| Keeping Your Mind Off of BC Fun things and posts that do not apply to BC |
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07-02-2008, 04:51 PM
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#1
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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My joy for today is I got 2 year old Dilly today. She's here for a week so she can go to the Fourth of July parade with me on Friday. She doesn't like the fireworks though.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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07-03-2008, 10:15 AM
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#2
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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They Really Got Me
As you may know, last Monday June 23 was my birthday and my week started by eating mini cakes celebrating our friends birthdays. And I ate and ate and ate more cake as birthdays were arriving.
Well it is July 3 today and my boss and my staff got me a cake. I was out with Mighty Oak on my birthday and they thought they could throw me off by stalling. They did!!
I had told them how much cake I have eaten that week. Their reasoning for postponing the celebration was they thought I would say something like...."I am so full" or "Look how bloated I am"
Today's Joy: Not just getting remembered BUT I DID SAY THINGS LIKE THAT ALL WEEK TO EVERYONE HERE>It is good to know these people I work with know me so well.........well enough to figure out my demented mind!!...........Burp....Oooops! 'scuse me!! I am still laughing!>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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07-18-2008, 10:50 PM
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#3
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Senior Member
Join Date: Mar 2007
Location: From Syracuse, NY but living in Tokyo, Japan for 26yrs
Posts: 132
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Joy; the kids brought their report cards home from school yesterday and today is the first day of summer break.
__________________
Kathy S in Tokyo (44)
11/2004 partial masectomy (clear margins) - ER/PR++ HER+++
12/2004 Tamoxifen
11/2005 Clavicle & neck lymph nodes mets
30 Days rads, 7 months CEF-T Chemo
6/2006 mid chemo lung mets oral toremifene
10/2006 changed hospitals
12/2006 Tamoxifen and monthly Zoladex
2/2007 Dramatic growth of mets! Stopped Tamoxifen and Zoladex
3/2007 Began weekly Herceptin
6/2007 Added weekly Taxol to regime
4/2008 More lung mets - stopped Taxol
5/2008 Xeloda - 3 weeks on 1 week off
8/2008 Got a port!
9/2008 Stopped Xeloda, started weekly Navelbine
12/2008 Tumor progression, stopped Navelbine
1/2009 Taxotere begins again, once in every three weekly Herceptin IVs
3/2009 Added Zometa pelvic bone met, lung tumors progressing, stopped Taxotere/Herceptin
4/10/2009 Whoa seizure! 6cm&3cm brain mets. craniotomy and gamma knife surgery 5/15/2009 Started Adria/Cyto stopped 9/15 due to progession. Brain mets back 10/28 surgery more gamma soon
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07-19-2008, 09:16 PM
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#4
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Senior Member
Join Date: May 2006
Posts: 3,142
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Joy Column
I am happy about every birthday I celebrate, being able to do normal everyday things, accomplishing a goal, days with no side effects, hearing great medical news, spending time with good friends, hearing good music, watching a great movie, enjoying beautiful scenery and many other things. I am just thankful to be alive and kicking.
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07-20-2008, 04:31 AM
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#5
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Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
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Today's joy was celebrating my husband of 35 years, birthday (55) with most of the family here. Joy next week will be going to Seabrook Island to celebrate my grandson's 5th birthday. It will be a lovely weekend at the beach!
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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07-21-2008, 04:44 AM
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#6
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Senior Member
Join Date: Mar 2007
Location: From Syracuse, NY but living in Tokyo, Japan for 26yrs
Posts: 132
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A neighbor gave us some free tickets to a nearby waterpark so I took three of the kids yesterday (one was off at a track meet). Most Japanese pools are only slightly deeper than my waist, in case people can't swim (and so many people never do learn to swim!), and my kids and their friends never have any chances to actually jump or dive into the water. This pool had a 5 meter deep diving pool with some low diving boards and a platform about as high as the old low diving board remember at our local pool when I was a kid.
People were enjoying taking turns timidly dropping off straight down into the deep water and building confidence to actually try jumping or diving. A few fathers made everybody (about 70 people standing around watching and or waiting for their turn) laugh making huge splashes belly flopping off the 2 meter high platform. The lifeguards supervised well and made sure that each diver was out of the pool before they let the next person jump.
My daughter N (soon to be 11) challenged me to go off the
platform so I stood in line and waited for a turn. The lower diving
boards had shorter lines so I was able to see N and her big sister J (15) jump a few times while I waited. When my turn finally came, the crowd seemed suddenly silent. What was this fat, white haired, foreign grandmotherly person doing up there on the platform? My daughter was smirking in anticipation of a big splash.
Did I walk and stand at the edge and drop off feet first? No, I took two firm and quick steps and a jump and propelled myself up and over half the pool, flying through the summer sky in a perfect swan dive (my first in several decades). I heard a big collective "oooooh!" as I glided splashlessly into the cool, deep pool.
Boy did I show them! :-)
I was careful to readjust my swimsuit on my way back up to the surface to keep the show G rated.
I think that this makes up for my dismal performance velcro-wall
jumping earlier this year.
What a joy!
__________________
Kathy S in Tokyo (44)
11/2004 partial masectomy (clear margins) - ER/PR++ HER+++
12/2004 Tamoxifen
11/2005 Clavicle & neck lymph nodes mets
30 Days rads, 7 months CEF-T Chemo
6/2006 mid chemo lung mets oral toremifene
10/2006 changed hospitals
12/2006 Tamoxifen and monthly Zoladex
2/2007 Dramatic growth of mets! Stopped Tamoxifen and Zoladex
3/2007 Began weekly Herceptin
6/2007 Added weekly Taxol to regime
4/2008 More lung mets - stopped Taxol
5/2008 Xeloda - 3 weeks on 1 week off
8/2008 Got a port!
