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Old 08-07-2015, 08:09 PM   #1
annettchen
Senior Member
 
Join Date: Mar 2014
Posts: 95
Talking Re: Calling all stage iv sisters

I guess I'm not really that long term yet, but here goes: I got scan results back today - there's still inactive scarring in my bones (T10/11), but otherwise, I got a clean scan - nothing in the organs, and brain is clean, too.

I feel blessed and very, very grateful. I have been on Herceptin / Perjeta / Xgeva only since July 2014, and can at this point lead a perfectly normal life (except for treatment every 3 weeks, and scans). When I was first diagnosed I felt like I needed to get my things in order immediately. Now, I am hoping I will still see my daughter have her first double digit birthday in 3 1/2 years.

One day at a time. Life is good.
__________________
Annette
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03/2014: Diagnosed with ER/PR-, HER2+++ MBC (bone mets, oligometastatic)
04/2014: Started 6 cycles of "PHD" (Perjeta, Herceptin, Docetaxol)
07/2014: Finished 6 cycles of PHD; restaging; 2 bone mets are sclerotic - looks like Herceptin and Perjeta is working
10/2014: STABLE!
01/2015: STABLE!
04/2015: STABLE!
08/2015: STABLE!
12/2015: BRAIN METS. BODY STABLE.
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Old 08-08-2015, 12:39 AM   #2
dawny
Senior Member
 
Join Date: Oct 2011
Location: Geelong, Australia
Posts: 250
Re: Calling all stage iv sisters

Hello everyone, I am so glad that this thread is still going. I have just had a read over right from the first post. I am feeling sad to see how many we have lost since then, but also buoyed by how many of us are still here.

I am currently NED, and have been this time around for around 20 months. On Herceptin only.

Best wishes and hugs to everyone!

Dawn. Xxxxx
__________________
Dx May 27 2011, age 43
Stage 1V 3.6cm breast lump, spot on lungs, nodes chest + neck
HER2+ ER/PR-
Abraxane weekly - 16 weeks
Herceptin every third week
September 26 2011 N.E.D!
Herceptin ongoing
8th Dec 2011 Brain MRI - clear
20th Dec 2011 bone/cat scan clear still NED
April 2012 scans show axillary node lump - ? what to do...
June 2012 Axillary node dissection 1/11 nodes affected, a wide local excision shows DCIS. Now what to do again? Watch and scan 3 monthly
April 2013, two spots in nodes to chest wall, start TDM1 (Kadcycla) as part of clinical trial
July 2013 stable
Oct 2013 progression off TDM-1 (Kadcycla)
Nov 2013 radiation to lymph nodes in sternum
Dec 2013. Mastectomy right side, pathology shows tumour was HER-2 negative, no wonder TDM-1 (Kadcycla) didn’t work!
April 2014 NED. On Herceptin only
August 2014 NED. On Herceptin only
March 2015. NED. On Herceptin only
September 2015 NED on Herceptin only
March 2016. Pulmonary embolism, Clexane injections daily forever. Still NED On Herceptin only
Nov 2016. Bone Mets in ribs - Radiation. Don’t know if bone Mets are er-/pr-/HER2+ or triple negative.
Can’t give self injections on to tablets (Xarelto) for blood clots.
2017 NED - On Herceptin only
2018 NED - On Herceptin only
2019 NED - On Herceptin only
2020 NED - On Herceptin only
2021 NED - On Herceptin only
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