HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 11-09-2006, 08:01 AM   #1
kari
Senior Member
 
Join Date: Jul 2006
Location: ontario, canada
Posts: 48
Red face Blood work before Herceptin

Greetings!
Looking for info on what "standard" protocol seems to be for pre-Herceptin blood work. I will be doing Her. once every three weeks for a year.
My onc says it's not necessary every time because Herceptin doesn't have the same effect on white count that chemo does. She is willing to do a "baseline" before my first one next week. My chemo nurse, when I called and asked her, said they do blood work every time before Herceptin. Other women I have talked to say they get it done every third treatment (or 9 weeks).
I won't complain about not having to have blood drawn, but I want to be sure it isn't necessary to have it checked periodically, before I make too much of a fuss.
I am from Ontario, Canada, and perhaps some of the rationale is cost-driven, or maybe just different standard procedures, depending on the clinic.
Thanks for your replies! Blessings to all.
Kari

The Lord is my strength and my salvation.
kari is offline   Reply With Quote
Old 11-09-2006, 08:14 AM   #2
Hopeful
Senior Member
 
Join Date: Aug 2006
Posts: 3,380
Hi Kari,

My onc does a CBC before each treatment (every three weeks) which is just a finger stick and a few drops of blood. He does additional testing every other treatment, which I have yet to get a copy of, so I don't know what he is testing for. I should say that he is in private practice and has a laboratory at his office where they do the CBC work, so that may influence the frequency. He said it is his practice to get this blood work regularly on all his patients, so I don't think it is Herceptin specific.

Good luck to you.

Hopeful
Hopeful is offline   Reply With Quote
Old 11-09-2006, 08:27 AM   #3
Barbara
Senior Member
 
Join Date: Oct 2005
Location: Payson, Arizona
Posts: 96
Blood Work Before Herceptin

Hi:

I have a CBC before each Herceptin infusion which is the protocol for all the Herceptin patients in my oncologist's office. I am one of those patients who did get anemia and low white counts from Herceptin so they do not hang the Herceptin drip until they have the results. On the other Herceptin patients they do not wait to start the Hereceptin until the labs are back. Every other treatment or every six weeks, I have a complete chemistry panel and CA 27-29 to monitor for reoccurrences.


Barbara
Barbara is offline   Reply With Quote
Old 11-09-2006, 01:08 PM   #4
tousled1
Senior Member
 
tousled1's Avatar
 
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
I get blood drawn from my port before every Herceptin treatment. They do a CBC. My blood counts continue to be low on Herceptin - at least the red blood cells. I usually have to get a shot of Procrit. At least my white counts are finally in the "normal" although just over the nornal number. I also get the HER2 serum test done every 12 weeks.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
tousled1 is offline   Reply With Quote
Old 11-09-2006, 01:16 PM   #5
tricia keegan
Senior Member
 
tricia keegan's Avatar
 
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
Smile

I too get a cbc done before every infusion although I've had no problems at all and they don't wait for the results back before starting the iv.
I've just had my final tx today yippee!!!
Tricia
tricia keegan is offline   Reply With Quote
Old 11-09-2006, 01:27 PM   #6
kari
Senior Member
 
Join Date: Jul 2006
Location: ontario, canada
Posts: 48
Talking

Tricia,
So happy for you that you are finished with treatment!
Does that mean you are all done, except for follow-ups and monitoring?
It would seem so strange after a year or more of appointments and treatments to be able to sit back and breathe! Can't wait 'til I'm there.
Take care.
Blessings,
Kari

The Lord is my strength and my salvation
kari is offline   Reply With Quote
Old 11-09-2006, 04:09 PM   #7
Sheila
Senior Member
 
Sheila's Avatar
 
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
I have never had blood work before Herceptin in over 3 years...I do get it now that I am on Xeloda....I never had a problem with Herceptin.
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
Sheila is offline   Reply With Quote
Old 11-09-2006, 05:03 PM   #8
suzan w
Senior Member
 
suzan w's Avatar
 
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
I had a complete blood work up before each herceptin treatment, including a CA27/29. And a MUGA scan before the treatment started, for a baseline...and every 3 months during treatment. My year of herceptin was over on Oct. 4th. I feel slightly untethered now...floating free till January and my first "check-up"!!
suzan w is offline   Reply With Quote
Old 11-10-2006, 12:37 AM   #9
G. Ann
Senior Member
 
