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View Poll Results: Staging and Metastasis for real this time
Are you Stage I? 29 26.36%
Are you Stage II? 29 26.36%
Are you Stage III? 24 21.82%
Are you Stage IV? 27 24.55%
Where you originally diagnosed as Stage 1? 23 20.91%
Did your cancer metastasize? 23 20.91%
Did you metastasize in less than a year from initial diagnosis? 5 4.55%
Did you metastasize between one and two years? 8 7.27%
Did you metastasize between two and four years? 10 9.09%
Did you metastasize in greater than five years? 7 6.36%
Multiple Choice Poll. Voters: 110. You may not vote on this poll

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Old 08-12-2006, 06:11 AM   #1
astrid
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Staging Poll hopefully correct this time

I have re done this with 3 other polls. Please use those and ignore this one.

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DX 11/14/05, Stage 1C, Her2+ 3.4, ER+, PR+, K167 23%, Node Negative, MX0, Grade 3, 1.8CM, Lumpectomy 12/7/05; 6 rounds dense dose Taxol bi-weekly, 35 radiation, 1 year Herceptin, & Tamoxifen ongoing.

Last edited by astrid; 08-18-2006 at 04:50 AM.. Reason: re done
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Old 08-12-2006, 07:08 AM   #2
madubois63
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I voted in the 2 -4 year category even though the metastisis was at 4 1/2 years later...
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Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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Old 08-12-2006, 01:03 PM   #3
chrisy
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I was stage 0. DCIS only. There are no guarantees - I was diagnosed with liver mets 2 years later.
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 08-12-2006, 01:56 PM   #4
Val Pfeiffer
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hi Astrid--
I have worked with data on and off over the years, and I want to offer my "two cents worth." I was thinking that you might want ask these questions a bit differently. The way they are currently worded, many people will be able to choose several of them, and people will be forced to select one, even though two or more may apply to them. For example, someone may be stage 4 currently, but can also answer yes to "was originally stage 1" and "did your cancer metastasize." With the current questions, you will not be able to draw any useful conclusions from your data. If I understand correctly the points you are trying to measure, in order to get accurate data, you may want to consider asking the questions something like this:

(ask the first three questions...are you currently stage 1 2 or 3)

* I am stage 4 and was originally diagnosed as stage 4

* I am stage 4, my cancer started out as stage 0, and metastisized less than one year later.

* I am stage 4, my cancer started out as stage 0, and metastisized one to two years later.

* I am stage 4, my cancer started out as stage 0, and metastisized between two and four years later

* I am stage 4, my cancer started out as stage 0, and metastisized five or more years later

* I am stage 4, my cancer started out as stage 1, and metastisized less than one year later.

* I am stage 4, my cancer started out as stage 1, and metastisized one to two years later.

* I am stage 4, my cancer started out as stage 1, and metastisized between two and four years later

* I am stage 4, my cancer started out as stage 1, and metastisized five or more years later

* I am stage 4, my cancer started out as stage 2, and metastisized less than one year later

* I am stage 4, my cancer started out as stage 2, and metastisized one to two years later

* I am stage 4, my cancer started out as stage 2, and metastisized between two and four years later

* I am stage 4, my cancer started out as stage 2, and metastisized five or more years later

* I am stage 4, my cancer started out as stage 3, and metastisized less than one year later

* I am stage 4, my cancer started out as stage 3, and metastisized one to two years later

* I am stage 4, my cancer started out as stage 3, and metastisized between two and four years later

* I am stage 4, my cancer started out as stage 3, and metastisized five or more years later

I think I covered all the possibilities...might have missed something, but you'll see the pattern. By allowing the respondent to select their specific situation, you will get better ionfo. Hopefully that makes sense.

Good luck with the data--I think this will be worthwhile info :-)
Val
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Dx 11/04, Age 42, ER-/PR-, HER2+++
3 months weekly Herceptin, Taxol. Carboplatin
Significant tumor shrinkage
Mastectomy 3/05; Stage 3b, 9 cm tumor, 5/8+ nodes
3 more months weekly Herceptin, Taxol. Carboplatin
7/05 30 radiation treatments, IMRT planning approach
Started 1 year of Herceptin 9/05
9/06 Began quarterly triple doses Herceptin. Brain & breast MRIs semi annually.
* * * * * * * * * * * * * * * * * * * * * * * * * * *

6/08 Right breast, intraductal carcinoma, high nuclear grade associated with comedo necrosis; extensive diffusely involved the entire biopy specimen. ER+, PR-, Her2 unknown at this point, 07/08 mastectomy.

