watch tv or read and some soothing music.
big hug and love
sarah
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10-14-2006, 09:35 AM
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#25
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Dear MaryAnne,
Big hugs coming from California. Prayers too for a full recovery and comfort for you and your family.
Love,
Lexi
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10-14-2006, 09:50 AM
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#26
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Dear Maryann
You are an amazing woman. Everytime I read your posts, I am more and more certain of it. I don't think I could handle all you have since your journey started so many years ago. The most incredible thing is that you do not feel sorry for yourself - no "why me's" (at least on this board - I would not blame you if you did - it all seems too much). But your guardian angel is with you. You made it through all the intense chemo and an exact match was found for your transplant and that person was not only not a family member but (if I remember correctly), doesn't even live in the USA.
I will be thinking constantly of you. With your will and determination, you will succeed and be home by Christmas which is your wish. None the less, it will be an incredibly Happy New Year and a new start on life.
With much respect and admiration
Becky
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10-14-2006, 12:03 PM
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#27
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Senior Member
Join Date: Nov 2005
Posts: 943
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Hang in there girl! God bless you during your upstate NY medical venture. Many prayers,Robin
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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10-15-2006, 05:17 AM
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#28
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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Once again, thank you for all the well wishes and prayers. A beautiful statue of Saint Padre Pio (a surprise gift) and many religious relics that I find great comfort in will be traveling with me, along with many angels and many of my bc sisters (and brothers) in spirit. I will not be physically alone for long. My sister is coming in on Wednesday and we are working on the schedule for at least one person to be there with me for most of my stay. I have an on-line friend that lives in Buffalo that will also pop in to visit along with her sister, and another on-line friend's daughter/son-in-law that wants to meet me and help out. It is not the best way to meet people, but I will accept any help I can get! I have a busy day ahead of me but just wanted to say thank you and let you all know that I am thinking of YOU and praying for YOU. I look forward to the day that I can devote my energy to helping others and not worrying about me so much!!! There are no support groups for bc survivors that have gotten leukemia from treatment. I am finding that there are more of us than I previously thought. I may have to take an idea from Christine and Joe in the future...My love and prayers to you all...Maryann
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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10-15-2006, 07:14 AM
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#29
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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You have my prayers and wishes that you remain as strong as you are and make it through this. You are always so upbeat and positive and have such an incredible strength. You have been an inspiration to everyone on this forum and I know you can make it through this. Best of luck and may all go very well.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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10-15-2006, 07:24 AM
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#30
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Senior Member
Join Date: Jul 2006
Posts: 146
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Leaving on jet plane
Dear Maryann,
I wish you only the very best for your recovery. I'm sure things will go well while you are gone with your children and their activities, you sound like a very organized person. You are in my thoughts and prayers.
hugs,
ginkott1@aol.com |
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10-15-2006, 07:51 AM
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#31
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Maryann, lots of love and hugs going out to you as you embark on this journey...I KNOW you'll get through this with flying colors, and I'll be praying for you.
<3 Lolly
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10-15-2006, 12:12 PM
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#32
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Good luck from Ireland!
Maryann I always read your posts and admire your courage so much.You always seem so cheerful and have so much on your plate right now.
I'll be thinking of you along with everyone else here and praying everything goes well and you're back home as soon as possible.
Take care of you 
Tricia |
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10-15-2006, 12:19 PM
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#33
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Maryann, many prayers for successful treatment and speedy recovery; we are all with you in spirit.
Take care of yourself.
Love
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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10-15-2006, 01:33 PM
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#34
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Senior Member
Join Date: Nov 2005
Location: New York
Posts: 90
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My Blessing As Well
Maryanne,
Isn't it wonderful to have so many friends? And what a great mother you have! Family and friends are what it is all about. You are very blessed in so many ways. I will ask God to watch over you tonight in my prayers.
Warmest Wishes,
Annemarie
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10-15-2006, 03:48 PM
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#35
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Senior Member
Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
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Best wishes coming your way, I'm sure that you will come through this in your typical way and be posting good news soon.
Hope everything goes smoothly for you in this new treatment plan.
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10-15-2006, 04:56 PM
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#36
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Maryann;
God bless. You know we are all praying for you and watching your progress through this horrid mess of one thing after another. I do agree with Lolly.....may you be ok by Christmas and ready to celebrate with your family a wonderful, happy, healthy New Year. We are with you all the way.
Best regards,
Cathy
__________________
Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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10-15-2006, 05:15 PM
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#37
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Senior Member
Join Date: Mar 2006
Posts: 78
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Dear Maryann,
You are such an inspiration. Just heard this quote today about courage. Mark Twain wrote it, but I think you are a shining example.
"Courage is the mastery of fear, not the absence of fear."
You & your family are in my thoughts and prayers.
G.Ann
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10-15-2006, 08:39 PM
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#38
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Best wishes Maryann. We cancelled our trip to celebrate MIL's 80th up due to weather. Oh what a surprise, not. You can do it! BB
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10-16-2006, 11:00 AM
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#39
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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I'm thankful to hear from you Maryann and glad you are making connections with others as you take on the next step. You are our eyes in sharing so much of what it is like with us. I hope there will come a time when you can put all of what you learn together so that it can guide any other "Maryann" who suddenly has to handle it all... In the meantime, you are very much in my thoughts.
AlaskaAngel
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10-16-2006, 05:43 PM
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#40
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Senior Member
Join Date: Jan 2006
Location: Victoria, Australia
Posts: 95
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Maryann
You are unbelievable! You are still running around everywhere, after all that you have been through, and about to go through. My thoughts are definitely with you and your family. You know you can do this. Stay strong.
Lots of love
Lisa
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