Join Date: Mar 2006
Posts: 78
Hi Kari,

When I first began Herceptin, no blood work until the 3rd month, and then again in the 7th month. That's when the hemoglobin and hematocrit began dropping to below normal in the "moderately" anemic range. Since then and after taking 3 iron pills, I am back in normal range and being monitored every 3 weeks. No problem with WBC. It's weird because during chemo my HGB & HCT stayed in low normal range or just a bit under normal range. Recently had colonoscopy/endoscopy and that came back with IBS and moderate inflammation for upper GI, but benign polyps. Herceptin seems to be the cause of low red blood counts.
G.Ann
G. Ann is offline   Reply With Quote
Old 11-10-2006, 05:59 AM   #10
astrid
Senior Member
 
astrid's Avatar
 
Join Date: Jun 2006
Location: Central North Carolina, USA
Posts: 112
I think the necessity for blood work really depends on the patient and how well they are doing. If blood count is an issue, they will draw it. If you want blood work for your own information ask for it. I started Herceptin in June 2006. I am on the every three week cycle. The first two months, I saw my ONC every time and labs were done every time. I am doing very well so labs are drawn every other time and I see my ONC every other time. My ONC will do a CA27/29 periodically. I think a CA27/29 is dependant on staging and lymph node involvement. Blood pressure, weight and temperature should be taken every time as the dose is dependent on weight.
__________________
DX 11/14/05, Stage 1C, Her2+ 3.4, ER+, PR+, K167 23%, Node Negative, MX0, Grade 3, 1.8CM, Lumpectomy 12/7/05; 6 rounds dense dose Taxol bi-weekly, 35 radiation, 1 year Herceptin, & Tamoxifen ongoing.
astrid is offline   Reply With Quote
Old 11-10-2006, 06:16 PM   #11
mke
Senior Member
 
Join Date: Aug 2006
Location: Toronto
Posts: 64
I'm in Ontario too and while I had blood work always before chemo, I only have it once every 3-4 times on herceptin. I'm on the 3 week schedule and have had no problems at all.
mke is offline   Reply With Quote
Old 11-12-2006, 03:50 PM   #12
juanita
Senior Member
 
juanita's Avatar
 
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
I had cbc before each treatment. That is the standard for my onc.
juanita is offline   Reply With Quote
Old 11-12-2006, 05:14 PM   #13
Becky
Senior Member
 
Becky's Avatar
 
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
I had a CBC every other Herceptin and full work up every three months (when I was on Herceptin - I am now done).


Kind regards

Becky
Becky is offline   Reply With Quote
Old 11-12-2006, 05:31 PM   #14
lisahammo
Senior Member
 
Join Date: Jan 2006
Location: Victoria, Australia
Posts: 95
I have a full FBE done every week. Herceptin was able to be started while we waited for the CBC results to come in.

Lisa
lisahammo is offline   Reply With Quote
Old 11-13-2006, 12:21 AM   #15
sarah
Senior Member
 
Join Date: Sep 2005
Location: france
Posts: 1,648
I get a complete blood count done with the CA 15,3 every 2 months. I take it 2 days before my Herceptin so it's at the same time. I've been told it isn't necessary every time - I get Herceptin every 3 weeks. Also every 3 months I get a sonogram of the heart. When I was on Taxol, I got blood work done before each injection - every week.
sarah
sarah is offline   Reply With Quote
Old 11-13-2006, 07:34 PM   #16
Adriana Mangus
Senior Member
 
Join Date: May 2006
Location: California
Posts: 668
Blood Work Before Herceptin

Hi: I have been on herceptin (recurrence) for the last 3 years and I do not get a blood test each time I receive herceptin which is every three weeks. I do however get a more complete lab work (Liver panel, CBC) about every 12 weeks when I see my onc. My doctor also mentioned to me that it's not necessary to have your blood drawn before herceptin since Herceptin does not cause problems like regular chemo. Good luck.
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
Adriana Mangus is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 09:37 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter