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08-03-2010, 02:46 PM
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#1
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Senior Member
Join Date: Oct 2005
Location: Lakeville, Minnesota
Posts: 199
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Muga Scan Results
I got my muga scan results, and my ejection fraction is 51. I am nervous as I have had my first dose of herceptin last week, since being diagnosed stage 4, and will be having my second one tomorrow.
How low will an onc usually let it go before they would stop Herceptin?
I will start taking cq10. any other suggestions?
thanks for any help
Laurie
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08-03-2010, 03:42 PM
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#2
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: Muga Scan Results
They usual will stop Herceptin if Muga drops below 50 which your close too. But the good thing is once you stop the heart usually bounces right back. The CO Enzyme Q10 would be a great thing to start as it really looks like it helps alot. Another thing that seems to sometimes help is when you have your Herceptin infusions have them slow down the rate at which it's given. Most get it in 30 minute infusions. I always have mine in a hr or sometimes longer. I really believe it's easier on the heart. (JMHO)
I am sure some other ladies will chime in. There are lots of ladies that have had to stop Herceptin...but were still able to continue after a break. So hang in there.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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08-03-2010, 04:05 PM
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#3
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: Muga Scan Results
I got the same number (51) in the middle of my chemo (TCH). The oncologist did not order another one until I had completed the 18 weeks plus 4 weekly Herceptin. I think the rule of thumb is either below 50 or when the score has dropped more than 10%.
There are several ladies on the Board that were able to increase their MUGA score by exercising and taking CQ10. I myself have mitral valve prolapse, a congenital condition, which I thought might have been the culprit.
__________________
Jackie07
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Last edited by Jackie07; 08-03-2010 at 04:09 PM..
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08-03-2010, 04:18 PM
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#4
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Senior Member
Join Date: Aug 2009
Location: Moultrie, GA
Posts: 431
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Re: Muga Scan Results
Some one on the board also received a medication (could have been Cozaar) that helped her maintain her ejection faction. I am sure your doctors will know. Also, if you feel like it, several others have added walking to their daily routines. Good luck!
Sandra
__________________
Diagnosed: 7/25/08 ~ age 63, no family history
Surgery: 8/14/08 Bilateral mastectomy; tumor left breast, node dissection; right prophylactic with expanders: 1/12/10 latisimuss dorsi flap on left side: 9/22/10 implants in
Pathology Report: ER/PR-; HER2+ (3+); Grade 3, StageIII; 3cm tumor plus 21/21 lymph nodes positive; 5cm DCIS
Chemo: A/C; Taxol/Herceptin/Tykerb; phase II study at Mayo adding Tykerb for early stage
Radiation: 25 rads
Vaccine: Walter Reed GP2/AE37 vaccine study ~ last booster 9/17/2012
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08-04-2010, 06:07 AM
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#5
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Re: Muga Scan Results
Laurie
I was put on Coreg by a cardiologist to strengthen my heart....they did not want me on CoQ10. The Coreg has improved my function and I have remained on Herceptin (over 7 years straight)...
Also the timing of the muga in proximity to the dose of Herceptin can affect the results....I have found that Oncologists order Mugas, while Cardiologists order echocardiogram....less radiation and a better picture of the heart! Ask for a referral to one and see what they say!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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08-04-2010, 08:11 AM
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#6
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Senior Member
Join Date: Aug 2009
Location: Moultrie, GA
Posts: 431
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Re: Muga Scan Results
Thank you Shelia. I knew it started with a "c". I just wanted Laurie to have that information. Thank you again.
Sandra
__________________
Diagnosed: 7/25/08 ~ age 63, no family history
Surgery: 8/14/08 Bilateral mastectomy; tumor left breast, node dissection; right prophylactic with expanders: 1/12/10 latisimuss dorsi flap on left side: 9/22/10 implants in
Pathology Report: ER/PR-; HER2+ (3+); Grade 3, StageIII; 3cm tumor plus 21/21 lymph nodes positive; 5cm DCIS
Chemo: A/C; Taxol/Herceptin/Tykerb; phase II study at Mayo adding Tykerb for early stage
Radiation: 25 rads
Vaccine: Walter Reed GP2/AE37 vaccine study ~ last booster 9/17/2012
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