HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Reply
 
Thread Tools Display Modes
Old 02-06-2019, 01:01 PM   #101
Juls
Senior Member
 
Join Date: Mar 2014
Location: UK
Posts: 560
Re: Treatment after Kadcyla?

Hi Cathya,

Forgot to say I have had Letrozole.


Juls
Juls is offline   Reply With Quote
Old 02-06-2019, 01:04 PM   #102
Juls
Senior Member
 
Join Date: Mar 2014
Location: UK
Posts: 560
Re: Treatment after Kadcyla?

Hi,

Another change - blood test good. So I have to decide tomorrow and start a Chemo next Thurs 14th!

Geez!

Juls
Juls is offline   Reply With Quote
Old 02-06-2019, 01:16 PM   #103
nancy dip
Senior Member
 
Join Date: Jun 2007
Posts: 43
Re: Treatment after Kadcyla?

Hi Juls. I won't pretend it was easy.....hair loss, fatigue but took anti nausea meds so that wasn't a problem. Fatigue was worse first week and I was almost back to normal by time for next dose. I'm not sure, but don't think we've as much choice of treatment as people in USA and you have to do something! I was treated at Gartnaval. Hope you get good answers soon. Nancy
__________________
Found lump myself 8 months after routine mammogram.
29/11/06-WLE and then re-excision to get clear margins.
Tumour was 1.2cms; Grade3; Er+ Pr+ HER2 3+++; SNB negative out of 9 nodes.
Chemo was Epirubicin every 3wks x4 then Xeloda (2wks on, 1wk off) for 4 cycles. ( I am part of the TACT2 trial.)
Rads x25
Arimidex for 5 yrs.
Hoping to start Herceptin within the next 2 weeks (we have to follow the HERA protocol to qualify for Herceptin in the U.K.) I worry about the delay in starting Herceptin!! Started 8/10/07
nancy dip is offline   Reply With Quote
Old 02-06-2019, 04:03 PM   #104
Juls
Senior Member
 
Join Date: Mar 2014
Location: UK
Posts: 560
Re: Treatment after Kadcyla?

Hi Nancy,

Have to agree - very little choice here!
Told I'm in the best place (Beatson)
Hopefully some answers tomorrow.

Regards
Juls
Juls is offline   Reply With Quote
Old 02-07-2019, 10:37 AM   #105
Donna H
Senior Member
 
Join Date: May 2014
Posts: 224
Re: Treatment after Kadcyla?

Sending good thoughts and positive energy your way.....
Donna H is offline   Reply With Quote
Old 02-08-2019, 10:01 AM   #106
Juls
Senior Member
 
Join Date: Mar 2014
Location: UK
Posts: 560
Re: Treatment after Kadcyla?

Thanks Donna,

Much appreciated!

Juls
Juls is offline   Reply With Quote
Old 02-08-2019, 10:10 AM   #107
Juls
Senior Member
 
Join Date: Mar 2014
Location: UK
Posts: 560
Re: Treatment after Kadcyla?

Hi All,

Choices are :-

1. Epirubicin

2. Eribulin

2. No Chemo.

Looks like its Eribulin as I can have Herceptin with it (If NICE Scottish Health Board allow it!) Oncologist would like decision by Monday to start Thursday.

First time I have been undecided.

Juls
Juls is offline   Reply With Quote
Old 02-08-2019, 11:03 AM   #108
donocco
Senior Member
 
Join Date: Oct 2013
Posts: 364
Re: Treatment after Kadcyla?

Jules

I hope other people put in their input but if you can get Herceptin with the Eribulin it would seem the way to go. Im sorry you are having problems with the medical board.

I tell what I know about Eribulin from memory. It inhibits microtubules like Vincristine and Taxol drugs do. I think the brand name is Halavan. I think it is given twice a week during the cycle. I forgot the dose, 1.4mg /m2 comes to mind. Not sure

The big side effects are neutropenia, hair loss and peripheral neuropathy. And the usual fatigue. constipation and diarrhea etc.

I imagine they dont want to combine Adriamycin with Herceptin because both drugs can affect the heart. Hope this helps a bit

Paul
donocco is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 12:15 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2019, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007
free webpage hit counter