![Reply](http://her2support.org/vbulletin/images/buttons/reply.gif) |
|
11-26-2014, 06:27 AM
|
#1
|
Senior Member
Join Date: Dec 2012
Location: Attica, IN
Posts: 371
|
Is it okay to cuss on here?? Cuz this is a Bitch
Yes, I said it the life altering drugs are not making me a happy camper! I go for my herceptin/projecta today, and never look forward to the 3 hour round trip.
This is number 5, and I know I am A newbie to treatment for life......today, I am mad, I want to cry, I want to quit.....today this being my life isn't wanted. This to shall pass as my Grandma would say. I think I was riding on the shock of it all and now it's reality. It's hard for me to except no end game besides it doesn't make sense anymore.....meaning treatment is done and die.
I know people can live for years on treatment, and I just don't know how you continue to get through.
So I am sitting here drinking my coffee thinking and crying about my 12:30 appt today and rather be anywhere else.
On a positive note the visible lump has swollen.
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant
9/2012 Pre-adjunctive TCH chemo.
12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.
12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+
2/27/13 6 weeks of IMRT radiation finished
2/2013 Started on Tamoxifan 5 years.
8/2013 will take last Herceptin, 17 treatments total every 3 weeks.
BRCA1 & BRAC2 - Negative
August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.
3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
|
|
|
11-26-2014, 06:48 AM
|
#2
|
Senior Member
Join Date: May 2014
Location: San Diego
Posts: 411
|
Re: Is it okay to cuss on here?? Cuz this is a Bitch
How would you be feeling if there was no treatment available? None of us here wanted or likely even imagined having cancer. Some of the treatments can be pretty brutal. However, there are really effective treatments available! Without sounding uncaring or unsympathetic, I think it would help to focus on the positives. I say this because for me, it really helps.
Perhaps you could download some really good tunes to listen to during your 3 hr ordeals. Music has a way of picking up my spirits. Perhaps it could do the same for you? Use the treatment time to reflect on all of the things you have in your life to be grateful for. Think of how lucky you are that your body is responding so well to the treatment.....so many things to be happy for.
With all the advances in our disease, it isn't a given that you will need treatments forever. There are many stage IV HER2 sisters on this site that no longer have treatment and are doing well.
Hang in there and yes, it is ok to cuss
__________________
8/2013 Diagnosed IDC Left Breast ER-/PR-/HER2+ Stage 3C, DCIS ER+/PR+/HER2- Right Breast (54 yr)
8/2013 PET/CT scan shows mass in uterues and suprclavicular nodes
8/20/13 Begin 6 rounds TCH chemo, Perjeta added for rounds 4-6
9/2013 After 1st round of chemo, mass in neck and breast no longer able to feel
11/2013 Hysterectomy, mass from PET/CT scan not cancer (adenomylosis)
12/2013 Finished chemo
1/2014 Double mastectomy with chest expanders
1/2014 Pathology report from surgery and SNB show complete pathological response!
3/2014 Finish IMRT radiation
8/2014 Fat transfer to radiated breast
8/2014 Completed 1 yr of Herceptin
10/2014 exchange surgery expanders removed implants placed
6/2015 3D nipple and areola tattoos
Last edited by thinkpositive; 11-26-2014 at 06:50 AM..
Reason: spelling
|
|
|
11-26-2014, 07:09 AM
|
#3
|
Senior Member
Join Date: Dec 2012
Location: Attica, IN
Posts: 371
|
Re: Is it okay to cuss on here?? Cuz this is a Bitch
Today I am not positive. And it's okay if I am not too. This board is where I vent bad, good and indifferent. Round 5 after reoccurance, and I don't know I just feel blah, mad or ehhh.
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant
9/2012 Pre-adjunctive TCH chemo.
12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.
12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+
2/27/13 6 weeks of IMRT radiation finished
2/2013 Started on Tamoxifan 5 years.
8/2013 will take last Herceptin, 17 treatments total every 3 weeks.
BRCA1 & BRAC2 - Negative
August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.
