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Old 06-17-2014, 07:49 PM   #21
JillaryJill
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Posts: 271
Re: Encouragement Needed

Praying for a successful zap!!! You will survive!!!
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DX November 2010
Brain MRI, CT of lung, liver, bone, all clear
Double Mastectomy w/expanders December 1, 2010
ER- PR- Her2+++, grade 3, 12 positive nodes out of 15
Stage IIIc
Started TCH/Chemo December 31, 2010
6 rounds TCH
Herceptin every 3 weeks for a year
33 rounds of TomoTube radiation, to chest wall, neck, skin and lymph area
September, 2011, MRI to lower spine, hips, DX bulging disk, L4 & L5, pain not from cancer
Expanders removed, implants in Dec 1, 2011
Finished Herceptin, December 21, 2011
August 2012, CT of chest and abdomen, all ok
Enrolled in MC1136 Phase I Peptide Vaccine Trial at Mayo Clinic, Rochester, Minnesota
March 2013, First Vaccine
April 2013, 2nd Vaccine
May 2013, 3rd Vaccine
June 2013, 4th Vaccine
July 2013, 5th Vaccine
August 2013, 6th Vaccine Done!
September 2013, Mayo visit, Echo results 68, vaccine did not effect my heart! Blood work normal.
January 31, 2013, Mayo visit, Echo normal
February 23, 2014, Numb lips on right side, Brain MRI, normal!
June, 2015, Finished the trial at Mayo Clinic. Feels good!
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Old 06-18-2014, 02:11 PM   #22
lkc Gumby
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Re: Encouragement Needed

Prayers going out !
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Linda

Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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Old 06-18-2014, 02:17 PM   #23
kvogler
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Re: Encouragement Needed

Stay strong and positive. Know that people you've never even met before are praying for you.
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Old 06-18-2014, 03:11 PM   #24
LeahM
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Posts: 395
Re: Encouragement Needed

Update: Paula will have gamma knife next Tues or Fri. That's all I know.
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Old 06-18-2014, 06:33 PM   #25
Bunty
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Re: Encouragement Needed

I'm glad Paula has you Leah close by - thanks for the updates, and please pass on to Paula that prayers and positive thoughts coming from me to her.
Marie x
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Old 06-19-2014, 04:20 PM   #26
embur102
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Re: Encouragement Needed

Ladies,
I must say you ALL are MOST AMAZING!!!!
I am so grateful for your outpouring of love and support. We never expect to be "here", but surrounded by you all, I feel INVINCIBLE!!!

As Leah reported, I am scheduled for Gamma Knife at the main campus of Cleveland Clinic, OH on Tuesday, June 24. Right now, it looks like one superficial 2 cm spot on the Left Parietal brain, no other symptoms/indications.

After this is treated, full body and bone scans will be done to check the rest of the body, followed by brain MRIs every 2 months.

I have a long list of things I need yet to do.....seeing children graduate and get married, watching grandchildren grow up...HER2 isn't getting rid of me that easily

Love, light, and long life xoxoxoxoxxooxoxox
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Dx 4-12-2012
R unilat Mx 5-25-2012 (no reconstruction)
Stage 2B, Grade 3, Her2+++, Er + (15%), Pr -
4.2 cm, 2/14 nodes +
3 AC, 4 T/H
Zoladex 4 months
Oophorectomy Feb 2013
AI daily
Herceptin every 3 wks until Sept 2013
Gamma Knife June 2014, 2 cm brain met
Liver mets Oct 2014
Taxotere/herceptin/perjeta-CLEOPATRA trial Nov 2014-Mar 2015


"RISK BEING SEEN, IN ALL OF YOUR GLORY!" Jim Carrey
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Old 06-19-2014, 04:27 PM   #27
LeahM
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Re: Encouragement Needed

Don't forget you also need to get muddy
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Old 06-24-2014, 10:01 AM   #28
LeahM
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Re: Encouragement Needed

Update. Paula had her zap today on one pesky little spot. She should be heading home soon. Her sister told me the zap should kill off the cancer over six weeks or so. I'm hopeful that this works and Paula gets back to living. She texted me a picture of herself this AM wearing Hulk gloves. She was ready to fight!
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