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09-10-2013, 07:00 AM
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#21
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Senior Member
Join Date: Apr 2012
Location: Melbourne, Australia
Posts: 494
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Re: Brain MRI Today!! ??
Hoping all went well for you, and sending positive vibes your way - all the stronger for coming from New York at the moment!
__________________
Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+,
C-erbB-2 status 3+.
Clear margins, no nodal involvement.
Radiotherapy, i year Tamoxifen, 4 years Arimidex.
Rediagnosed 2012: Multiple bone metastases.
3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo.
5/12:Unexpected development of numerous bilateral liver mets. Came off trial.
Started Docetaxol/ Herceptin + Zometa.
8/12:Bones stable +major regression in liver (!)
9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers!
Changed to Denosumab.
11/12: Scan shows stable - yay!
11/13: Still stable :-) !!!
1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly.
2/19: Happily still stable on Herceptin, Letrozole and 3 monthly Zometa.
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09-10-2013, 08:50 AM
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#22
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Senior Member
Join Date: Jan 2012
Location: Boulder Colorado as of January 2013
Posts: 389
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Re: Brain MRI Today!! ??
Waiting to hear how the results turned out. Nina is still clear on her MRIs for the brain and Spine. She was diagnosed November 2, 2009 with a large lesion on the brain, and December 15, 2011 with 25 to 30 lesions in the spine. I hope to hear that you do not have any disease progression into the CNS, but I want to give you hope that this is not the end of the fight. Zap them with Gamma knife, pull them out with surgery, or chemo them. Or better yet, don't have them get into your head. You can win.
Paul
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09-10-2013, 05:41 PM
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#23
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Re: Brain MRI Today!! ??
Loving, sunshine-drenched powerful healing light beaming at you yesterday and today.
Awaiting word...
Much love,
andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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09-10-2013, 06:29 PM
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#24
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Senior Member
Join Date: Feb 2012
Location: Ontario, Canada
Posts: 115
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Re: Brain MRI Today!! ??
I've been thinking about you.
Let us know Denise.
My MRI is Friday the 13th too!
WOW....you guys get results fast in the states.
xoxo Jill
__________________
[
Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
[/SIZE][/FONT]
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09-10-2013, 07:35 PM
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#25
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Senior Member
Join Date: Jul 2011
Location: Melbourne, Australia
Posts: 432
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Re: Brain MRI Today!! ??
Adding my love and prayers too my friend.
A xx
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09-11-2013, 06:39 AM
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#26
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Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
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Re: Brain MRI Today!! ??
My Friends...
May I quote my neurologist?
"I am thrilled with the results of your MRI!"
Yay! Such a relief!
And this from a man who doesn't look like he 'thrills' easily!
So, ironically he didn't have access to the actual images yesterday due to a computer system issue. But he did have the report from the radiologist who read the scans.
And I, of course, had already viewed the images and self-diagnosed the previous evening. 
Having never actually done a residency in either radiology or neurosurgery,
I was willing to withhold judgement until the actual medical professionals weighed in.
(Okay... so I've never done a residency in anything...
but I'd like to see one of these guys teach a 6 year old to read!
Or a 13 year old to gasp, "I love Algebra!" We all have our gifts!)
But I digress... the specifics...
~no new lesions
~dare I say it?... NED in the brain?
Oh My God!! Thank you! Thank you!
No one actually said NED, but they never do...
I'm figuring since in June all my body scans were clear...
and now two brain MRIs in a row show no evidence of disease...
don't I get to claim to be NEDenise again for a while?
If I'm thinking that through wrong...
someone please tell me before I get too excited...
only to crash back to reality.
~necrosis stable in size
~less dense, and not drawing 'extra blood'
~ Mickey (AKA my brain stem) looked a little less 'squashed' to me too
~theGoo Gobbler looked exceptionally happy (that's the grasshopper-y guy)
~and if can capture the image from the disk, I'll post it...
I swear there's a new player in the game that my son is certain must be my Chemo Ninja!
(I thought it looked a little demonic...
but my sweet son stated emphatically,
"Mom, what would a demon be doing in YOUR brain...
ninja's look pretty scary too."
Blessings on top of blessings!)
So... the plan is to go back to my ins co, and petition for more Avastin.
Since it's working, I'm hoping it won't be a stretch.
(Even the dreaded tumor board agrees with me now!
In fact I've authorized my neurologist,
who BTW chairs the committee and has been a truly unwavering advocate for what I want/need...
he has been commissioned to convey the message, "Ha ha - ha ha ha... I was right".)
The key now is to pray that the Avastin keeps working...
that Herceptin and lapatnib keep working...
that my heart/EF stays above 50%...(it was a little too close for comfort this time)
and I finally say goodbye to dex for a while.
Still a lot of 'stuff' to bug The Big Guy about... but it seems to be working!
The very best of good luck wishes, and LOTS of prayers headed out for all of you with scans coming up!
I'm so touched by your prayers and good wishes for me. Trust me when I tell you that when I count my blessings... I count you guys twice!!