3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
|
|
|
11-26-2014, 07:11 AM
|
#4
|
Senior Member
Join Date: Dec 2012
Location: Attica, IN
Posts: 371
|
Re: Is it okay to cuss on here?? Cuz this is a Bitch
Btw just saying what my doctor said.....treatment for life...no end game like before that's the difference this time.
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant
9/2012 Pre-adjunctive TCH chemo.
12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.
12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+
2/27/13 6 weeks of IMRT radiation finished
2/2013 Started on Tamoxifan 5 years.
8/2013 will take last Herceptin, 17 treatments total every 3 weeks.
BRCA1 & BRAC2 - Negative
August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.
3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
|
|
|
11-26-2014, 07:52 AM
|
#5
|
Senior Member
Join Date: Mar 2009
Posts: 126
|
Re: Is it okay to cuss on here?? Cuz this is a Bitch
Linn. ((Hugs)). You are allowed to feel down but you are more than worth it. I hope today goes quickly and the SE are non existent.
__________________
Diag. 12/24/08-
IDC 1.3 er-/pr- HER2+
Grade 3 0/2 lymph nodes
no angiolympathic invasion
Bi-Lat. Mast. 1/8/09
Exchange scheduled for 6/17/09
Lost implants due to unknown reason :(
Hip Flap 1/26/2010 in NOLA :) LOVE EM'
TCH x6 (6 done and I am hoping to never do it again )
Well so much for never...
Local recurrence May 25,2014 is left over breast tissue.
April 2 , 2014 lumpectomy
April 28, 2014- June 9, 2014 start AC x 4
Taxol x12
Perjeta x 6
Herceptin x 18
And 33 rads just for fun. NOT!!!
|
|
|
11-26-2014, 07:56 AM
|
#6
|
Senior Member
Join Date: Aug 2006
Posts: 79
|
Re: Is it okay to cuss on here?? Cuz this is a Bitch
Linn, I remember feeling just as you do now. I have been stage 4 for 12 years and on continuous tx. It has become normalcy for me and I truly am thankful for the time I've received with relatively good quality of life. I continue with Herceptin and Perjeta and find them not difficult, much more favorable than the consequences of cancer. Good luck to you!
Kathy T.
|
|
|
11-26-2014, 08:10 AM
|
#7
|
Senior Member
Join Date: Dec 2012
Location: Attica, IN
Posts: 371
|
Re: Is it okay to cuss on here?? Cuz this is a Bitch
Really? You did? It's like I have been in a funk for 2 days and treatment is today. I want to live , and I am thankful for the meds. How long until gained acceptance?
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant
9/2012 Pre-adjunctive TCH chemo.
12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.
12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+
2/27/13 6 weeks of IMRT radiation finished
2/2013 Started on Tamoxifan 5 years.
8/2013 will take last Herceptin, 17 treatments total every 3 weeks.
BRCA1 & BRAC2 - Negative
August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.
3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
|
|
|
11-26-2014, 08:47 AM
|
#8
|
Senior Member
Join Date: May 2014
Location: San Diego
Posts: 411
|
Re: Is it okay to cuss on here?? Cuz this is a Bitch
linn,
I'm sorry that you are feeling down. My post wasn't intended to imply that it isn't ok to feel down. I was just offering up some suggestions that help pick me up when I'm feeling that way.
Best of luck to you today
__________________
8/2013 Diagnosed IDC Left Breast ER-/PR-/HER2+ Stage 3C, DCIS ER+/PR+/HER2- Right Breast (54 yr)
8/2013 PET/CT scan shows mass in uterues and suprclavicular nodes
8/20/13 Begin 6 rounds TCH chemo, Perjeta added for rounds 4-6
9/2013 After 1st round of chemo, mass in neck and breast no longer able to feel
11/2013 Hysterectomy, mass from PET/CT scan not cancer (adenomylosis)
12/2013 Finished chemo
1/2014 Double mastectomy with chest expanders
1/2014 Pathology report from surgery and SNB show complete pathological response!