Last edited by Val Pfeiffer; 08-12-2006 at 02:00 PM..
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Old 08-12-2006, 02:41 PM   #5
Montana
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Thanks, Val for clearing that up. I am very interested in the results of this poll, especially the Stage 1 to Stage IV results.
Astrid, would you please try it again?
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Old 08-13-2006, 05:31 PM   #6
karenann
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Just out of curiosity Astrid, what kind of treatment did your sister have?

Karen
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Old 08-14-2006, 11:45 AM   #7
Lauriemn
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I was wondering, for the women who recurred after 2 years, are you er/pr+?

Laurie
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Old 08-14-2006, 05:37 PM   #8
chrisy
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Hi Astrid,
I know this has been a lot of work trying to capture this info! I hate to say this, but I still do not fit into this poll! I was originally DX Stage 0, metastasized 2 years later.
I voted in this one before the latest changes...
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 08-14-2006, 05:38 PM   #9
Jean
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I am curious what treatment was given to those Stage 1 who had recurrance?


This should prove to be interesting how many had radiation, hormonal therapy,
chemo, etc.


Maybe that should be added also....

Jean
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Old 08-14-2006, 06:23 PM   #10
mamacze
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Great questions being asked; my curiosity is peaked! Astrid, I hope you are not feeling overwhelmed...I have to add that like Chrissy, I was originally diagnosed a Stage 0 in 2001; then a stage 4 with mets to the lungs in 2004. I am Her2+++, er/pr-, and it seems like Astrids sister and Astrid were er/pr + ?
If I can help, let me know.
Love Kim from CT
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Old 08-17-2006, 08:50 AM   #11
Christine MH-UK
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So far, so good

What about those of us who are 2-3 years out or even longer with poor initial prognoses who are still NED? It would seem to be useful to keep that possibility in mind.
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Old 08-27-2006, 01:33 PM   #12
chrisjan
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Herceptin Clinical Study

Hello,

Can anyone tell me how to get the Herceptin clinical study - looking to make sure that I am on the right treatment regime for my cancer. her2+ about to end my second round of treatments - Abraxane and Herceptin (allergic to Taxol). About to go to Herceptin for the next year. Should I go onto radiation and anything else?

Thank you for responding.

Chrisjan
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Old 09-11-2006, 05:27 AM   #13
MJo
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I am happy to take as many polls as you post here. I like val's suggestion, as I am DX at stage 1 and hope with Herceptin this never comes back. But I want all the facts I can get.
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Old 09-11-2006, 05:31 AM   #14
MJo
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P.S. RE Val's suggestion--we could divide it into two groups, ERPR+ and ERPR-, although we have variables, such as ER+PR-. We have the chance here to gather some really important info. We could even break it down to HER+++ and HER++. I know it sounds nightmarish, but there isn't any other place to get this info.
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Old 06-24-2014, 09:04 AM   #15
Lisalou
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Re: Staging Poll hopefully correct this time

Hi Chistjan
You may want to post a separate thread with your questions for more responses. Your treatment depends on your stage and the type surgery you had. If you could share that info it would be helpful. If you search google scholar for Herceptin you will find several studies. Herceptin for 1 year is standard it has been tried for longer and shorter times with no greater benefit or less benefit
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Routine mammogram 12/20/2013
Call back with repeat films on12/31/2013 Ultrasound with core needle biopsy same day
Dx 1/2/2014 IDC ER/PR+
1/10/14 HER2 +
2/14/14 BRCA results negative
2/17/2014 skin & nipple sparing BMX with reconstruction Tissue expanders placed
IDC Stage 2A left breast. 9mm tumor no other CA 1/4 nodes positive
ER + PR + Her2 +(by FISH)
Right breast no cancer, sclerosing adenosis
3/13/14 Round 1 AC minimal side effects
3/27/14 Round 2 AC
4/10/14 Round 3 a little more nausea
4/24/14 round 4 hurray! Done with phase 1!
5/8/14 THP ( taxol weekly x12, Herceptin & perjeta every 3 weeks x 4)
7/24/14 done with chemo
Continue of Herceptin every 3 wks x 1 yr
5/14 start Tamoxifen x 5 years
8/18/14 removal of TEs silicone implants placed
9/14/14 Cellulitis Right Breast, suspect infected implant. Managed with Oral antibiotics, avoided surgery to remove implant. Whew!
12/17/14 nip & tuck revision of Left breast

We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face. The danger lies in refusing to face the fear, not in daring to come to grips with it. We must do that which we think we cannot do. -Eleanor Roosevelt
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