Love to all!
Denise
PS - Andi... I thought you were joking... but maybe my name really is inscribed in "The Book of Life" this year!!
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09-11-2013, 06:53 AM
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#27
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Senior Member
Join Date: Nov 2012
Posts: 67
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Re: Brain MRI Today!! ??
I am so happy for you!!!!
__________________
Cathy
Routine mammogram 6-29-11
Ultrasound 7-5-11
Biopsy 7-11-11
Right modified radical mastectomy 7-18-11 with 7 out of 24 lymph nodes positive
Stage IIIC, Grade 3, Estrogen + 100%, HER2 +
Had 5 tumors in right breast, none of which showed up on the mammogram (What showed up on mamm was a lymph node)
Lymphatic vascular invasion
Lymphedema right arm (started shortly after surgery)
TCH started August 15, 2011
Finished Taxotore and Carboplatin 11-28-11
Radiation x 36 - finished Feb. 3, 2012
Herceptin weekly for 1 year - finished 8-13-12
Arimidex started Feb. 2012 for 5 years
Left prophylactic total mastectomy March of 2012
Arimidex stopped August 2014 due to side effects
Aromasin started Sept. 2014
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09-11-2013, 07:14 AM
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#28
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Senior Member
Join Date: Apr 2012
Location: Melbourne, Australia
Posts: 494
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Re: Brain MRI Today!! ??
Hooray!!!!!!!!!
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09-11-2013, 08:13 AM
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#29
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Senior Member
Join Date: May 2011
Posts: 137
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Re: Brain MRI Today!! ??
So grateful NEDdenise is backkkk!! Doing a lil' happy dance and flooded with pure joy this morning at reading your news. Prayers work! Enjoy this beautiful day!
__________________
3-16-11 dx IDC 4.4 cm tumor, right breast,HER-2 neu 3+++, Stage III
3-25-11 PET scan shows 3 mets to liver and 1 to spine, Stage IV
4-12-11 start clinical trial of TDM1 infusion 1x every 3 weeks.
6-14-11 CT scan after 3 cycles shows NO liver spots, reduced spinal met from 18mm to 13mm and right breast mass from 4.4 to 4.2 cm.
8-12-11 Mastectomy rt. breast.
10-11 scans reflect stable cancer
12-11 MRI reveals area of concern in brain, CT scan reveals 3mm spot on lung. Watch and wait and rescan in a few weeks. Round 13 TDM1 complete.
2-21-12 Scans reveal progression in lungs with 4 new small mets. Officially off tdm1. Start halaven and radiation for single brain met, 1 spot in spine.
3-13 stereotactic radiosurgery for single brain met.
5-31-12 Halaven stopped due to low blood counts. Start tamoxifen and cont. Herceptin 1x3 weeks.
7-11-12- brain mri shows shrinking brain met and no new lesions. Cont. Herceptin and Tamoxifen
10-2-12 Stable tumor markers. Continue Herceptin and Tamoxifen
4-9-13 progression in lymph node under arm and new lung spots. Stop Tamoxifen. Add Xeloda to Herceptin.
6-10-13 Stereotactic radiosurgery to two new brain mets. Stop Xeloda due to lung mets progression. begin Tykerb 7-2-13.
10-29-13 Begin radiation to my lungs and one lymph node under my arm. Stop Tykerb until completion and then recommence.
1-31-14 Progression in lungs. Oophorectomy performed.
2-18-14 Begin Arimidex and continue Herceptin
7-7-15 progression with spots on colon, in pelvic region, and in lungs. Begin Taxotere, Perjeta and Herceptin.
11-15 Switch to weekly Taxol, and continue with Perjeta and Herceptin.
12-23-16 PET scan shows Complete Response with no new spots. Continue on with TPH indefinitely.
3-16-16 Still no evidence of disease, break from Taxol. Continue on with Perjeta and Herceptin.
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09-11-2013, 08:14 AM
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#30
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Senior Member
Join Date: Aug 2013
Location: Texas
Posts: 61
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Re: Brain MRI Today!! ??
That's Wonderful news!!!
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09-11-2013, 09:07 AM
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#31
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Senior Member
Join Date: Jan 2011
Posts: 36
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Re: Brain MRI Today!! ??
God is good! Thanks for letting us know. Enjoy dancing with NED!!!
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09-11-2013, 09:14 AM
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#32
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Senior Member
Join Date: Oct 2011
Location: British Columbia, Canada
Posts: 139
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Re: Brain MRI Today!! ??
Excellent! I too am thrilled with the results of your MRI! Let the healing continue!