3/2014 Finish IMRT radiation
8/2014 Fat transfer to radiated breast
8/2014 Completed 1 yr of Herceptin
10/2014 exchange surgery expanders removed implants placed
6/2015 3D nipple and areola tattoos
|
|
|
11-26-2014, 10:36 AM
|
#9
|
Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
|
Re: Is it okay to cuss on here?? Cuz this is a Bitch
Waaaah, Waaaah, Waaaah!
What a drama queen! I knew there was a reason I like you - we are so much alike, lol.
You are doing Herceptin and Perjeta, honestly - could there be any easier treatment than that? And your node is shrinking! You will likely get to NED shortly and remain there.
Are you doing infusions weekly or every 3 weeks?
What are you doing for the estrogen? We need to start digging up the research on this, and check for possible future clinical trials - that you might not even ever need.
Honestly, you are on permanent vacation, you have one node that is shrinking, and the only thing you have to do is a 3 hour round trip?
Geez, I used to make 3-4 day trips to San Antonio for treatment and schedule around work.
I wish you would have gotten a 2nd opinion, or even 3 opinions. Was cancer detected anywhere else in your body besides the 1 supraclavicle node?
|
|
|
11-26-2014, 12:42 PM
|
#10
|
Senior Member
Join Date: Oct 2005
Location: Lakeville, Minnesota
Posts: 199
|
Re: Is it okay to cuss on here?? Cuz this is a Bitch
Linn,
I have been stage 4 for almost 4 1/2 years and I haven't accepted that this is what my life is going to be like from now on. I don't even do doses every 3 weeks anymore and I still whine and complain to my dh whenever we are getting ready to go to treatment.
And just to clarify, there are not MANY stage 4 women on this site who are Ned and not on treatment . There are 2, maybe 3 at the most. It is very, very rare ( probably 2-3 % chance of it happening)
Laurie
__________________
diagnosed stage 2- 3/2005
4.5 cm & 2+ nodes , er/pr- & HER2+
4 AC
12 taxol/Herceptin
Year of Herceptin
liver mets- July-2010
7 taxotere/Herceptin
RFA- Feb.2011
NED
U of Wa vaccine trial-oct 2011-Feb 2012
Herceptin/tykerb
Ned - 2 1/2 years
Herceptin & perjeta
Ned 3 years
Herceptin- reducing treatments , due to s/e, to 5-6 a year
NED- 3 1/2 years
Ned - 4 years
2/15- stopped herceptin - on no treatment
|
|
|
11-26-2014, 12:46 PM
|
#11
|
Senior Member
Join Date: Dec 2012
Location: Attica, IN
Posts: 371
|
Re: Is it okay to cuss on here?? Cuz this is a Bitch
ilzabeth.....I got your drama queen! Ms. Passive/aggressive !!
I am still trying to totally wrap my head around NED vs. stable. But I keep asking and the answer is....it's like you have a chronic Illinois like diabetes and it needs to be treated just like it. It was seen in 4 places total based on catscan. I am taking armidex for the estrogen the tamoxifen did nothing for it.
I have now turned into a complete whiner, complainer, uhm oh and high maintenance drama queen!!
Oh and yes every 3 weeks....it's longer to drive here vs 1 hour to get it. If I could accesss my port, , mix the meds I could do it from home.
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant
9/2012 Pre-adjunctive TCH chemo.
12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.
12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+
2/27/13 6 weeks of IMRT radiation finished
2/2013 Started on Tamoxifan 5 years.
8/2013 will take last Herceptin, 17 treatments total every 3 weeks.
BRCA1 & BRAC2 - Negative
August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.
3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
|
|
|
11-26-2014, 02:05 PM
|
#12
|
Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
|
Re: Is it okay to cuss on here?? Cuz this is a Bitch
Well it is about time you came clean and tell us about the scans. The last information was about regional recurrence.
Where else is your cancer besides the 1 supraclavicular node? Is is still regional? Or do you have metastasis in distant organs?
Still expecting NED as you haven't had a combination of Herceptin, Perjeta and Arimidex before. I am very happy about the Perjeta and the Arimidex.
