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03-18-2007, 01:35 AM
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#1
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Member
Join Date: Feb 2007
Location: Just outside Charlotte N.C. My mom and dad and sister and brother live close
Posts: 9
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where to go what to do
hi ya'll
roben has been diog. with liver mets. 3 years in after bone mets. and brain mets. much chemo has already happened. she's been on hersptin since 2003. this latest diog. is devastating her. doc's wanted to give her abbrexaine and avestin. the avestin was denied by the insurerace comp. because it is not apporved for breast cancer. she is doing the abbrexaine . her blood counts has been a problem.they never recovered after brain mets. and gemcitibine and carboplatin the bottem dropped out. platlets fell aslow as 6000 but are at 60000 today .blood counts are proventing her from getting into clinical trails.I'm looking for help and advice from ya'll can you help?
thanks jeff
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03-18-2007, 10:06 AM
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#2
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Jeff, here's a link to a site listing many drugs used for BC, maybe will give you some hope that not all options are exhausted. Also, is Roben on supportive care for the low blood counts, ie Neupogen for the white cells and Aranesp for the red? <3 Lolly
BreastCare Site: Common Breast Cancer Drugs
http://www.thebreastcaresite.com/een...256CCA00623800
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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03-18-2007, 10:33 AM
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#3
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Hi, me again. I had to attend to some home business so my first post was somewhat abrupt...
I KNOW how frightening this all can be, so I just want you to know you and Roben are not alone here.
The trials can be pretty restrictive because of low blood counts, so that would seem to me to be the first order, to get blood counts up and stabilized; growth factors can be your friends here.
A tactic that my onc uses (maybe not news to you but offer it anyway) is to reduce the chemo dose when my counts are borderline so that I stay on schedule and keep hitting the cancer cells even if not quite as hard.
I'm sure some of the others will have suggestions, so hang in there. My thoughts and prayers are with you.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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03-18-2007, 09:40 PM
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#4
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Member
Join Date: Feb 2007
Location: Just outside Charlotte N.C. My mom and dad and sister and brother live close
Posts: 9
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roben has had weekly procrit shot but has not been given neuphgen for awhile know ( she use to give herself the shoot three times aweek while we were on toxil
thank you for your input I ,m so stressed I was impolite
cheekiepie
Last edited by cheekiepie; 03-18-2007 at 09:51 PM..
Reason: to thank lolley
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03-19-2007, 08:43 AM
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#5
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Bumping this back up...
...in case some didn't see it.
Jeff, no apology necessary.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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03-20-2007, 04:37 PM
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#6
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Bumping this up, does anyone have experience with Abraxane?
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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03-20-2007, 04:47 PM
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#7
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Senior Member
Join Date: Oct 2005
Posts: 823
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I had 4 treatments of Abraxane. I did really well on it. I did however have to have the Aranesp shots for my RBC , but my WBC did really well.
I had the achng joints but no nausea.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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03-22-2007, 10:29 PM
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#8
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Member
Join Date: Feb 2007
Location: Just outside Charlotte N.C. My mom and dad and sister and brother live close
Posts: 9
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thank you yorkie girl
I expect Roben to do well with side effect to she was on toxil (a sisterb to this drug for year and three months). I just feel she needs the avastin also and feel she should be able to fight this without insureances holding back drugs just because there to expensive.
thanks for your thoughtfulness
God bless you
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