Anyone on TDM1???

[Neanar]

Hello everyone, greetings from the UK :-)
Im janine aged 35 and live in nottingham, robin hood country in the uk.
Im on the tdm1 marianne trial too and have been since dec 2011. I have my 11th cycle next week. I wanted to share my side effects to see if anyone else is experiencing the same and ask a few questions:
Sickness for 2 days
Bad no.2's all the way through
Numb feet
Fever, flu symptoms,
I have had cold after cold on this, bad sinus pain, lose voice frequently, anyone else???
Bleeding nose
And the big thing for me is that my sight is bad, blured vision. I have severe astigmatism casused by this drug, now wear glasses which help but cant drive at night as i see 3 blobs insted if one traffic light?, very weird.
On a plus after 3 cycles my recurrence rash went and my huge half breast lump whuch was so fast growing went. My latest ct scan has showed it to be in the soft tissue of the breast but no lump. Not spread anywhere else as yet alhough my consultant thinks my breast lump was a spread from the first cancer i had ( other breast) ie. secondary bc. I refuse to believe him and want a mastectomy. Does anyone know if you are allowed a mastectomy whilst on tdm1????
Look forward to hearing from you all, thank you. Xxxx janine