Are these treatments really that bad? Sounds like something you can manage with a little humor thrown in. Yes - and I have my own Passive Aggressive dramas, just blew my stack over the new coupon police that I have to deal with for the Christmas holiday. Seems like my new coworker had to go running to the #2 manager in the store to let her know I was walking around the store with 25% coupons along with the 30% flyer for fine jewelry. Two days later my technique of encouraging new accounts was posted on the board for all to follow, LMAO. Seriously, I need to not take things so seriously, lol. Honestly if the customer checks out at another register or 2 they will find out the coupon exists and I've had enough come back to be rerung. Shopping with coupons is an artform!
Lauriesh, thanks for setting us straight on the Stage IV continued treatment information. I also thought the NED, off treatment number was higher with board members.
|
|
|
11-26-2014, 03:02 PM
|
#13
|
Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
|
Re: Is it okay to cuss on here?? Cuz this is a Bitch
Anyway, you Passive Aggressive friend here is really happy that you've started posting again.
We missed you, honest, lol!
|
|
|
11-26-2014, 05:03 PM
|
#14
|
Senior Member
Join Date: Dec 2012
Location: Attica, IN
Posts: 371
|
Re: Is it okay to cuss on here?? Cuz this is a Bitch
Coupon police you got a love them and you know the old saying you can't beat them join them. But hey I'm very proud of you working another Christmas season. Or you are glutton for punishment!!
Laurish is my new BFF and I would like to start a whiner and complainer club. Forget humor, trials, vaccines we need a whiner complainer club!!! Lol
As far as side effects; couple bloody noses, vomited a couple times, a little bit of itchy, watery itchy eyes, and runny nose without the stuffy, the usual fatigue and and let's not forget my hand and feet hurting on and off other than that this treatment is just so fabulous! And I wish I could just go weekly instead of every three weeks after all I miss the recliners......
She said I have three other areas in the axila nodes.....so that reoccurance quickly with the same phenotype, leaving the ducts I think she said, and all the previous treatment that means stage IV.....Ned or stable the treatment keeps it that way unless the puppy jumps out of the gate I believe the words Lani used at one time or I guess the puppy did. Well, now we want to keep the puppy a puppy and not a full grown Dog.
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant
9/2012 Pre-adjunctive TCH chemo.
12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.
12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+
2/27/13 6 weeks of IMRT radiation finished
2/2013 Started on Tamoxifan 5 years.
8/2013 will take last Herceptin, 17 treatments total every 3 weeks.
BRCA1 & BRAC2 - Negative
August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.
3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
|
|
|
11-26-2014, 05:33 PM
|
#15
|
Senior Member
Join Date: Oct 2012
Posts: 646
|
Re: Is it okay to cuss on here?? Cuz this is a Bitch
So glad to "see" you! You are allowed to vent, bitch whatever.
Anyway, I get the other areas in the nodes, but were there any other areas in your body that showed up as cancer on the scans? I know I'm echoing 'lizbeth but am curious as well.
Anyway, we all missed you. Welcome back to the safe space.
Janis
__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
|
|
|
11-26-2014, 11:03 PM
|
#16
|
Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
|
Re: Is it okay to cuss on here?? Cuz this is a Bitch
I know, I know, she is NOT stage IV. Only Stage IIIC.
This time it seems like the tumors ARE responding to treatment, unlike your initial.
Fascinating. What if you get a pCR? Lifetime maintenance, very likely, but also encouraging.
What? You not complain? We could not deprive you of that!
|
|
|
11-27-2014, 05:39 AM
|
#17
|
Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
|
Re: Is it okay to cuss on here?? Cuz this is a Bitch
You are entitled to curse, vent, cry, laugh...most importantly...SHARE!!! Why??? Because you are ALIVE!!!!!!!
__________________
![](signaturepics/sigpic159_1.gif) Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
|
|
|
11-27-2014, 09:07 AM
|
#18
|
Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
|
Re: Is it okay to cuss on here?? Cuz this is a Bitch
Hello Linn,
You're early into the Herceptin treatment, it does get easier and you will feel better but bitch and complain if that helps you. We all have to find our own way to get through this and carry on. Cancer is a bitch. Try audio books, I found it soothing to listen to a good book and often reading or watching a movie was too hard. Also it's a good way to take you away from the present situation. If you aren't taking Amidex at night, try taking it at night to lessen any side effects. For itching, I found calamine lotion the best solution although it's messy.