9/2008 Stopped Xeloda, started weekly Navelbine
12/2008 Tumor progression, stopped Navelbine
1/2009 Taxotere begins again, once in every three weekly Herceptin IVs
3/2009 Added Zometa pelvic bone met, lung tumors progressing, stopped Taxotere/Herceptin
4/10/2009 Whoa seizure! 6cm&3cm brain mets. craniotomy and gamma knife surgery 5/15/2009 Started Adria/Cyto stopped 9/15 due to progession. Brain mets back 10/28 surgery more gamma soon
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08-08-2008, 07:20 AM
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#7
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Cricket-cricket
I slept in the only none-air-conditioned room in the house last night.
Today's Joy: I gently fell asleep to the sound of crickets, which may I add reminded me of all things good from childhood...what a treat>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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08-08-2008, 07:32 AM
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#8
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Senior Member
Join Date: Jan 2008
Location: Oregon City
Posts: 856
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Colleen and the kids went on vacation and I got to stay at home and work. (Thats not the good part.) The good thing is that I opened the cabinet for a bowl for cereal and there it was! The Bunny Bowl! What a special treat! Pour in the cereal and milk and it's "Bye, Bye Bunny, see you soon." And when you are a member of the clean plate club, it's "Bunny, your back!" Bunny always comes back, he's reliable that way. It's good to know that some things will always be there for you. You just got to find them.
Spike
__________________
This happened to Colleen:
Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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08-08-2008, 02:44 PM
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#9
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Senior Member
Join Date: Apr 2008
Location: me & my three HANDSOME grandsons!!Jacksonville, Arkansas
Posts: 354
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My FRIDAY Joy!
Its FRIDAY.
My husband (who is a trucker) is coming home tomorrow after being on the road for 3 weeks!
I think I feel good enough to hit the honky-tonk for a little karaoke tonight!
Lee?? That's kinda crazzee dude
__________________
Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
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08-23-2008, 06:48 AM
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#10
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Joy To The World!
Ed and I took a ride yesterday and as he wisped me off to the country we opened the windows wide. We drove for what seemed like an etenity, a joy in itself.
Today's Joy: I stuck my arm out the window to catch the breeze like I used to do when I was just a tot. Funny how the Mountain Laurel smells the same. The big fields of wildflowers housed the sounds of insects. We passed a farmer whom was tending to his cows, he looked like he was 103 but in a tough wonderful way. In another area we went by a pen of pigs who came to the fence to say hello. Being the photo-hag that I am I had the camera ready for my photogenic pig friends.
The day could not have been better. Just being alive and feeling alive after this ride shall carry me through another glorious day. Thank You God, I love this world!
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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08-08-2008, 08:29 PM
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#11
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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My joy for the day is reading Marie's post about The Mighty Oak being NED!!!!!!
__________________
For Nicola
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08-09-2008, 01:12 AM
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#12
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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My joy for today: my bilirubin has been running a bit over the normal high side so my internist had me do a ultrasound. Came out normal!! hip, hip, horray!!!
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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08-09-2008, 02:01 AM
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#13
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Senior Member
Join Date: Jul 2008
Posts: 96
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my day started good, by reading what anita had to say about Kenya in my 'LOVE FROM KENYA' post . to talk about the wild life and its beauty brought back good memories, bought a smile on my face, good to take my mind off BC. thanks Anita
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08-09-2008, 10:05 PM
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#14
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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My joy is having my port removed. I plan to NOT need it ever again!
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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08-23-2008, 09:31 AM
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#15
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Senior Member
Join Date: Jul 2008
Posts: 26
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What a wonderful way to see the rainbow at the end of the storm. Positiveness is the only answer. Our attitude has to be our priority.
My joy is that we were not swept away by the hurricane and the sun is shining today.
God is soooo good and HE is always a breath away.
You gals are such an inspiration to me. I thank you everyday that I found this site.
MY MOTTO is FAKE IT TO MAKE IT!!! It really works both on the outside and inside.
MUCH love to all of you. Mary Jeanne
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08-23-2008, 07:33 PM
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#16
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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That our high school team started the season of good last night with a win of 55-28.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
Last edited by juanita; 08-23-2008 at 07:34 PM..
Reason: can't spell
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08-25-2008, 06:31 AM
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#17
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Senior Member
Join Date: Apr 2008
Location: me & my three HANDSOME grandsons!!Jacksonville, Arkansas
Posts: 354
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My joy for today:
I am at work (shhhhh!) on Monday morning instead of in a chemo chair!!! After 12 Mondays, I am BLESSED to have a job, and to be here right now!!
Next treatment: September 8th (my oldest daughters birthday!)
__________________
Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
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08-25-2008, 07:20 AM
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#18
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Senior Member
Join Date: Jul 2008
Posts: 26
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My Joy today is that I am not nauseated and I can fix my green vegetable drink and drink it and have a fatigue free day to start my move to another wonderful home. It will have windows that I can see the world out of. I have been in a condo with only the front and back exposed to the outside. I will feel free and also have a spare bedroom for company. How could life be anybetter??? Love, Mary Jeanne
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08-25-2008, 02:51 PM
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#19
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Early rising to wake my granddaughter so she had plenty of time to get her 1st day of 3rd grade outfit "Just Right"! To see the joy and excitement in her face made my day! I see how hard she works to have a "normal" life without either of her parents. That little squirt gives me renewed purpose each an every day!
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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09-03-2008, 09:14 AM
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#20
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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I am right there with you Mary Anne. I walked my daughter to her 5th grade classroom and my son to his 2nd grade room. Today is a great day. Dealing with a local recurrence makes my life seem so uncertain. But, today I got up thinking I'm the luckiest person in the world. Seeing them start another year just warms my heart.
Thank you God for today.
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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