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12-14-2006, 10:50 PM
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#21
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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I am also praying and thinking about both of you, Mel and Lisa. Take care of both Lisa and yourself. I am praying that she recovers and can started on the Tykerb! Lots of love and good wishes.
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12-15-2006, 04:26 AM
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#22
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Mel,
As you know, we pray for Lisa daily. We are in San Antonio until Sunday AM,
If you feel that there is anything that we can do while we are here call me on my cell: 760-445-1816.
We are attending a reception this evening hosted by GSK which will be attended by the top executives of GSK. I am sure that they will offer up any expertise that Lisa may need.
Regards
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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12-15-2006, 04:51 AM
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#23
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Senior Member
Join Date: Sep 2006
Location: Bartonville, IL
Posts: 70
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Lisa and Mel,
May God put his angels around you and give you strength, courage and healing!
I will be praying for both of you.
__________________
Karla
8/05 NORMAL MAMMO
11/05 DX AFTER FINDING LUMP AGE 47
STAGE 1 HIGH RISK
1.1 CM/NODE NEG
ER-/PR- HER 2 +++ GRADE 3
12/05 PARTIAL MASTECTOMY
1/06 CHEMO AC DD X 6
5/06 RADS X 30
10/06 STARTED HERCEPTIN AFTER 3RD OPINION
3/07 GENETIC TESTING-GENE VARIANT FOR BRCA 1 AND 2
3/07 STOPPED HERCPTIN DUE TO LOW EF
BSO 8/08 (P53 SIGNATURE--PRECANCEROUS CELLS)
11/08---IN A STUDY/MRI EVERY 6 MONTHS/MAMMO EVERY YEAR
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12-15-2006, 08:28 AM
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#24
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Lisa has been through so much, so I'm glad that she is getting a break to regain strength. I hope she will be very, very comfortable. New sheets with high thread count! All the very best to Lisa and her family. MJO
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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12-15-2006, 08:48 AM
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#25
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Senior Member
Join Date: Mar 2006
Posts: 306
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Dearest Lisa and Mel,
You are both being held in as much love and light as possible...
Thank you, Mel, for your in depth information and more. It is an honor to 'know' Lisa and yourself. And that's a fact.
With HOPE for the very best outcomes,
love and strong hugs to you both,
pattyz
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12-15-2006, 10:22 AM
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#26
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Senior Member
Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
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Dearest Lisa and Mel,
You bet, I'm sending you both all the positive love and light I've got. Lisa is such a fighter and I know this little break will hopefully be the ticket for her. Please be strong and know we are all rooting for you.
Love, Kim in CA
__________________
Diag. Feb 1997 4.5cm IDC <10%ER+, PR-. 5 out of 36 nodes +. Mastectomy followed by 3 rounds Adriamycin/Cytoxin.
5/1997 Hi Dose Chemo w/ Stem cell rescue. Spent 4 weeks in isolation ward. Then 6 weeks radiation.
9/2001 widespread mets to liver. 8 mos Taxotere/Herceptin brought me almost to NED. Stop Taxotere & add Femara .
11/2002 liver resection to remove spot that turned out to be necrosis. Officially NED!
7/2003 Tumor markers rising add Xeloda Disastrous reaction, 8 days hospital, but tumor markers came back to normal!
June -Dec 2004 UW Vaccine Trial.
7/2005 MRI single 11mm brain met
8/2005 Gamma Knife.
Brain MRI @3 months NED!
2006-2011 brain/body still NED
8/04/11 Taking Herceptin break, will monitor with tumor markers.
6/20/12 Tumor markers begin to rise. CA15-3 is 31.3 and Her2 Serum is at 17.1 Decide to repeat in one month.
7/23/12 CA15-3 now 49.3
Her2 Serum 26.8
8/6/12 Back on Herceptin
CA15-3 now 76
Her2 Serum now 49
11/7/12 Add weekly Taxotere for 4 cycles
2/2013 Stopped Taxotere added Perjeta. MRI shows approx. 50% reduction liver mets. CA15-3 still elevated @ 55. Will continue on just Herceptin & Perjeta.
November 2014 Continuing on Herceptin, Perjeta, and
Femara indefinitely. Guess I'm NED again, but watching those tumor markers carefully!