__________________
Dx Age 47 July/09 Stage 2B/3
Left Mast. Aug 09- 1 of 3 positive nodes in axillary dissection (yes only 3)
ER+ 90%, PR+ 20%, HER2+++
4 x AC, 4 x Paclitaxol and H (Neupogen for 7 cycles), Herceptin complete Nov 10
Mar–Apr 2010 25 Rads
Apr 10-Oct 11- Tamoxifen
Oct 11 – 3 cm met to sternum
Oct 11-Letrozole for 3 mths, start Clasteon-bone remodeller
Nov-Dec 11 - Happy 50th Birthday -20 rads to sternum
Jan-April 2012 Taxotere/Herceptin-6 cycles (Neupogen for 5)
Herceptin every 3 weeks-Letrozole added Nov 2012
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09-11-2013, 09:21 AM
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#33
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: Brain MRI Today!! ??
NEDHEAD rather than DEADHEAD - but you may still listen to "The Grateful" if you want!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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09-11-2013, 10:02 AM
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#34
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Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
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Re: Brain MRI Today!! ??
NEDenise,
That is amazing news. I am thrilled for you.
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09-11-2013, 01:45 PM
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#35
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Senior Member
Join Date: Apr 2011
Posts: 403
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Re: Brain MRI Today!! ??
Very happy for you !!!
__________________
1/11 age 36 DX
ER/PR-, Her2 +
TCH*6, Herceptin
BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes
9/11 Radiation
3/12 Local recurrence to skin stage IV
Whole body scan CLEAR
4/12 Tykerb & Xeolda Skin mets slowly regressing
8/12 PET & Brain CT Clear
5/13 Skin mets progressing
6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes
6/13 kadcyla
10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence
11/13 to 02/14 tykerb & herceptin
02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose
05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo
05/14 navelbine perjeta herceptin
07/14 skin mets progressing red rash worse
08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks
09/01/14 resection- clear margins
3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer
Radiation 11/2014 with xeloda then weekly cisplatin
11/14 brain MRI clean
12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week
12/14 t current Herceptin and perjeta only
02/15 rash on upper back right side skin mets radiation planned
02/15 staring electron radiation *35
Stopped at 30 due to severe skin burn, resumed 10 days later
05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska.
05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line
07/15 multiple skin and lung recurrence begin halaven
11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious
11/15 heading to China for immune therapy
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09-11-2013, 01:46 PM
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#36
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Senior Member
Join Date: Oct 2012
Posts: 645
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Re: Brain MRI Today!! ??
wonderful news!
__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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09-11-2013, 01:59 PM
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#37
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Re: Brain MRI Today!! ??
  DENISE, I AM SO PROUD OF YOU! STABLE. STABLE. STABLE. NED IN THE HEAD.
I remember one onc telling me, I guess we can say you're in cautious remission. Paul and I lunged at that. Stable was the best any other onc could muster. And no one ever uttered NED. And I remained on Herceptin for 9 1/2 more yrs...
Well done, NEDenise!
BTW, I would never joke about being inscribed. It will be a sealed deal by sundown Saturday!
To keep my EF above 50% I took/take 2 Dr. Best's ARGENINE -- slow release and immediate release. That stuff works great! Just saying... Vitacost.com is among my best buds.
LOVE YOU, dear Sister!  !!!!!!!!!
Andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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09-11-2013, 01:59 PM
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#38
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Senior Member
Join Date: May 2010
Posts: 41
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Re: Brain MRI Today!! ??
Yay Yay, hope you have given up your normal walk for a NED dance for good. Such awesome news!!
Love and heres to many,many more blessings your way
Pat
__________________
Oct 07 - Dx PR+/ER+/HER2
Jan 08 - Double mastectomy
Feb 08 - Pet Scan showed liver met
Mar 08 - Started chemo A/T
Aug 08 - Herceptin
Aug 08 - Cyberknife treatment to liver met
Apr 10 - Bone scan showed met on spine L2
May10 - Cyberknife treatment to spine L2
added Zometa quarterly
Jan 12 - Pet scan show mets in lymph nodes
in rib cage area, one near panaceas. Add Tykerb
Nov 12 - New primary colon cancer, not breast met
Dec 12 - Surgery for colon cancer stage II no node involvement. No chemo. Added Leterzole
Continue weekly Herceptin/Zometa/Letrozole
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09-11-2013, 02:10 PM
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#39
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Senior Member
Join Date: Feb 2013
Location: Lincoln, NE
Posts: 265
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Re: Brain MRI Today!! ??
YEAH Denise!!! Truly God hears our prayers...we've just got to keep knockin' on Heaven's Doors!! <3
__________________
10/18/12 Found pea size lump right breast
11/7/12 Biopsy
12/14/12 Lumpectomy
1/4/13 Rexcision, NO CLEAR MARGINS!! :(
2/11/13 Mastectomy with Expander Placed
2/15/13 INFECTION at Mastectomy site...emergency Surgery!!! Expander removed :(
DX: DCIS, IDC, Stage 2a, 2.7cm, 1/5 nodes positive
ER/PR-, HER2+++
3/28/13 Port placed
4/1/13 Begin 6 Cycles TCH Therapy
4/1/14 Finished Herceptin!!
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09-11-2013, 02:11 PM
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#40
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: Brain MRI Today!! ??
Yes! Yes! Yes! You've made my day, Miss Denise!
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