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08-16-2007, 04:26 AM
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#1
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Senior Member
Join Date: Oct 2005
Location: TN
Posts: 84
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The Good & the Bad
Well, the good news is that the abraxane had helped! Last scan was clear, (except for some small unmeasurable spots??...not sure what they are) My last Abraxane is Aug 28Th, and scans around the end of Oct.
Now for the bad news....with the Navalbine, I had some nerve damage to my (L) leg, and am on Neurontin. My leg is mostly better, but lately is acting up just a little. My (L) hand, is numb & tingly from my middle finger to the (L) side. All of that side of the palm of my hand, and some sl pain along the (L) side...Neurontin was increased on Tues, but I haven't felt any difference. 
Has anyone experienced this?
__________________
3/2003-Dx'd Stage 4 Her 2+++
"Life is not measured by the number of breaths we take, but by the moments that take our breath away."
Dum spiro spero (Latin: while I breathe I hope)
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08-16-2007, 05:44 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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I had - getting my problems from Taxol. I chose not to take any drugs and did some light weights. After rads, I walked (and walked and walked). Slowly but surely my feeling came back (it can take up to 18 months for a nerve to regrow and regenerate - in the legs its even longer because nerves grow at a certain rate and the longer the nerve, the longer it can take).
Anyway, I am almost ok but I am not sure about my toes but I can live with that.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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08-16-2007, 02:30 PM
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#3
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Dede,
I have neuropathy and I take Lyrica (prescription) and glucosamine/chondronitn (over the counter). Both have helped.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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08-16-2007, 08:45 PM
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#4
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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I also take Lyrica and it helps. I really would like to try to get away from taking Lyrica, because I think it is contributing to my weight gain. My general practioner also recommended taking GABA, because neurontin is made from that and is called something like GABApentin.
Also congrats on your news about Abraxane, it is also encouraging, because I had my first dose last Friday and will be taking my second dose tomorrow. I hope you continue to get good results!
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08-17-2007, 08:55 AM
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#5
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Deceased
Join Date: Oct 2005
Location: Chadds Ford, Pa
Posts: 206
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Accupuncture has helped with neuropathy in my feet due to Taxotere. You might consider it.
__________________
Donna
Diagnosed 2/04 - Invasive ductal - no clean margins
node negative - er+pr+, her2++
Mastectomy 4/04 - 4 rounds AC
9/05 - mets to liver treated with carbo/ixabipelone/herceptin
3/06 - complete remission
9/06 - new liver mets, starting Taxotere/Herceptin
1/07 -Liver mets stable, staying on Herceptin
5/07 - Liver, lung progression - starting T/X
12/07 - Liver, lung progression - starting weekly Navilbene/Herceptin
4/08 - Liver progression - started Abraxane, Carbo, Tykerb and Herceptin
7/08 - Liver Progression - started Gemzar, Avastin and Tykerb
10/08 - Liver progression - starting Doxil
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08-18-2007, 04:49 AM
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#6
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Senior Member
Join Date: Oct 2005
Location: TN
Posts: 84
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All of these problems seem to congregate on my (L) side! So only half of me is falling apart.
Last night, I was very sick, severe stomach cramps, which led to nausea & vomiting......I felt terrible!!
__________________
3/2003-Dx'd Stage 4 Her 2+++
"Life is not measured by the number of breaths we take, but by the moments that take our breath away."
Dum spiro spero (Latin: while I breathe I hope)
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