HonCode

Go Back   HER2 Support Group Forums > Herceptin / Tykerb
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Herceptin / Tykerb Share your experiences or ask questions about Herceptin or Tykerb

Reply
 
Thread Tools Display Modes
Old 02-15-2015, 12:37 PM   #1
forher
Senior Member
 
forher's Avatar
 
Join Date: Nov 2014
Posts: 83
Trying to decide whether to take Tykerb

Hi, I was wondering if anyone out there has/had brain mets and what your tx has been. My January MRI showed shrinking from stereotactic rads and no new ones. But how long does it take to really shrink?
I restarted herceptin every 3 weeks even though it does not cross BBB. It just makes feel better taking it. My body CT and PET show no disease. I can take Tykerb but I decided to wait until my next MRI to consider taking it. Any thoughts or comments on tx?
I feel fine and my headaches are pretty much gone. I just don't know if I should be proactive and take the Tykerb or do the "wait and see".
Thanks.
__________________
June 2013 DX Stage 3 Idc, rt breast, er/pr-, her2+++
PET/CT/Brain MRI clear
ACTHP until Dec 2013
BMX Dec 2013
28 Rads Feb 2014
Exchange surgery June 2014
Herceptin end Sept 2014
Headaches start Oct 2014
CT body clear Nov 2014
Brain MRI 4 lesions Nov 2014
SRS via LINAC in Dec 2014
Rt side infection, hospitalized, lost right implant on Jan 1, 2015
Jan 14 2015 MRI brain lesions shrinking
Jan 27 2015 Re-start herceptin every 3 weeks
Feb 2015 CT/PET Body clear
Re-start Lymphedema treatment April 2015
Breast MRI clear April 2015
Brain MRI April 2015 - shows everything stable, nothing new (whew)
CT scan June 2015 - clear
forher is offline   Reply With Quote
Old 02-16-2015, 11:16 AM   #2
Lucy
Senior Member
 
Join Date: Oct 2014
Posts: 293
Re: Trying to decide whether to take Tykerb

I haven't had brain mets so don't know how long they take to shrink. When is your next MRI scheduled? That would probably be a factor in my decision on treatment because I wouldn't want to wait if it was going to be a while but if it was within the next couple of weeks, I'd probably go ahead and wait to see what the MRI showed. Have you asked your oncologist about it?
Lucy is offline   Reply With Quote
Old 02-16-2015, 12:44 PM   #3
forher
Senior Member
 
forher's Avatar
 
Join Date: Nov 2014
Posts: 83
Re: Trying to decide whether to take Tykerb

Hi Lucy, so nice of you to reply. Sometimes I feel like posting here gives my husband and I a chance to think aloud as we go through this journey. I just had an MRI in Jan so my next one is in April, about 7 weeks away. I got a second opinion at UCSF and that onc said Tykerb is an option if I wanted. At first, when I discovered the brain mets, I wanted to take it right away. But after rads, (and recovery, the fatigue and headaches were awful after just those 2 SRS sessions, I feel so much better. I'm actually feeling like my normal self again (well, except for what seems like long term neuropathy and sleepless nights). But then I think, those pesky mets can creep up on me at any time. I don't know if I want to deal with the SE of Tykerb right now. Still thinking on it. Hoping others will chime in, for any feedback.
__________________
June 2013 DX Stage 3 Idc, rt breast, er/pr-, her2+++
PET/CT/Brain MRI clear
ACTHP until Dec 2013
BMX Dec 2013
28 Rads Feb 2014
Exchange surgery June 2014
Herceptin end Sept 2014
Headaches start Oct 2014
CT body clear Nov 2014
Brain MRI 4 lesions Nov 2014
SRS via LINAC in Dec 2014
Rt side infection, hospitalized, lost right implant on Jan 1, 2015
Jan 14 2015 MRI brain lesions shrinking
Jan 27 2015 Re-start herceptin every 3 weeks
Feb 2015 CT/PET Body clear
Re-start Lymphedema treatment April 2015
Breast MRI clear April 2015
Brain MRI April 2015 - shows everything stable, nothing new (whew)
CT scan June 2015 - clear
forher is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 02:08 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter