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09-25-2011, 12:38 PM
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#1
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Senior Member
Join Date: Jan 2007
Location: UK
Posts: 617
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pain in shoulder blade when I breath deep
Is it a common lung mets symptoms..it started today
I am waiting to see if they can get tumours zap them still I am praying that it has not reached the lining..so it can still be done. appointment 5 oct
Can't access tdm1 since already had xeloda
waiting about vinorelbine to see what laser says first so we holding on (did not see my usual onco..not sure it is the right decision). the doc I saw is such a negative idiot he told me that I had many different chemo and that any new chemo (like vino) is unlikely to help..
I just want to keep things stable until they laser ( I hope and pray they can)
thinking of taking tykerb high dose until then, I remember reading about this has anyone had any success with it?
I have registered for the vaccine trial but do not think that without the laser I will be alive when it will be available.
Until then, I have been living and I am looking at the dog puppy I want to buy at the moment and the camper van tour I am planning after this I see my friends and even go dating. Because I decided to either live or die, but none of that middle shit (excuse my French) where you so afraid to die that you are not living..
I am not religious but still I would like you to pray for me please
__________________
35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
Last edited by fullofbeans; 09-25-2011 at 12:59 PM..
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09-25-2011, 01:04 PM
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#2
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: pain in shoulder blade when I breath deep
FOB
Prayers coming your way!
Don't listen to idiot Drs. You still have lots of options to go and lots of new stuff coming online soon.
The vaccine trial sounds exciting as well. I am still looking at that option.
Hang on in there. This is a blip but one you will get over.
Ellie
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09-25-2011, 01:48 PM
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#3
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Senior Member
Join Date: Jun 2011
Location: Somerset, NJ
Posts: 487
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Re: pain in shoulder blade when I breath deep
I'm not religious either, FOB, but I have been praying for you (and others) since I first signed on here.
I've actually done some reading on the subject of prayer, and several studies have demonstrated that human thought sent in an outward direction (whatever your spiritual beliefs or how you choose to characterize it) can have a powerful positive effect on outcomes.
I've read a lot of your posts, both old and new. You are a strong woman, and you will endure.
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09-25-2011, 01:52 PM
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#4
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: pain in shoulder blade when I breath deep
FOB,
You can count on my prayers from Texas...
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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09-25-2011, 02:07 PM
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#5
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Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
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Re: pain in shoulder blade when I breath deep
I deeply believe in the power of prayers - they give me peace and strength. I am praying with all my heart for you to stable and have a successful laser treatment.
hugs,
shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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09-25-2011, 02:58 PM
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#6
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Senior Member
Join Date: Jan 2007
Location: UK
Posts: 617
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Re: pain in shoulder blade when I breath deep
Thank you so much for your encouragement and prayers it warms my heart. Yes I believe in the power of prayers and I believe in having something to look forwards.
I have kind of settled for a spugs. It is a cross pug and japonese spits dog. I will go and see the pup this week and will report. They will be ready end of Oct which hopefully will be after I have done laser treatment and will be recovering, my birthday is 17th of oct. It is a small dog and I have a garden so it should be fine and will be encouraged to use my lungs on small walks.
__________________
35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
Last edited by fullofbeans; 09-25-2011 at 03:11 PM..
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09-25-2011, 03:09 PM
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#7
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Senior Member
Join Date: Jan 2007
Location: UK
Posts: 617
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Re: pain in shoulder blade when I breath deep
__________________
35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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09-25-2011, 04:25 PM
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#8
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: pain in shoulder blade when I breath deep
Sorry to start off with a negative thing, but I don't agree with the new oncologist you saw. I think we all have alot of possibilities now and will have even more in the future. We just have to talk to knowledgeable oncologists and do a little research on our own, so we can suggest things to the oncologists ourselves.
In any case count me in for prayers and keeping my fingers crossed for you.
Enjoy the new puppy !!
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09-25-2011, 04:33 PM
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#9
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Senior Member
Join Date: Jan 2007
Location: UK
Posts: 617
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Re: pain in shoulder blade when I breath deep
I agree with you Elaine. The prob is that now if I asked to see my onco then it would be difficult for him to disagree with the other onco verdict..
All I can do is to never asked to be seen by him again. I saw him once before and also heard from other woman he is sooooo negative. He told me three times when I gave hiom the trial I wanted them to send my info to.. "you know you will not be cured.." three times! He knows I am knowledgeable.. I cannot explain but he gives me the creeps..
Maybe I should ask to be seen again, i know from this board some ladies responded to vino despite being heavily pre treated no??
__________________
35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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09-25-2011, 05:14 PM
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#10
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: pain in shoulder blade when I breath deep
Puppies and prayer! What could be more therapeutic? Got your back, Beans, prayers forthcoming.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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09-25-2011, 08:35 PM
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#11
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Senior Member
Join Date: Apr 2011
Location: Michigan
Posts: 1,173
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Re: pain in shoulder blade when I breath deep
Fullofbeans,
You can count on me to be praying for you!
That is one cute Pup!
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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09-25-2011, 09:39 PM
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#12
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Re: pain in shoulder blade when I breath deep
Get that puppy and take him camping! Good medicine! What will his name be?
keep the faith.
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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09-26-2011, 03:18 AM
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#13
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: pain in shoulder blade when I breath deep
Hi FOB
Tried the link to the puppy but no picture! Will try to google it.
It's very hard when you get a negative onc. I know that from personal experience. My first onc stopped herceptin when I recurred and told me it was a waste of money!! Fortunately my sisters here on the board were outraged and pushed me to get another opinion. I was very new and naive at that stage I know.My second op onc restarted herceptin with taxotere and then referred me to a similar minded colleague at a centre nearer home. They have all been clear that they can't cure my bc but are more positive about controlling it and giving me a quality of life.
Who knows whats round the next corner? Who knows what plan God has for any of us and who knows whether tomorrow may be the day some gifted scientist stumbles on the cure!
If you still feel unhappy get your GP to refer you to another centre for a second opinion. Sometimes fresh eyes are good.
Ellie
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09-26-2011, 03:27 AM
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#14
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Senior Member
Join Date: Jun 2011
Location: Somerset, NJ
Posts: 487
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Re: pain in shoulder blade when I breath deep
I hope this works, because otherwise, all anyone will see is a post that says "I hope this works."
Anyway, what's below this should be a picture of the puppy in the above link:
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09-26-2011, 03:39 AM
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#15
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: pain in shoulder blade when I breath deep
It's worked and is sooooooooooooo cute! Just want to give it a cuddle.
Thanks
Ellie
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09-26-2011, 05:51 AM
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#16
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Re: pain in shoulder blade when I breath deep
FOB
Hope you get your answers soon...I had great results with Navelbine (Vinorelbine) for a while, and I was heavily pretreated....it is worth a try. It seems to be especially good for liver and lung.
A new puppy, how exciting....faithful, rambunctious, mischievious....a ball of energy...that sounds to be just waht you need.....
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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09-26-2011, 08:04 AM
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#17
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Senior Member
Join Date: Jul 2011
Location: ottawa canada
Posts: 367
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Re: pain in shoulder blade when I breath deep
pain in shoulder: is it the back shoulder blade? gall bladder?
__________________
fall 2008: mammo of rt breast worrisome so am asked to redo mammo and have ultrasound of rt breast.I delay it til january 2009 and the results are "no cancer in rt breast. phew."
found plum sized lump in right breast the day before my dad died: April 17th 2011. saw it in mirror, while i was wearing a top, examining my figure after losing 10 lbs on dr. bernstein diet.
diagnosed may 10 2011
mast/lymphectomy: june 7 2011, 5/20 cancerous nodes. stage 3a before radiation oncologist during our first mtg on july 15th says he found cancer on the lymph node of my breast bone. Now stage 3b.
her2+++, EN-, PN-. Rt brst tumors:3 at onset, 4.5 cm was the big one
chemos: 3fec's followed by 3 taxotere, total of 18 wks chemo. sept: halfway thru chemo the mastectomy scar decides to open and ooze pus. (not healed before chemo) eventually with canasten powder sent by friend in ny (illegal in canada) it heals.
radiations:although scheduled to begin 25 january 2012, I am so terrified by it (rads cause other cancers) I don't start til february, miss a bunch, reschedule them all and finally finish 35 rads mid april. reason for 7 extra atop the 28 scheduled is that when i first met my rads oncologist he said he saw a tumor on the lymph node of my breastbone. extra 7 are special kind of beam used for that lymphnode. rads onc tells me nobody ever took so long to do rads so he cannot speak for effectiveness. trials had been done only on consecutive days so......we'll see.....
