Stage IV. 3 years NED with Kadcyla/TDM1!

[michka]

Hello everyone,
I wanted to share that I had a scan and a MRI yesterday. Still NED!
3 years on Kadcyla (TDM1)! 46 rounds.

I had dozens of tumors when I started. I had to have a stent put in because of a bile duct obstruction. I became Ned after just a few weeks on TDM1. It is a miracle drug for me. I hope it will help many many other HER2 sisters and brothers.

It is not an easy drug for me but I know many women who have less if not no side effects. I started at 3.6mg/kg then moved to 3.0 mg/kg and now I am on 2.4mg/kg. My infusions are every 4 weeks instead of every 3 weeks.

My liver shows signs of toxicity so I do not know how long I can stay on Kadcyla now. The doctors do not really know what is best for me. It is a benefit/risk game. My feeling is that it will be up to me to decide when to stop. I feel this moment is not far because I am not feeling well but I am afraid the cancer will come back.

I am so grateful to some of our courageous HER2 sisters who went in the early phase trials such a Barbara H or our dear Chrisy.

And you know what? I drank a half a glass of wine to celebrate! (I know, it is not good for the liver but I never drink wine anymore).

Michka