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Old 09-25-2009, 01:41 PM   #21
vickie h
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Re: ~Okay, 30 Minute Conversation and I Don't Understand A Word!!!!!

Dearest sister,
I have been gone and just came on today. I am heartbroken knowing what you are going through. It's Ok to get mad at God! I can't tell you how many times I've raised up in anger against him only to find him still waiting patiently in my heart. His presence will never leave you no matter how sad, angry or filled with despair as you walk this monumental road. I am so sorry that you have to go through this, I truly am. Time is the greatest healer and God brought Ed to you and will gently take him in his arms again.
But in the meantime, scream, cry, throw things....whatever you feel. This is the worst pain I can imagine. The cruelest reality.
I'm praying for you around the clock, my dear friend.
I love you,
Vickie
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Love and Hugs, Vickie

Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.


Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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Old 09-25-2009, 02:01 PM   #22
ElaineM
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Wink Re: ~Okay, 30 Minute Conversation and I Don't Understand A Word!!!!!

It is human to get upset when things are not going well.
I don't know anyone who doesn't get upset occassionally.
When I get upset because things are not going well I try to stop and ask myself what I am supposed to learn from the experience that will help me during my lifetime or afterwards. What are those around me supposed to learn from it? This includes learning something from health problems and how we respond to them.
God doesn't cause problems or suffering, but God is there to comfort us when we are suffering or have problems.
Is there someone near you who can help you with the day to day errands and chores, so you can be with Ed, get outside for a little walk or take a nap? That might help.
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Peace,
ElaineM
12 years and counting
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Old 09-25-2009, 02:16 PM   #23
Beckie
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Re: ~Okay, 30 Minute Conversation and I Don't Understand A Word!!!!!

Marie,
I am so sorry you are having such a difficult time now. It is so hard to take care of someone who cannot communicate with you. I have been helping take care of my mom (1 1/2 days a week) for several years. The last few years there has been no communication. We keep talking and tell her how much we love her. Of course, there is a difference between a mom and a husband.
So many of the responses have been wonderful. Sometimes its hard to feel or remember, but I believe God has our best in mind in all He does. When Ed goes, heaven is a wonderful place for him. You will need to draw close to Him and others who love Him. I agree about the book by Dr. Dobson.

I love you and am praying for both of you.

God bless. Beckie
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Diagnosed 4/06, age 55
1.1 cm tumor
Pre-op x-ray caught lung nodules
6/06 - Stage 4, Her2+++, er/pr-
Mets to lungs(largest 3 cm), liver (largest 5.5 cm), and bones
Began taxotere, herceptin, & aredia
7/06 - radiation to lower spine & left shoulder for pain
8/06 - everything smaller
12/06 - stopped taxotere (toe infections)
5/07 - bone mets advancing
6/07 - add navelbine to herceptin & aredia
6/07 - discovered brain mets (3 in cerebellum, largest 2 cm.)
7/07 - WBR, change to Tykerb/Xeloda
9/07 - targeted radiation
10/08 - started navelbine/herceptin
2/09 - brain mets - targeted radiation
5/09 - mets in liver progressing, changed to Ixempra
7/09 - mets in liver still going, to the brain again, on gemzar now
9/09 - gemzar failed, started Doxil today


I know Who holds the future, and I know He holds my hand.
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Old 09-25-2009, 02:26 PM   #24
Laurel
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Re: ~Okay, 30 Minute Conversation and I Don't Understand A Word!!!!!

Dearest Marie,

You are just going to have to trust me on this: God sees. He understands exactly how difficult it is to watch helpless as someone you love suffers. Remember He watched His Son die the brutal death of the cross. He has not forsaken you and Ed just as He did not forsake our Lord. You have every justification to feel abandoned in this time of great trial and despair. After all, our Lord cried out in the midst of His suffering, "My God, My God! Why hast thou forsaken me?" You, dear Marie, are only human and I believe it is very human to question your faith in moments of overwhelming pain and sadness.

God was waiting for His Son with open arms. He is waiting for Ed, too. What a beautiful reunion that shall be.

At the end of the day, all we have is our faith...
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Smile On!
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Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 09-25-2009, 03:53 PM   #25
harrie
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Re: ~Okay, 30 Minute Conversation and I Don't Understand A Word!!!!!

Marie,
I think the disease may have taken over Ed's words, thoughts, and body. But I think that what remains the same is his spirit. I know this may be hard to define, but I think it may also be referred to the essense way down inside his core. At this point it is something felt, not heard or seen. I may be all off-base, but this is just something I believe.
If you are able to connect with these, maybe it will be possible to detach a bit to the other situations that arise from the disease.
Wishing you some peace.
Maryanne
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*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 09-25-2009, 03:58 PM   #26
Lien
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Re: ~Okay, 30 Minute Conversation and I Don't Understand A Word!!!!!

Oh Marie, I just want to hold you and hug you and tell you it's okay to feel the way you do. Somewhere in there is the Mighty Oak you love, he just can't express things the way he used to. And whether or not God is there right now for you, we may never know for sure. I like what Suzan said: Look into his eyes and keep telling him you love him.

Even though it's heartwrenching, these are important times. And you may need to tell him that he can let go, that you will be okay. Your bond is so strong, he may be trying to hang on for you.

If you go to hell, we all will. And when I get there, I will wait for you, and hug you tightly the moment you arrive. For you are one of the specialest people I know. And if you are there, hell can't be a bad place.

Hugs

Jacqueline
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Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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Old 09-25-2009, 04:11 PM   #27
Chelee
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Re: ~Okay, 30 Minute Conversation and I Don't Understand A Word!!!!!

Oh my dear Marie, My heart goes out to you in such a big way. Don't beat yourself up for the way your feeling...it's very normal at a time like this. Your only human girl. You have been through he$% and back and this isn't what you planned on. Your life has been turned upside down and the reality of it all is hitting you every which way from Sunday.

I lost my Mother to advanced lung cancer two yrs ago and towards the end it was almost unbearable for me to watch. I'd sit & talk to her not knowing if she heard me or even knew I was there. The last thing I told her before she passed was to go be with her Mother and to not worry about me...I was going to be alright. It wasn't long after that and she was gone. I some times like to believe she did hear me. But was I angry...you betcha. Marie...what your going through right now is tough to say the least...but God understands and he still loves you. He understands everything. He is, and will continue to be there for regardless of how your feeling right now. I will be keeping you in my thoughts and prayers. Hang in there Marie...we are here for you.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 09-25-2009, 05:22 PM   #28
'lizbeth
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Re: ~Okay, 30 Minute Conversation and I Don't Understand A Word!!!!!

Cancer sucks. You can vent anytime. We understand.
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Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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Old 09-25-2009, 05:24 PM   #29
Barbara H.
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Re: ~Okay, 30 Minute Conversation and I Don't Understand A Word!!!!!

Marie, I think of you all day long. I'm so glad that you trust us well enough to vent here. We care deeply for you.
Best regards,
Barbara H.
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