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10-01-2007, 12:01 PM
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#1
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Junior Member
Join Date: Oct 2007
Posts: 2
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Protective Mother
My mom was diagnosed with bc about 7 years ago. 2 years ago it met. to liver. Was really bad, doc. said it was highest count he had ever seen. Was able to get it under control with herceptin, but has started to go up again recently. Was on Tycerb, now navelbine. What does this mean? Mom is the protective type, not wanting to "worry" the kids. So, we don't really know what is going on.
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10-01-2007, 12:34 PM
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#2
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Patrick
I have a son named Patrick! What is the Dr. saying, or is your Mom keeping everything a secret. She is doing this because she loves you and does not want you to worry. Did she fail on the Tykerb? There are still many other drugs to try, how is her health otherwise, and is she showing symptoms of liver involvement...jaundice, bloating etc? Have you tried to sit and talk with her? There are many on this board who have conquered liver mets, so I am sure you will get some answers.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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10-01-2007, 12:42 PM
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#3
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Junior Member
Join Date: Oct 2007
Posts: 2
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She started on Tykerb about 6 months ago when her count starting going up. [It was down to normal after being in the 1,000 +.] Her count has continued to go up, but they can't seem to locate a specific location -- they found a hot spot on her pelvic bone, but she down plays that as the cause. The fact that they are changing meds again so quickly worries me.
She always spins things in the positive, even when we talk directly. I believe the positive attitude helps greatly, so I don't push much for informaiton. But, it leave me somewhat in the dark as to what to expect.
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10-01-2007, 03:53 PM
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#4
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Patrick,
Try and convince your Mom to waive her HIPPA rights to allow you to talk directly to her doctor. Every doctor's office carries the necessary forms.
Regards
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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10-01-2007, 09:53 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Patrick,
"Count"? Count of what?
If you can provide a bit more info (Sheila asked some good questions) it might help. On the positive side, it's encouraging that her disease has been able to be controlled with the biologics (Herceptin and Tykerb) which are much easier to take.
The fact they are now adding chemo sounds like the cancer is no longer responding to these alone. Many people need to combine these with a chemo (as is happening now with the Navelbine) to get the best response. So adding chemo is a logical step to regain control.
Read my bio, I was able to beat down extensive liver mets with a chemo/herceptin combo, then maintain on herceptin alone for 2 years. My onc's first reaction to the recent recurrence was just to add back a chemo to the Herceptn, so this is quite common.
Keep the faith...
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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