Dec. 2015 PET scan reveals mass in perirectal area of abdomen.biopsy confirms. Still Her2+, but no longer ER+. Bye bye Femara
Jan 2016 Begin Kadcyla
March 2016 PET scan shows tumor now barely visible, still NED everywhere else.
2016/2017 continue Kadcyla
November 2017 brain MRI reveals small focus of T2 hyperintensity with possible 4mm enhancing nodule. Short term follow up MRI suggested. Stay tuned...
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12-15-2006, 10:39 AM
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#27
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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wow
Mel, thank you so very much for your update. I, too, offer all the prayers and love I possibly can for the two of you. You are such a tough one yourself. Lisa is a very tough one and I so hope her discomfort is quickly relieved and some key rebuilding can begin.
Lisa, we need you, girl! Rest up and revel in a chemo break and let's get you back to Tykerb. I love you!
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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12-15-2006, 02:50 PM
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#28
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Senior Member
Join Date: Sep 2005
Location: .
Posts: 211
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Dear Mel
Thank you for taking the time to let us know how Lisa is. We have been so worried about her and missed her.Please let her know we are thinking of her and you and looking forward to her lovely personality returning to the board.
love
linda
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12-15-2006, 04:25 PM
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#29
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Senior Member
Join Date: Sep 2005
Location: Minneapolis, Minnesota
Posts: 127
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My love and prayers are with you Lisa! Rest my friend. I along with all of us will be your strength while you rest. Hold her Mel. Love - kim
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12-15-2006, 04:46 PM
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#30
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Lisa and Mel,
Keeping both of you in prayers and sending you strong positive healing thoughts!
Jean
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12-15-2006, 06:37 PM
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#31
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Senior Member
Join Date: Oct 2005
Location: Boise, Idaho
Posts: 758
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Mel,
My heart and prayers go out for you & Lisa. She is a very strong and wonder ful person!
Marlys
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12-15-2006, 11:20 PM
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#32
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Dear Mel and Lisa,
I am sending all the prayers, good energy, and hope in the world your way. What a lot to be dealing with - and I hope the break will help reboot Lisa's systems and regain strength so that she can rejoin the fight and get back in the Tykerb trial. It sounds very promising based on your good start;
Love and prayers for the love and light lady...
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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12-16-2006, 06:12 AM
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#33
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Senior Member
Join Date: Dec 2005
Location: virginia
Posts: 99
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Positive Power !
Lisa and Mel,
Sending you so much "Positive Power " that you feel zapped with the Love and Light we direct at both of you. What a team......what support for each other.....what love can do together !! All the strength, support and courage you have sent to all of us.....we send right back at you !
Hugs, Bonnie
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12-16-2006, 08:53 AM
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#34
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Senior Member
Join Date: Jan 2006
Location: New Jersey
Posts: 46
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Hi Lisa,
I was remembering your inspirational story of when you and Mel bought everyone breakfast at your local diner as you announced to everyone you have cancer and are happy to be here. I fully anticipate that you and Mel will be there in full glory to treat everyone at your next birthday.
Sending you lots of positive thoughts, prayers, love, light, and generally good vibes.
Monica
__________________
Monica
Dx Nov 2003 HER2+++, ER+, PR+
1.7 cm. left breast, Grade 3, Two nodes out of six, stage IIA
Mastectomy right side
Lumpectomy left side
4 A/C, 4 Taxol plus 49 weeks herceptin
Radiation on left side
No tamoxifen or other hormonal drugs
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12-16-2006, 11:35 AM
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#35
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Senior Member
Join Date: May 2006
Posts: 26
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It appears that my previous post of support has been deleted so I'd like to leave another. To Mel, Lisa is very beloved in this group. She is one of the kindest, considerate ladies I have ever met on line. She always has a word of encouragement and lives with dignity and yet such bravery. I always liked to look at your picture and see how the 2 of you were beaming with love.
May Lisa be kept comfortable and hopefully with time away from treatment, feel better and stronger. All the pounding away with treatment is bound to take its toll.
Sending you all the best,
Rosie
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12-16-2006, 06:22 PM
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#36
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Senior Member
Join Date: Sep 2005
Posts: 232
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Dear Mel,
For you and Lisa...
Hope
"Of all the forces that make for a better
world, none is so powerful as hope.
With hope, one can think, one can
work, one can dream. If you have hope,
you have everything."
We are all so full of hope for Lisa.
Hugs and healing prayers,
Karen
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