10 mos of herceptin started 6 wks into chemo. canadian onc says 10 mos is just as effective as the full yr recommended by dr. slamon......so we'll see..completed july 2012.
Sept 18 2012: reconstruction and 3 drains. fails. i wear antibiotic pouch on my job for two months and have 60 consecutive days visiting a nursing centre where they apply burn victims' silver paper and clean the oozing infection daily. silicone leaks out daily. plastic surgeon in caribbean. emergency dept wont remove "his" work. He finally appears and orders me in into an emergency removal of implant. I make him promise no drains and I get my way. No infection as a result. Chest looks like a map of Brazil. Had a perfectly good left breast on Sept 17th but surgeon wanted to "save another woman an operation" ? so he had crashed two operations together on my left breast, foregoing the intermediary operation where you install an expander. the first surgeon a year earlier had flat out refused to waste five hours on his feet taking both boobs. flat out refusal. between the canadian health system saving money and both these asses, I got screwed. who knows when i can next get enough time off work (i work for myself and have no substitute when my husband is on contract) to get boobs again. arrrgh.
I have a blog where I document this trip and vent.
www.nora'scancerblog.blogspot.com . I stopped the blog before radiation. I think the steroids made me more angry and depressed and i just hated reading it anymore
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09-26-2011, 09:12 AM
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#18
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Senior Member
Join Date: May 2010
Location: Elizabethton, TN
Posts: 418
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Re: pain in shoulder blade when I breath deep
FOB - one more thing to consider. I had horrible pain in my shoulder last year when I was doing chemo. Turned out to be blood clots in my lungs (3 total). Don't wait too long to get this checked - there are lots of possible causes. I think we've all found that there are drs. out there whose arrogance won't allow them to be challenged. Those are the docs we should avoid because there are many more who are compassionate and appreciate well-informed patients. Will keep you in prayers daily as I pray for all the women on this forum.
__________________
Joni -64 yrs old -
3/01/10: found lump in rt.breast
3/12/10: mammogram/ultrasnd/biopsy-invasive bc & DCIS; 2 tumors (2cm er-/pr-/HER2-& 1.8 cm er-/pr-/HER2+); grade 3;poorly differentiated
3/24/10:sent.node biopsy clear
3/31/10:bi-lateral mx.;atypical ductal hyperplasia-lft side
4/21/10:wound revision-infection/scarring 4/28/10:seromas both sides
5/21/10:port installed,TCH chemo (6 x 3 wks); Herc,-1yr; 33 rad tx after chemo
07/2010: port not working-2nd port didnt'work;3rd port opposite side.
07/2010: 2 weeks after 3rd port surgery, threw 3 pulm. emboli-IVC filter installed; warfarin
08/2010: hospitalizations w/3 of chemos; decision to stop after 4th-on to radiation in Oct 2010;Herc cont.
12/03/2010 - finished 33 rads Hooray!! cont. Herc. every 3 wks
4/2011 - pneumonia ??? Nope-radiation pneumonitis. No more Herc.
5/2011 - NED!!! port out.
8/2011 - clean PET & CT scans.Still NED
7/2012 - Still NED/very blessed.
2/2013 - 6 mos checkup-all clear. CA2729 down frm 13 to 11.
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09-26-2011, 09:35 AM
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#19
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Re: pain in shoulder blade when I breath deep
If cute could cure....it'd be a done deal.
But, I'll add my prayers and encourage your determination to overcome and outdo that neg. guy! ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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09-26-2011, 01:19 PM
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#20
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Re: pain in shoulder blade when I breath deep
FOB,
Yes, don't listen to the idiot doc. We all know that it is not curable (yet) but that does not mean it can't be managed. Some of these doctors just don't get how much words matter, and so we have to remind each other.
Each chemo drug work differently, and unfortunately you just don't know until you try. Chemosensitivity assays might be helpful but are not "approved" and thus a hard sell to get - and you have to have a lot of "tissue" that can be biopsied.
But I reject the "nothing will work" theory. And so should you.
Prayers for sure, mixed with a little envy at your cute new little therapist!
Hang in there!
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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