10 years ago, I thought I'd received a death notice and would be dead within months so I'm one of the happiest people because I'm still here! You'll get there too, hope it's sooner than later. Have some chocolate and a glass of red wine. I find those 2 things always make me feel better. I also hope you have supportive friends and a furry animal - my dogs have helped me through a lot. I often think of Brenda's line "but doctor I hate pink!" Don't we all!
hugs and love
sarah
__________________
|
|
|
11-27-2014, 12:38 PM
|
#19
|
Senior Member
Join Date: Jun 2011
Location: Somerset, NJ
Posts: 487
|
Re: Is it okay to cuss on here?? Cuz this is a Bitch
Bitching is such a relief sometimes, and you certainly have right and reason to do it. For me it was a short five months, but even that wore me down, so the thought of "no end in sight" can only be overwhelming.
I suppose there are as many ways to cope as there are people. My way is to put one foot in front of the other and keep going, but I'd be a liar if I didn't admit to dragging them at times. Okay, more often than not.
I have found that anger is as good an impetus to movement as any--perhaps even better than most. Just try to temper your fury to a level that is motivating rather than incapacitating.
And remember that you can always come here to whine and complain and bitch and moan, and there will be someone to listen.
__________________
2/6/09 Core needle biopsy: negative; Mammos through 2010: no change
3/30/11 Pea-sized lump in left breast at site of prior biopsy; mammo negative, sonogram not so much
4/14/11 Core needle biopsy: negative for cancer
5/18/11 Excisional biopsy 1.2 cm tumor, LVI, positive margin; ER+60%,PR+20%,HER2/CEP17 5
6/15/11 BMX: Left DCIS & LH; Right ADH; SNB: 2/3 nodes: 1.4 cm and 1 mm; ALND L1&2: 0/10; Stage IIa, Grade 3
7/14/11 CT/Bone scans NED; MUGA 66%
7/19/11 Biweekly dd AC w/Neulasta; done 8/30/11
9/13/11 Transfusion (Hemoglobin 8.6); MUGA 64%
9/20/11 Start Taxol + Herceptin; Taxol done 12/6/2011; continue Herceptin until 9/4/2012
12/27/11 Radiation - 6 weeks; 2/27/2012 - DONE! Yayyyy!
2/29/12 Start Tamoxifen 20 mg/day; continue until 2/28/17
5/16/12 Start five-years Metformin trial
6/19/12 MUGA 61%
8/21/12 Brain MRI NED (head still hurts, brain still fogged)
9/4/12 Herceptin done!
9/6/12 Port out!
7/11/13 Aricept 5mg for cognitive impairment; increased to 10mg as of 8/23/13; back to 5mg 12/2013
5/2014 Add Namenda 7mg
9/2014 Stop Aricept and Namenda; Neuropsychological evaluation
10/24/14 Start cognitive rehabilitation therapy
|
|
|
11-29-2014, 07:25 AM
|
#20
|
Senior Member
Join Date: Jun 2012
Posts: 81
|
Re: Is it okay to cuss on here?? Cuz this is a Bitch
Linn,
Cuss away! F*ck is my favorite word!!!!
Hugs to you, dear!
xoxoxoxoxoxoxoxoxoxox
__________________
Dx 4-12-2012
R unilat Mx 5-25-2012 (no reconstruction)
Stage 2B, Grade 3, Her2+++, Er + (15%), Pr -
4.2 cm, 2/14 nodes +
3 AC, 4 T/H
Zoladex 4 months
Oophorectomy Feb 2013
AI daily
Herceptin every 3 wks until Sept 2013
Gamma Knife June 2014, 2 cm brain met
Liver mets Oct 2014
Taxotere/herceptin/perjeta-CLEOPATRA trial Nov 2014-Mar 2015
"RISK BEING SEEN, IN ALL OF YOUR GLORY!" Jim Carrey
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 10:11 PM.
|