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Checking In
Hello to all my Her2 family.
Sorry to have been away for so long, but the last year has been a tough one. Between loosing my sister less than 2 years after she was diagnosed with brain cancer, selling our home of the last 24 years, making a major move to the sierra foothills of Northern CA, and changing oncologists not once, but twice, all the while battling the recurrence of BC to my liver.
I'm finally getting my head above water and felt the need to check in with all of you, since you have always been there for me, during my Her2 odyssey now in it's 18th year!
The good news is I'm currently stable and maintaining on Herceptin and Perjeta and Femara. I'm slowly getting my energy back, and have actually started riding my horse again. As I've mentioned in the past, it's always been my therapy, and boy have I missed it. The last course of Taxo-tears really did a number on me, and I didn't have the confidence to get on my horse, because of extreme neuropathy in my hands and feet, and just feeling generally "off balance".
I have been lurking a bit, and am deeply saddened by the loss of more of our dear sisters. I'm hoping and praying that the CD47 trials get underway soon, and that maybe, just maybe, it will be the magic bullet we've all been waiting for.
Love to all,
Kim (still in CA)
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Diag. Feb 1997 4.5cm IDC <10%ER+, PR-. 5 out of 36 nodes +. Mastectomy followed by 3 rounds Adriamycin/Cytoxin.
5/1997 Hi Dose Chemo w/ Stem cell rescue. Spent 4 weeks in isolation ward. Then 6 weeks radiation.
9/2001 widespread mets to liver. 8 mos Taxotere/Herceptin brought me almost to NED. Stop Taxotere & add Femara .
11/2002 liver resection to remove spot that turned out to be necrosis. Officially NED!
7/2003 Tumor markers rising add Xeloda Disastrous reaction, 8 days hospital, but tumor markers came back to normal!
June -Dec 2004 UW Vaccine Trial.
7/2005 MRI single 11mm brain met
8/2005 Gamma Knife.
Brain MRI @3 months NED!
2006-2011 brain/body still NED
8/04/11 Taking Herceptin break, will monitor with tumor markers.
6/20/12 Tumor markers begin to rise. CA15-3 is 31.3 and Her2 Serum is at 17.1 Decide to repeat in one month.
7/23/12 CA15-3 now 49.3
Her2 Serum 26.8
8/6/12 Back on Herceptin
CA15-3 now 76
Her2 Serum now 49
11/7/12 Add weekly Taxotere for 4 cycles
2/2013 Stopped Taxotere added Perjeta. MRI shows approx. 50% reduction liver mets. CA15-3 still elevated @ 55. Will continue on just Herceptin & Perjeta.
November 2014 Continuing on Herceptin, Perjeta, and
Femara indefinitely. Guess I'm NED again, but watching those tumor markers carefully!
Dec. 2015 PET scan reveals mass in perirectal area of abdomen.biopsy confirms. Still Her2+, but no longer ER+. Bye bye Femara
Jan 2016 Begin Kadcyla
March 2016 PET scan shows tumor now barely visible, still NED everywhere else.
2016/2017 continue Kadcyla
November 2017 brain MRI reveals small focus of T2 hyperintensity with possible 4mm enhancing nodule. Short term follow up MRI suggested. Stay tuned...
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